题名

失智症患者預立醫囑相關議題探討

并列篇名

Explore the Issue of Determining the Advanced Directives in Patient with Dementia

DOI

10.6317/LTC.19.295

作者

楊雅萍(Ya-Ping Yang);王靜枝(Jing-Jy Wang);黃美智(Mei-Chih Huang)

关键词

失智症 ; 預立醫囑 ; 醫療自主 ; 末期照護 ; dementia ; advanced directives ; medical autonomy ; terminal care

期刊名称

長期照護雜誌

卷期/出版年月

19卷3期(2015 / 12 / 01)

页次

295 - 303

内容语文

繁體中文

中文摘要

失智症為21 世紀的重症之一,其複雜多變的臨床症狀需要持續的照護,亦表示須長期支出醫療費用,對家庭與社會經濟造成沉重負擔。失智症病程發展過程中,患者會逐漸喪失決策能力,為考量患者之自主及最大利益,鼓勵其在尚具自主決策能力時,即預立醫囑以表達個人對自身未來的醫療照護期望與意願,能使家屬及醫護人員尊重患者自主權並顧及醫療決策倫理,及早準備相關因應措施,讓患者獲得最適切的醫療照護。然何時是失智患者預立醫囑的最佳時機及相關的限制,值得深入探討。本文奠基於臺灣現存之臨床情境,統整相關文獻並提出論述,期能提供醫療人員在面對失智症患者的醫療自主抉擇時之參考。

英文摘要

Dementia has become one of the severe diseases of the 21st century. With its complex clinical symptoms, patients with dementia need continuous care which accompanied by long-term medical expenses and economic burden of family and society. Patients with dementia gradually lose their capacity to make medical decision in the course of disease. In considering patients’ autonomy and best interest, patients with dementia are encouraged to make the advanced directives before losing the ability for self-determination, so that their own personal expectations and wishes toward future medical care plan can be noted. As a result, family members and health care providers are able to respect for the autonomy while taking into account the ethical medical decision which facilitate early preparation and plan for the appropriate medical care. However, when is the right time for patients with dementia to determine the advanced directives and what limitations associated with it needed to be explored. Based on Taiwanese current medical situation, we reviewed literature related to ethical dilemmas of care for patients with dementia and provided discussion and comments. Such information can be references for healthcare providers when facing medical decisions for patients with dementia.

主题分类 醫藥衛生 > 預防保健與衛生學
醫藥衛生 > 社會醫學
参考文献
  1. 周希諴(2012)。失智症末期的安寧緩和醫療照護。應用心理研究,55,115-153。
    連結:
  2. 司法院(2008)。增訂民法總則編第十五條之一及第十五條之二條文;並修正第十四條、第十五條及第二十二條條文。司法院公報,50(7),31-32。
  3. Alzheimer’s Association. (2015). End of life decisions. Retrieved from https://www.alz.org/national/documents/brochure_endoflifedecisions.pdf
  4. Beauchamp, T. L.,Childress, J. F.(2013).Principles of biomedical ethics.New York:Oxford University Press.
  5. Brown, B. A.(2003).The history of advance directives.Journal of Gerontological Nursing,29(9),4-14.
  6. Hatfield, C. F.,Dudas, R. B.,Dening, T.(2009).Diagnostic tools for dementia.Maturitas,63(3),181-185.
  7. Lamberg, J. L.,Person, C. J.,Kiely, D. K.,Mitchell, S. L.(2005).Decisions to hospitalize nursing home residents dying with advanced dementia.Journal of the American Geriatrics Society,53,1396-1401.
  8. Lin, K.,Liao, Y.,Wang, P.,Liu, H.(2005).Family members favor disclosing the diagnosis of Alzheimer's disease.International Psychogeriatrics,17(4),679-688.
  9. Mitchell, S. L.,Kiely, D. K.,Hamel, M. B.(2004).Dying with advanced dementia in the nursing home.Archives of Internal Medicine,164(3),321-326.
  10. Nuffield Council on Bioethics(2009).Dementia: Eethical issues.London:Nuffield Council on Bioethics.
  11. Schiff, R.,Rajkumar, C.,Bulpitt, C.(2000).Views of elderly people on living wills: Interview study.British Medical Journal,320,1640-1641.
  12. World Health Organization. (2015). Priority medicines for Europe and the world Update Report. Retrieved from http://www.who.int/medicines/areas/priority_medicines/en/
  13. 台灣失智症協會(2015)。失智人口知多少。取自 http://www.tada2002.org.tw/tada_know_02.html
  14. 林慧美,楊嘉玲,陳美妙,邱泰源,胡文郁(2011)。住院病人簽署預立醫療指示的意願及接受宣導的意向。安寧療護雜誌,16(3),281-295。
  15. 洪淩鈺,蔡甫昌(2005)。失能病患的醫療決定。當代醫學,32(10),798-806。
  16. 張佳琪,林佳靜(2009)。失智患者拒食行爲之倫理相關議題。新臺北護理期刊,11(2),63-70。
  17. 張惠雯,顏啟華,林鵬展,劉立凡(2011)。病人對預立醫囑的看法-以彰化某醫院家庭醫學科門診病人為例。安寧療護雜誌,16(3),296-311。
  18. 楊淵韓,李明濱,劉景寬(2009)。極早期阿茲海默氏失智症之篩檢。臺灣醫界,52(9),8-10。
  19. 楊嘉玲,陳慶餘,胡文郁(2008)。醫療預立指示。安寧療護雜誌,13(1),30-41。
  20. 蔡甫昌,潘恆嘉,吳澤玫,邱泰源,黃天祥(2006)。預立醫療計畫之倫理與法律議題。臺灣醫學,10(4),517-536。
  21. 謝伶瑜,林淑英,江姿瑢(2010)。護理人員推行預立醫囑之知識、態度、經驗與自信。護理暨健康照護研究,6(4),280-288。
  22. 謝沛錡,林麗嬋(2004)。重度失智症患者「不予以或撤除支持性治療」的倫理考量。長期照護雜誌,7(4),327-337。
被引用次数
  1. 黃淑鶴,陳怡如,張丞淯(2021)。推展「預立醫療照護諮商(ACP)」參與促進失智症個案接受安寧療護的機會。安寧療護雜誌,25(2),124-142。
  2. 劉建良,廖文,黃秀梨,曾元孚,張宏哲,呂偉如(2021)。家庭為中心預立醫療照護諮商對失智者及家庭照顧者末期照護決策衝突之影響。護理雜誌,68(1),30-42。
  3. 楊秋燕,陳秀靜(2019)。輕中度失智症長者懷舊節慶故事團體服務評估。台灣健康照顧研究學刊,19,29-50。