「礙」到老？中高齡終身障礙者老化經驗初探

Disability to Aged? An Exploratory Study on Aging Experiences of Middle-aged People with a Lifelong Disability

10.6785/SPSW.201006.0118

陳伶珠(Ling-Chu Chen)

終身障礙者 ； 現象學 ； 老化經驗 ； 道德調和老化經驗 ； people with a lifelong disability ； phenomenology ； aging experiences ； moral harmonized aging experiences

社會政策與社會工作學刊

14卷1期（2010 / 06 / 01）

118 - 162

繁體中文

終身障礙者老化已成爲新興社會現象，國外對此議題有較多面向的探討，國內相關研究仍相當欠缺。本研究旨在探究中高齡終身障礙者的老化經驗，增進政策規劃者與服務供給者對他們有更深刻的認識。研究方法與對家：運用現家學方法，深度訪談中高齡終身障礙者29位，女性15位，男性14位，年齡43-59歲，障礙持續時間15-56年。研究參與者依障礙經驗分爲三個群組：「不只是個孩子」、「一路走來始終如一」、及「生命大逆轉」。研究結果：不同群組中高齡終身障礙者有其獨特障礙經驗，以及共通相似的老化經驗脈絡，研究者歸納爲「道德的調和老化經驗」，包括三個老化經驗結構主軸：1.老化具有多重面向－「老」是生活發生斷裂之處；2.老年生活籌劃受老化經驗與能力資源影響；3.老年生活是調和環境與期待的道德存在美學－在照顧自己也照顧他人之間取得平衡。研究者認爲：中高齡終身障礙者的健康與療癒照顧需要更多投入、規劃友善終身障礙者老化的社會政策與社會服務措施、終身障礙者的老化與療癒、照顧需要更多學術與實務的關注。

People aged with a lifelong disability is a relatively new social phenomena. Many dimensions of this agenda have been discussed in western countries, but not the case of Taiwan. This study employs phenomenology to investigate the aging experiences of middle-aged people with a lifelong disability. A total of 29 participants aged 43 to 59 are divided into 3 groups: ”more than a child”, ”consistent along the way”, and ”the great life reversed”. Results show participants have their unique and common aging experiences. Their aging experiences is named ”moral harmonized aging experiences”, including 3 structural axles: (1) aging has multi-dimensions: aging in the discontinuity of life, (2) aging living plans are influenced by one's aging experiences, abilities and resources, (3) aging living plans are moral aesthetic of existence and harmonized with environment and expectations: taking balance between self care and care others. Researcher suggests more efforts on inquiring health and healing and care issues for middle-age people with a lifelong disability, developing aging disability friendly social policies and social services, and more researches and practical services for this agenda.

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