腦性麻痺青少年生活品質量表中文版之信效度探討

張卲如

doi:10.6342/NTU201601793

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脑性麻痹青少年生活品质量表中文版之信效度探讨

Psychometric properties of a Chinese version of the Cerebral Palsy Quality of Life Questionnaire-for Adolescents (CPQOL-Teen) in teenagers with cerebral palsy in Taiwan

张卲如 , 硕士　　导师：曾美惠　　

英文 DOI： 10.6342/NTU201601793

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摘要 │ 参考文献 (141) │ 国际计量

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Purpose: Health-related quality of life (HRQoL) has been attracting attention of clinicians working with children with the adolescents with Cerebral Palsy (CP). It is of great importance to provide clinicians a well-developed measurement for assessing the HRQoL of the adolescents with CP..The present study is aimed to cross culturally translate the Cerebral Palsy Quality of Life questionnaire-for adolescents (CPQOL-Teen) into Mandarin Chinese and evaluate its psychometric properties when used in Taiwanese Adolescents with CP. 
Methods: The study was conducted in two phases. In Phases one, four steps were followed, i.e, 1) forward translation of the CPQOL-Teen according to guidelines developed by Beton, Bombardier, Guilemin, and Feraz (2000) for cross-cultural adaptation of instruments by a committee, 2) expert evaluation of the translation, 3) blind back-translation, and 4) pilot testing and cognitive interviewing. In Phase II, the evaluation of the psychometric properties of the Chinese version of the CPQOL-Teen was conducted. The Chinese version of the CPQOL-Teen was administered to 113 adolescents with CP along with 58 primary caregivers from a medical center, a special school for children and adolescents with CP, senior and junior high schools in Greater Taipei area and long-term care facilities in Taiwan. Internal consistency was examined by using Cronbach alpha, item- subscale correlations by Pearson correlation, test-retest reliability by intraclass correlation (ICC). In addition, content validity was investigated by expert validation, construct validity by both confirmatory and exploratory factor analyses. Criterion-related validity were evaluated by the correlation of the CP-QOL Teen with the WHOQOL BREF Taiwan version using ICC. Agreement between the adolescents with their primary caregivers was also investigated by ICC..
Results: A total of 113 adolescents with CP aged thirteen to eighteen years (mean age = 15.6 years, SD = 1.54, 75 males, 38 females) along with fifty-eight primary caregivers (7 fathers, 45 mothers, 1 grandparent, 5 other caregivers) completed the Chinese version CPQOL-Teen questionnaire. The Chinese version of the CPQOL-Teen demonstrated acceptable to good internal consistency (Cronbach’s αs= 0.83 -0.92: adolescent self- report version; Cronbach’s αs = 0.76- 0.92: primary caregiver version), moderate to good test-retest reliability for adolescent self-report (ICCs= 0.49- 0.96), and poor to good test-retest reliability for primary caregiver version (ICCs= 0.27 - 0.92). Most correlations (Self report: General wellbeing and participation: 0.42-0.77, Communication and physical health: 0.43-0.77, School wellbeing: 0.62-0.80, Social wellbeing: 0.54-0.83, Feeling with functioning: 0.70- 0.83; Primary caregiver report: General wellbeing and participation: 0.52-0.80, Communication and physical health: 0.50-0.75, School wellbeing: 0.68-0.86, Social wellbeing: 0.64-0.82, Feeling with functioning: 0.55- 0.84, Access to service: 0.20-0.89, Family health: 0.84-0.93)  were higher between items and subscales of the original English version than those with other subscales. Exploratory factor analysis of the Chinese version CPQOL-Teen resulted in a two- factors pattern. Concurrent validity with the WHOQOL-BREF Taiwan version showed poor to moderate (0.232-0.640) subscales correlations. Agreement between the adolescents and primary caregivers was moderate (0.53-0.70).

Conclusions: Results of the study suggest that the Chinese version CPQOL-Teen is c a reliable and valid instrument for evaluating adolescents with CP’s HRQoL in Taiwan. Agreement between adolescents with CP and their primary caregiver showed moderate correlation.

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children and youth with disabilities. Retrieved from Swedish
连结：
Adolfsson, M., Malmqvist, J., Pless, M., & Granuld, M. (2011). Identifying child functioning from an ICF-CY perspective: everyday life situations explored in measures of participation. Disability Rehabilitation, 33(13-14), 1230-1244. doi: 10.3109/09638288.2010.526163
连结：
Anaby, D., Korner-Bitensky, N., Steven, E., Tremblay, S., Snider, L., Avery, L., & Law, M. (2016). Current Rehabilitation Practices for Children with Cerebral Palsy: Focus and Gaps. Physical & Occupational Therapy in Pediatrics, 1-15. doi: 10.3109/01942638.2015.1126880
连结：
Arnaud, C., White-Koning, M., Michelsen, S. I., Parkes, J., Parkinson, K., Thyen, U., . . . Colver, A. (2008). Parent-reported quality of life of children with cerebral palsy in Europe. Pediatrics, 121(1), 54-64. doi: 10.1542/peds.2007-0854
连结：
Baars, R. M., Atherton, C. I., Koopman, H. M., Bullinger, M., Power, M., & group, D. (2005). The European DISABKIDS project: development of seven condition-specific modules to measure health related quality of life in children and adolescents. Health Quality of Life Outcomes, 3, 70. doi: 10.1186/1477-7525-3-70
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使用DOI作为永久连结

引用含有DOI的文献

DOI可强化引用精确性、增强学术圈连结，并给予使用者跨平台的良好使用经验，目前在全世界已有超过五千万个对象申请DOI。 如想对DOI的使用与概念有进一步了解，请参考 （ ） 。

DOI可强化引用精确性、增强学术圈连结，并给予使用者跨平台的良好使用经验，目前在全世界已有超过五千万个对象申请DOI。如想对DOI的使用与概念有进一步了解，请参考（）。