题名

陪伴一位睪丸癌末期青年及家屬經歷臨終之護理經驗

并列篇名

The Nursing Experience of Caring for a Terminal Young Adult Cancer Patient and Family Facing End-of-Life

DOI

10.6386/CGN.202303_34(1).0011

作者

王凱楨(Kai-Jhen Wang);吳徐慧(Hsu-Hui Wu);凌小婷(Hsiao-Ting Ling);林淑麗(Shu-Li Lin);鄭玉伶(Yu-Ling Chen)

关键词

青年癌末 ; 疼痛 ; 死亡焦慮 ; 哀傷 ; terminal young adult cancer patient ; pain ; death anxiety ; grief

期刊名称

長庚護理

卷期/出版年月

34卷1期(2023 / 03 / 01)

页次

123 - 136

内容语文

繁體中文;英文

中文摘要

本文旨在應用安寧療護理念,協助一位罹患睪丸癌末期青年及其家屬因應死亡衝擊之照護經驗。照護期間為2019年4月27日至5月16日,運用Gordon十一項健康功能評估,藉由治療性會談、觀察等技巧,確認影響個案身心舒適甚鉅之「疼痛」、「死亡焦慮」及家屬所面臨之「哀傷」為主要健康問題。藉由與醫師討論調整止痛藥物、精油按摩及舒適姿勢擺位緩解個案疼痛不適;引導個案說出面對死亡的感受,及安寧團隊介入,並運用生命回顧及四道人生引導臨終道別,降低個案面對死亡的焦慮;以溫和的態度引導家屬說出面對個案死亡的想法、運用同理心接納家屬悲傷情緒,並鼓勵實際參與臨終照護,為個案後事做準備,陪伴個案走過人生最後的旅程,以抒發哀傷情緒。希望藉此護理經驗,提供未來臨床照護瀕死癌末青年之參考,以提升臨終照護品質。

英文摘要

This paper is about a nursing experience with applying hospice palliative care. By assisting a young patient of testicular cancer and his family in facing with the shock of death. The period of care is from April 27 to May 16, 2019. By using Gordon's 11 health function assessments, healing talks and observation techniques. We confirmed that the main nursing problems are "pain", "death anxiety", and the "grief" which the family have faced. During the care process, we discussed with the doctor to adjust pain medication, and using essential oil massage and comfortable posture to relieve the pain and discomfort of the patient; For the patient, we guided him to express his inner feelings about the death; cooperated with the hospice nurse, using life review and four themes of life guides to say goodbye to each other for decreasing his anxiety about death; For the family members, we guided them with a gentle attitude to express their feeling about facing the death of the patient, to accept the family's grief with empathy. We also encouraged them actual participation in end-of-life care, preparing for the funeral of the patient, accompanying the patient through the last journey of life and vented their grief. It is hoped that this nursing experience can provide a reference for future clinical care of terminal young adult cancer patient who is facing death to improve the quality of end-of-life care.

主题分类 醫藥衛生 > 預防保健與衛生學
醫藥衛生 > 社會醫學
参考文献
  1. 方圓媛, Yuan Y.,洪佳黛, Chia T.,詹瑞君, Jui C.,李芸湘, Yun H.(2017)。談癌症病人家屬照顧者心理衝擊與介入方案。榮總護理,34(3),220-226。
    連結:
  2. 王馥亭, Fu T.,鄭逸如, Yih R.,楊于婷, Yu T.,張琦郁, Chi Y.,林耀盛, Yaw S.,吳治勳, Zhi X.,黃靜怡, Jing Y.,呂燕茹, Yen J.(2017)。「我很愛你,我好害怕你會離開我」:由照護癌末病人配偶的經驗反思哀傷之意涵。安寧療護雜誌,22(3),333-343。
    連結:
  3. 李欣娜, Shin N.,林靖芸, Jing Y.(2017)。照護一位肺癌併發骨轉移病人之照護經驗。腫瘤護理雜誌,17(2),93-105。
    連結:
  4. 李芷宜, Jhih Y.,莊昭華, Chao H.(2018)。癌症病人主要照顧者照顧負荷之論述。彰化護理,25(3),12-19。
    連結:
  5. 林文茹, Wen J.,周佩君, Pei C.,林育如, Yu L.(2017)。一位末期骨肉瘤青少年接受安寧照護之照護經驗。新臺北護理期刊,19(2),137-144。
    連結:
  6. 趙可式, Co S.(2015)。安寧療護是普世價值且為護理的本質。護理雜誌,62(2),5-12。
    連結:
  7. 蔡明昌, Ming C.(2014)。大學生死亡焦慮的內涵建構與現況調查之研究。中華輔導與諮商學報,41,25-56。
    連結:
  8. Bleyer, A.(2015).The death burden and end-oflife care intensity among adolescent and young adult patients with cancer.JAMA Oncology,1(5),579-580.
  9. Donovan, K. A.,Knight, D.,Quinn, G. P.(2015).Palliative care in adolescents and young adults with cancer.Cancer Control,22(4),475-479.
  10. Kisvetrova', H.,Klugar, M.,Kabelka, L.(2013).Spiritual support interventions in nursing care for patients suffering death anxiety in the final phase of life.International Journal of Palliative Nursing,19(12),599-605.
  11. 台灣安寧緩和醫學學會=Taiwan Academy of Hospice Palliative Medicine(2017).末期疾病疼痛評估與處置.新北市=New Taipei City, MO:合記=HO-CHI.
  12. 台灣安寧緩和醫學學會=Taiwan Academy of Hospice Palliative Medicine(2017).安寧緩和醫學概論.新北市=New Taipei City, MO:合記=HO-CHI.
  13. 行政院衛生福利部 (2019 年,8 月 28 日 )‧107年度死因統計 ‧ 取自 https://dep.mohw.gov.tw/DOS/lp-4472-113.html。
  14. 吳志成,黃安年,孫維仁,胡新實,陳冠廷,余廣亮(2017).末期疾病疼痛評估與處置.新北市:合記圖書.
  15. 吳尚倫, Shang L.,謝政智, Cheng C.(2017)。癌症相關疼痛之藥物治療新觀念。臺灣臨床藥學雜誌,25(2),100-108。
  16. 呂羿慧, Yi H.(2011)。青少年面對死亡事件之失落反應與因應。諮商與輔導,301(301),10-13。
  17. 李心瑋, Hsin W.,張祐菱, Yu L.,鄭如芬, Ju F.(2018)。照護罹患末期骨巨大細胞瘤青年瀕臨死亡之護理經驗。台大護理雜誌,14(1),104-114。
  18. 柳秋芳, Chiou F.,徐書儀, Shu Y.,簡淑慧, Sui W.(2014)。從實證觀點談緩解癌症病人家屬負荷之介入處置。腫瘤護理雜誌,14,59-70。
  19. 陳運星, S. C.(2017).生死學.高雄市=Kaohsiung City, MO:麗文=Liwen.
  20. 馮容芬,李惠玲,方又圓,吳麗彬,周繡玲,劉莉妮,袁素娟,胡月娟,李嘉蕙,謝珮琳,陳瑋,楊玉娥,陳宇平,李和惠,曾月霞,陳淑芬,尹裕君,劉芹芳,謝家如(2016).成人內外科護理.台北市:華杏.
  21. 楊均典, Chun T.,顏效禹, Shiaw Y.,陳瑞娥, Jui O.(2010)。靈性安適之概念分析。護理雜誌,57(3),99-103。
  22. 蔡麗雲,賴允亮,顧乃平,李佩怡,李英芬,劉姵妤,劉景萍,邱世哲,陳虹汶,方俊凱,李閏華,李佩怡,陳明麗,曾煥棠(2018).安寧緩和護理學.台中市:華格那.
  23. 賴惠敏, Hui M.(2014)。如何渡過悲傷?談悲傷調適與輔導方法。諮商與輔導,337,27-32。