题名

兒童少年家庭照顧者之照顧經驗初探

并列篇名

A Preliminary Study of the Caring Experience of Young Carers

DOI

10.6785/SPSW.201112.0081

作者

吳書昀(Jessie Shu-Yun Wu)

关键词

兒童少年家庭照顧者 ; 照顧經驗 ; 兒童及少年 ; 架構分析法 ; young carers ; caring experience ; children and young people ; framework analysis

期刊名称

社會政策與社會工作學刊

卷期/出版年月

15卷2期(2011 / 12 / 01)

页次

79 - 140

内容语文

繁體中文

中文摘要

兒童少年做為家庭照顧者雖不是一個新的社會現象,但這些孩子的照顧經驗與不利處境卻長期被忽略,在台灣,相關的實證資料亦相當稀少。本文從初步探索的立場出發,以質化研究的方式深入了解兒童少年家庭照顧者的真實生活樣貌,期待專業服務者及政策制定者能敏察並認知到這群隱性案主,使得負擔家庭照顧責任的孩子能得到應有的支持。本研究的結果發現,當兒童少年被賦予照顧某位家人的責任時,他們需同時承擔許多角色任務,有些任務與照顧直接相關,如:提供家庭成員身心上的照料;有些任務則是因家庭中的照顧需求而衍生出來的,如:擔負家庭勞務、維持家庭的日常運作、因應家庭經濟上的困難。這些任務並非全都是兒童少年的發展階段能夠掌握或適合參與的,因此本研究的結果也顯示,在照顧過程中,孩子的課業及學校參與被犧牲,孩子的身心健康受到傷害或處於危機,核子也欠缺發展或維繫友伴關係的機會。針對兒童少年家庭照顧者所面臨的種種不利處境與限制,本研究提出相關之思索與建議,分別為「賦予兒童少年家庭照顧者特定的福利身份類別」、「發展適切的評估與處遇,讓孩子安心求助」、以及「學校應扮演積極角色」,期待給予這些孩子適時的協助。

英文摘要

The undertaking of family care responsibilities by children and young people is not a recent social phenomenon. However, the roles performed by these individuals as well as the negative impacts of these roles on them have not been well recognized. The situation of young carers in Taiwan is also poorly understood. In this preliminary study, the qualitative method and in-depth interviews are adopted to examine the everyday experiences and practices of children and young people involved in family care provision in Taiwan. By providing a deeper investigation of the lives of young caring, this research enhances the understanding of the nature of young caring. The empirical findings reveal that young carers carry out a variety of tasks in and around the home, ranging from intimate and personal care responsibilities to domestic chores and financial support. Many of these tasks distinguish the young carers from other children and young people who do not take on caring roles within the family. The research particularly identifies the ways in which the caring roles affect the lives and development of the young carers. The burden of caring can severely impede the educational performance of the children and young people. It also has an adverse effect on the young carers' physical and mental wellbeing. In addition, the young carers experience difficulties in establishing friendships. To respond to the impacts of care activities on children and young people, this research concludes by proposing recommendations for further enhancing current services in order to support young carers.

主题分类 社會科學 > 社會學
参考文献
  1. 吳書昀(2010)。「甜蜜的負荷」外一章:兒童少年家庭照顧者的生活境遇與福利建構。臺大社會工作學刊,21,153-190。
    連結:
  2. 陳伶珠(2010)。「礙」到老?中高齡終身障礙者老化經驗初探。社會政策與社會工作學刊,14(1),119-162。
    連結:
  3. 黃彥宜(2005)。照顧的難題:以一個婦女志工成長團體為例。台大社工學刊,12,51-88。
    連結:
  4. 社團法人中華民國照顧者關懷總會(2007)。《2007第二屆家庭照顧者日:家庭照顧者調查》。中華民國家庭照顧者關懷總會網頁(http://www.familycare.org.tw/db/pdfs/upload/journal/2007research_24424512.pdf)。
  5. Aldridge, J.(2008).All Work and No Play? Understanding the Needs of Children with Caring Responsibilities.Children & Society,22(4),253-264.
  6. Aldridge, J.,Becker, S.(1993).Children Who Care: Inside the World of Young Carers.Loughborough:Loughborough University.
  7. Aldridge, J.,Becker, S.(1999).Children as Carers: the Impact of Parental Illness and Disability on Children's Caring Roles.Journal of Family Therapy,21(3),303-320.
  8. Aldridge, J.,Becker, S.(2003).Children Caring for Parents with Mental Illness: Perspectives of Young Carers, Parents and Professionals.Bristol:The Policy Press.
  9. Australian Bureau of Statistics(2004).Disability, Aging and Carers 2003: Summary of Findings.Canberra:Australian Bureau of Statistics.
  10. Becker, S.(2007).Global Perspectives on Children's Unpaid Caregiving in the Family: Research and Policy on "Young Carers" in the UK, Australia, the USA and Sub-Saharan Africa.Global Social Policy,7(1),23-50.
  11. Becker, S.(ed.)(1995).Young Carers in Europe: An Exploratory Cross-National Study in Britain, France, Sweden and Germany.Loughborough:Loughborough University.
  12. Becker, S.,Aldridge, J.,Dearden, C.(1998).Young Carers and Their Families.Oxford:Blcakwell.
  13. Bibby, A.,Becker, S.(2000).Younger Carers in Their Own Words.London:Calouste Gulbenkian Foundation.
  14. Bryman, A.(ed.),Burgess, R. G.(ed.)(1994).Analysing Qualitative Data.London:Routledge.
  15. Carers Australia(2002).Young Carers Research Project: Final Report.Canberra:Commonwealth Department of Family and Community Services.
  16. Cline, T.,Crafter, S.,de Abreu, G.,O''Dell, L.(2009).Changing Families, Changing Childhood: Changing Schools?.Pastoral Care in Education,27(1),29-39.
  17. Crabtree, H.,Warner, L.(1999).Too Much to Take On: A Report on Young Carers and Bullying.London:The Princess Royal Trust for Carers.
  18. Dearden, C.,Becker, S.(1995).Young Carers: The Facts.Sutton:Reed Business.
  19. Dearden, C.,Becker, S.(2000).Growing up Caring: Vulnerability and Transition to Adulthood-Young Carers Experiences.Leicester:Youth Work Press.
  20. Dearden, C.,Becker, S.(2004).Young Carers in th UK: the 2004 Report.London:Carers UK and the Children's Society.
  21. Dearden, C.,Becker, S.(1998).Young Carers in the UK.London:Carers National Association.
  22. Department of Health(1996).Carers(Recognition and Services) Act 1995: Policy Guidance and Practice Guide.London:Department of Health.
  23. Department of Health(1999).Caring about Carers: A National Strategy for Carers.London:Department of Health.
  24. Earley, L.,Cushway, D.,Cassidy, T.(2007).Chileren's Perceptions and Experiences of Care Giving: A Focus Group Study.Counselling Psychology Quarterly,20(1),69-80.
  25. Ekwall, A.,Sivberg, B.,Hallberg, I. R.(2004).Dimensions of Informal Care and Quality of Life among Elderly Family Caregivers.Nordic College of Caring Sciences,18(3),239-248.
  26. Eley, S.(2004).If They Don't Recognize It, You've Got to Deal With It Youself: Gender, Young Caring and Educational Support.Gender and Education,16(1),65-75.
  27. Fives, A.,Kennan, D.,Canavan, J.,Brady, B.,Cairns, D.(2010).Study of Young Carers in the Irish Population: Executive Summary.Dublin:Office of the Minister for Children and Youth Affairs.
  28. Frank, J.(1995).Couldn't Care More: A Study of Young Carers and Their Needs.London:The Children's Society.
  29. Frank, J.,Tatum, C.,Tucker, S.(1999).On Small Shoulders.London:The Children's Society.
  30. Grant, G.,Repper, J.,Nolan, M.(2008).Young People Supporting Parents with Mental Health Problem: Experiences of Assessment and Support.Health and Social Care in the Community,16(3),271-281.
  31. Gray, B.,Robinson, C.(2009).Hidden Children: Perspectives of Professionals on Young Carers of People with Mental Health Problems.Child Care in Practice,15(2),95-108.
  32. Gray, B.,Robinson, C.,Seddon, D.(2008).Invisible Children: Young Carers of Parents with Mental health Problems-The Perspectives of Professionals.Child and Adolescent Mental Health,13(1),169-172.
  33. Harvey, M.,Russell, G.(2001).Perspectives on Young Carers.London:UK Youth.
  34. Hill, S.(1999).The Physical Effect of Caring on Children.Journal of Young Carers Work,3(1),6-7.
  35. Ireland, M. J.,Pakenham, K. I.(2010).The Nature of Youth Care Tasks in Families Experiencing Chronic Illness/Disability; Development of the Youth Activities of Caregiving Scale (YACS).Psychology and Health,25(6),713-731.
  36. Jegermalm, M.(2006).Informal Care in Sweden: A Typology of Care and Caregivers.International Journal of Social Welfare,15(4),332-343.
  37. Joseph, S.,Becker, F.,Becker, S.(2009).Manual for Measure of Caring Activities and Outcomes for Children and Young People.London:The Princess Royal Trust for Carers.
  38. Joseph, S.,Becker, S.,Becker, F.,Regel, S.(2009).Assessment of Caring and Its Effects in Young People: Development of the Multidimensional Assessment of Caring Activities Checklist (MACA-YC18) and the Positive and Negative Outcomes of Caring Questionnaire (PANOC-YC20) for Young Carers.Child: Care, Health and Development,35(4),510-520.
  39. Keigher, S.,Zabler, B.,Robinson, N.,Fernandez, A.,Stevens, P. E.(2005).Young Caregivers of Mothers with HIV: Need for Supports.Chileren and Youth Services Review,27(8),881-904.
  40. Lee, Y. J.,Ku, Y. W.(2007).East Asian Welfare Regimes: Testing and Hypothesis of the Developmental Welfare State.Social Policy & Administration,41(2),197-212.
  41. Lincoln, Y. S.,Guba, E. G.(1985).Naturalistic Inquiry.London:SAGE.
  42. Mason, J.(2002).Qualitative Researching.London:SAGE.
  43. McCallion, P.,Janicki, M.,Grant-Griffin, L.(1997).Exploring the Impact of Culture and Acculturation on Older Families Caregiving Persons with Development Disabilities.Family Relations,46(4),347-357.
  44. McDonald, J.,Cumming, J.,Dew, K.(2009).An Exploratory Study of Young Carers and Their Families in New Zealand.Kōtuitui: New Zealand Journal of Social Sciences Online,4(1),115-129.
  45. Metzing-Blau, S.,Schnepp, W.(2008).Young Carers in Germany: To Live on as Normal as Possible-A Grounded Theory Study.BMC Nursing,7,15.
  46. Moore, T.(2005).Reading Between the Lines: Listening to Children and Young People about Their Experiences of Young Caring in the ACT.Lyneham:the Youth Coalition of the ACT.
  47. Moore, T.(2005).Stop to Listen: Findings from the ACT Young Carers Research Project.Lyneham:the Youth Coalition of the ACT.
  48. Moore, T.,McArthur, M.(2007).We're All in It Together: Supporting Young Carers and Their Families in Australia.Health and Social Care in the Community,15(6),561-568.
  49. Nolan, M.,Keady, J.,Grant, G.(1995).Developing a Typology of Family Care: Implications for Nurses and Other Service Providers.Journal of Advanced Nursing,21(2),256-265.
  50. O''Dell, L.,Crafter, S.,de Abreu, G.,Cline, T.(2010).Constructing "Normal Childhoods": Young People Talk about Young Carers.Disability and Society,25(6),643-655.
  51. Olsen, R.(2000).Families under the Microscope: Parallels between the Young Careers Debate of the 1990s and the Transformation of Childhood in the Late Nineteenth Century.Children & Society,14(5),384-394.
  52. Olsen, R.(1996).Young Carers: Challenging the Facts and Politics of Research into Children and Caring.Disability & Society,11(1),41-54.
  53. Patton, M. Q.(1990).Qualitative Evaluation and Research Methods.Newbury Park, CA:SAGE.
  54. Richardson, K.,Jinks, A.,Roberts, B.(2009).Qualitative Evaluation of a Young Carers' Initiatinve.Journal of Child Health Care,13(2),150-160.
  55. Ritchie, J.(ed.),Lewis, J.(ed.)(2003).Qualitative Research Practice: A Guide for Social Science Students and Researchers.London:SAGE.
  56. Robson, E.,Ansell, N.,Huber, U. S.,Gould, W. T. S.,van Blerk, L.(2006).Young Caregivers in the Context of the HIV/AIDS Pandemic in Sub-Saharan Africa.Population, Space and Place,12(1),93-111.
  57. Rose, H. D.,Cohen, K.(2010).The Experiences of Young Carers: A Meta-Synthesis of Qualitative Findings.Journal of Youth Studies,13(4),473-487.
  58. Sahoo, R.,Suar, D.(2009).Do Young Carers Deserve Justice? Young Caring in the Context of Illness.Psychology and Developing Societies,21(1),133-150.
  59. Schlarmann, J. G.,Metzing-Blau, S.,Schnepp, W.(2008).The Use of Health-Related Quality of Life (HRQOF) in Children and Adolescents as an Outcome Criterion to Evaluate Family Oriented Support for Young Carers in Germany: An Integrative Review of the Literature.BMC Public Health,8,414.
  60. Silverman, D.(2000).Doing Qualitative Research: A Practical Handbook.London:SAGE.
  61. Skovdal, M.(2010).Children Caring for Their "Caregivers": Exploring the Caring Arrangements in Households Affected by AIDS in Western Kenya.AIDS Care,22(1),96-103.
  62. Skovdal, M.,Ogutu, V. O.,Aoro, C.,Campbell, C.(2009).Young Carers as Social Actors: Coping Strategies of Children Caring for Ailing or Ageing Guardians in Western Kenya.Social Science & Medicine,69(4),587-595.
  63. Smyth, C.,Blaxland, M.,Cass, B.(2011)."So That's How I Found I Was a Young Carer and That I Actually Had Been a Carer Most of My Life". Identifying and Supporting Hidden Young Carers.Journal of Youth Studies,14(2),145-106.
  64. Smyth, C.,Michail, S.(2010).Exploring Young Carers Agency.Qualitative Research Journal,10(2),36-45.
  65. The Princess Royal Trust and The Children''s Society(2010).Supporting Young Carers: A Resource for Schools.London:The Princess Royal Trust and The Children's Society.
  66. Thomas, N.,Stainton, T.,Jackson, S.,Cheung, W. Y.,Doubtfire, S.,Webb, A.(2003).Your Friends Don't Understand": Invisibility and Unmet Need in the Lives of "Young Carers.Chile and Family Social Work,8(1),35-46.
  67. Warren, J.(2007).Young Carers: Conventional or Exaggerated Levels of Involvemlent in Domestic and Caring Tasks?.Children & Society,21(1),136-146.
  68. 吳宇娟(2004)。碩士論文(碩士論文)。政治大學社會研究所。
  69. 吳書昀(2010)。被忽略的照顧者:認識兒童少年家庭照顧者。社區發展季刊,130,85-97。
  70. 呂寶靜(2005)。支持家庭照顧者的長期照護政策之構思。國家政策季刊,4(4),25-40。
  71. 呂寶靜(2007)。老人照顧:老人、家庭、正式服務。台北:五南。
  72. 屈蓮、白璐、鄧光銳、王修平(1996)。大台北地區主要照顧者之工作負荷量及對居家照顧服務之需求程度的調查。中華公共衛生雜誌,15(4),289-302。
  73. 林秀純、徐亞瑛、姚開屏、吳淑瓊(1999)。台灣北部地區失能老人家庭照顧品質及相關因素之探討。護理研究,7(1),15-28。
  74. 胡幼慧、王孝仙、郭淑珍(1995)。家人照護失能老人的困境:一項質化與量化整合的研究。公共衛生,22(2),99-113。
  75. 趙善如(2002)。博士論文(博士論文)。東海大學社會工作學系。
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  8. 袁修文,古允文(2023)。當孩子成為照顧者:照顧精神疾病父母的困境和期望的社會支持。社會發展研究學刊,32,189-215。
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  10. 鄭清霞,歐紫彤,洪惠芬(2023)。輪班照顧到遷移照顧:男性照顧者返鄉照顧歷程的社會脈絡初探。人文社會科學研究,17(3),23-60。
  11. 鄭詩穎、余漢儀(2014)。順從有時,抵抗有時:東南亞新移民女性家庭照顧經驗中的拉鋸與選擇。臺大社會工作學刊,29,149-198。
  12. (2017)。營造社區寄養服務能量-以兒童身、心、靈為照顧核心的整體家庭寄養服務。社區發展季刊,158,92-103。
  13. (2024)。兒少照顧精神疾病父母對自我角色認同及身心健康衝擊之探討。人文社會科學研究,18(3),27-53。
  14. (2024)。臺灣未成年家庭照顧者照顧工作及照顧評價工具之發展與驗證。臺大社會工作學刊,49,141-183。
  15. (2024)。照顧資源與照顧民主化—社會工作面臨的政治議題。社區發展季刊,186,82-94。