题名

影響家庭照顧者預立醫療指示之因素

并列篇名

Influences of Caregivers to Sign Advance Directive

DOI

10.6317/LTC.201812_22(3).0004

作者

陳儀倩(Yi-Chien Chen);張瑋婷(Wei-Ting Chang);朱芳瑩(Chu- Fang Ying);游志興(Yu-Chih Hsine)

关键词

家庭照顧者 ; 預立醫療指示 ; 長期照護 ; caregivers ; advance directive ; long-term care

期刊名称

長期照護雜誌

卷期/出版年月

22卷3期(2018 / 12 / 01)

页次

259 - 274

内容语文

繁體中文

中文摘要

預立醫療指示(AD)已是公共衛生政策及國際關注的議題,在病人與家庭照顧者之間卻也是難以開啟的話題,鑑於家庭照顧者對預立醫療指示的不熟悉而凌駕病人自主權,甚至推翻病人的醫療決定,故,本文旨在了解臺灣家庭照顧者預立醫療指示之現況,並從居家照顧的角度,探討影響其預立醫療指示之意向因素。採橫斷式研究,簡單隨機抽樣,自擬結構式問卷,以家庭照顧者基本屬性、照顧型態及未來預立醫療指示意向量表進行資料收集。研究對象為花蓮縣南區接受居家照護之家庭照顧者,共取得211份有效問卷。運用SPSS 21.0進行統計分析,採用描述性統計、t檢定、單因子變異數分析及複迴歸分析。影響未來預立醫療指示意向重要因子,依其預測力為「性別」、「教育程度」、「年齡」與「經濟狀況」4個變項,共可解釋20.9%變異量。居家護理師同時兼具照護與教育責任,應主動以家庭為中心倡導預立醫療指示,讓更多家庭照顧者有機會參與討論。

英文摘要

Advance directive (AD) are global policies and concerns. However, due to the culture and custom in Taiwan, sometimes the caregivers may overthrow the autonomy and medical decision making of the patients because of the unfamiliar to AD. AD will be the difficult issues between caregivers and patients. To understand the current status of advance directive issues between caregivers in Taiwan, and to explore the factors that affect the decision making of AD. Cross-sectional and correlational designs were used. The questionnaire comprised the three subscales of basic attributes, care type and behavior intention of advance directive. There were 211 participants whom were recruited from four townships of Hualien County by simple random sampling. Data were analyzed by using descriptive statistics, t-test, one-way ANOVA, and multiple regression analysis by SPSS 21.0, Four variables showed significant predictor value in terms of positive impact on signing intentions of AD. These included "Gender", "Education", "Age", and "Economic". These items explained 20.9% of total variance. Home care nurses are responsible for nursing care to the patients and education to the caregivers. The mission of nurses is to guide patients and caregivers to understand the value and enhance the behavior intention of AD.

主题分类 醫藥衛生 > 預防保健與衛生學
醫藥衛生 > 社會醫學
参考文献
  1. 邱啟潤,許淑敏,吳瓊滿(2002)。主要照顧者負荷、壓力與因應之國內研究文獻回顧。醫護科技學刊,4(4),273-290。
    連結:
  2. Creative Research Systems. (2016). Sample size calculator. Retrieved from http://www.Surveysystem.com/sscalc.htm
  3. Cui, J.,Song, L. J.,Zhou, L. J.,Meng, H.,Zhao, J. J.(2014).Needs of family caregivers of advanced cancer patients: a survey in Shanghai of China.European Journal of Cancer Care,23(4),562-569.
  4. Garlo, K.,O'Leary, J. R,Van Ness, P. H.,Fried, T. R.(2010).Burden in caregivers of older adults with advanced illness.Journal of the American Geriatrics Society,58(12),2315-2322.
  5. Huang, C. H.,Hu, W. Y.,Chiu, T. Y.,Chen, C. Y.(2008).The practicalities of terminally ill patients signing their own DNR orders- a study in Taiwan.Journal of Medical Ethics,34(5),336-340.
  6. Kim, S.,Hahm, K. H.,Park, H. W.,Kang, H. H.,Sohn, M.(2010).A Korean perspective on developing a global policy for advance directives.Bioethics,24(3),113-117.
  7. Krejcie, R. V.,Morgan, D. W.(1970).Determining sample size for research activities.Educational and Psychological Measurement,30,607-610.
  8. Meier, D. E.,Fuss, B. R.,O'Rourke, D,Baskin, S. A.,Lewis, M.,Morrison, R. S.(1996).Marked improvement in recognition and completion of health care proxies.Archives of Internal Medicine,156(11),1227-1232.
  9. Ramsey, C. P.(2013).Young adult African American family members' perceptions,knowledge, attitudes, and utilization toward advance directives.The ABNF Journal,51-59.
  10. Sellars, M.,Clayton, J. M.,Morton, R. L.,Luckett, T.,Silvester, W.,Spencer, L.,Tong, A.(2017).An interview study of patient and caregiver perspectives on advance care planning in ESRD.The American Journal of Kidney Diseases,70(5),1-9.
  11. Shaw, D.(2012).A direct advance on advance directives.Bioethics,26(5),267-274.
  12. Silveira, M. J.,Wiitala, W.,Piette, J.(2014).Advance directive completion by elderly Americans: a decade of change.Journal of the American Geriatrics Society,62(4),706-710.
  13. Waite, K. R.,Federman, A. D.,McCarthy, D. M.,Sudore, R.,Curtis, L. M.,Baker, D. W.,Paasche-Orlow, М. К.(2013).Literacy and race as risk factors for low rates of advance directives in older adults.Journal of the American Geriatrics Society,61,403-406.
  14. Yusuf, A. J.,Adamu, A.,Nuhu, F. T.(2011).Caregiver burden among poor caregivers of patients with cancer in an urban African setting.Psycho-oncology,20(8),902-905.
  15. 中華民國家庭照顧者關懷總會(2007)。第二屆家庭照顧者日家庭照顧者調查。取自 http://www.familycare.org.tw/index.php/201 2-07-18-08-45-41
  16. 中華民國家庭照顧者關懷總會(2016)。何謂家庭照顧者 http://www.familycare.org.tw/index.php/2012-07-18-08-45-41
  17. 內政部統計處(2018)。人口年齡。取自 https://www.moi.gov.tw/files/site_stuff/321/2 /year/year.html
  18. 王淑貞,范聖育,章淑娟,張智容,王英偉(2013)。推動預立醫療自主計畫之宣導-初探。安寧療護雜誌,18(2),129-141。
  19. 立法院全球資訊網(2015)。亞洲第一部「病人自主權利法」 三讀滿20 歲 「可預立醫療決定」5 類重病者有自主善終權。取自 http://www.ly.gov.tw/03_leg/0301_main/disp atch/dispatchView.action?id%362033&lgno=0 0078&stage=8
  20. 全國法規資料庫(2015)。安寧緩和醫療條例施行細則。取自http://law.moj.gov.tw/LawCla ss/LawOldVer.aspx?Pcode-L0020067&LNN DATE=20010425&LSER=001
  21. 李英芬,方俊凱,莊榮彬,陳榮基(2010)。保障病人尊嚴,拒絕無效醫療-談安寧緩和醫療條例宣導暨意願註記健保 IC 卡的執行。醫療品質雜誌,4(5),17-21。
  22. 林佳瑩,宋惠娟,范聖育,王淑貞,胡慧芳(2014)。預立醫療自主計畫對提升長期照護機構老人安寧療護、預立醫療指示知識及態度的成效初探。長庚護理,25(4),389-403。
  23. 林益卿,盧建中,林盈利,徐慧娟,楊佩玉(2011)。臺日安寧療護發展之比較。安寧療護雜誌,16(2),133-150。
  24. 林慧美,楊嘉玲,陳美妙,邱泰源,胡文郁(2011)。住院病人簽署預立醫療指示的意願及接受宣導的意向。安寧療護雜誌,16(3),281-295。
  25. 林綉君,李佳苓,張家銘(2016)。探討中部某醫學中心加護病房老年病人及家屬對預立醫療指示的認知情形。臺灣老年醫學暨老年學雜誌,11(1),50-65。
  26. 陳亭儒,胡文郁,邱泰源,葉淑玲(2014)。家屬對於慢性阻塞性肺疾病人於生命末期不予維生處置的意向。安寧療護雜誌,19(2),138-154。
  27. 曾淑倩,余美嬅,謝伶瑜,陳鼎達(2009)。南部某區域醫院醫療從業人員簽署預立醫囑之意願探討。安寧療護雜誌,14(2),141-155。
  28. 蔡甫昌,郭蕙心(2017)。病人自主權利法之倫理觀點與實務挑戰。臺灣醫學,21,62-72。
  29. 衛生福利部安寧緩和醫療及器官捐贈意願資訊系統(2018)。簽署人數統計。取自 https://hpcod.mohw.gov.tw/HospWeb/LawPa ges/calc_report.aspx?year3D2014
  30. 衛生福利部國民健康署(2017)。2015 年癌症登記報告https://www.mohw.gov.tw/ dl-42718-2f4679b5-e4f4-4clf-999a-0a3cf0c86fab.html
  31. 衛生福利部統計處(2018)。身心障礙者福利。 取自https://dep.mohw.gov.tw/DOS/ lp-2976-113.html
  32. 謝至鑑,王淑貞,王英偉(2013)。符合社區民眾預立醫療自主計劃文化觀點之介入模式臺灣花蓮地區之經驗。安寧療護雜誌,18(1),1-13。
被引用次数
  1. 陳逸卉,林碧珠,呂欣怡(2023)。長照服務老人家庭照顧者之安寧緩和療護知識與態度及其影響因素。新臺北護理期刊,25(1),46-57。
  2. 廖盈謹,高綺吟(2022)。以關係自主談重症末期病人決策自主權-案例討論。護理雜誌,69(5),111-119。
  3. 楊啟正,楊君宜,許家禎,李沂蓁,吳曉聞(2021)。探討台北市簽署預立醫療決定意願人之區域特性。安寧療護雜誌,25(3),205-222。