题名

照護一位肌肉強直症併發吸入性肺炎病人之護理經驗

并列篇名

A Nursing Experience of a Myotonic Dystrophy with Aspiration Pneumonia Patient

DOI

10.6540/NTJN.2018.1.010

作者

王心君(Hsin-Chun Wang);沈蔓婷(Man-Ting Shen);林怡慧(Yi Hui Lin);劉曉君(Hsiao-Chun Liu);雍海鵬(Hai-Peng Yung)

关键词

肌肉強直症 ; 焦慮 ; 吸入性肺炎 ; myotonic dystrophy ; anxiety ; aspiration pneumonia

期刊名称

新臺北護理期刊

卷期/出版年月

20卷1期(2018 / 03 / 01)

页次

113 - 122

内容语文

繁體中文

中文摘要

本文係探討照顧一位罹患第一型肌肉強直症併發吸入性肺炎病人之護理經驗。筆者照護期間2012年11月21日至12月11日,運用Gordon十一項功能性健康型態為評估工具,藉由觀察、會談、身體評估及參與照護進行整體性評估,確立病人健康問題有呼吸道清除功能失效、身體活動功能障礙、焦慮、照顧者角色緊張、高危險性感染及營養改變少於身體所需等。照護期間筆者針對病人健康問題提供適切的護理措施,透過持續性及主動關懷的態度與病人建立信任性護病關係,鼓勵病人及家屬表達內心焦慮,運用護理專業知識,提升病人及家屬對疾病照護認知,預防合併症發生,透過專業醫療團隊共同照護及社會資源的運用,擬定個別性之肢體運動訓練計畫,維持病人最佳健康狀態及增加自我照護能力和家屬參與照護,使其能以正向態度面對疾病侵襲並有連續性整體的醫療照顧,以達到全人之護理。

英文摘要

This article is a nursing experience of a myotonic dystrophy with aspiration pneumonia patient. Data were collected through interview, observation, and physical assessment. Gordon's 11 Function Health Patterns Assessment criteria were used to evaluate the patients from November 21 to December 11, 2012. The health problems included ineffective airway clearance, impaired physical mobility, anxiety and caregiver role strain, infection, and malnutrition. Measures were established through sustained and proactive caring attitude and patient trust of nursing-patient relationship in order to encourage patients and their families to express their inner the use of nursing knowledge, to enhance the patients and their families on disease care awareness, to prevent complication under the common care through professional medical team and the use of social resources, to develop individual training programs of the limb movement, and to maintain optimal health and increase patient self-care ability and families to participate in care, so that the patient can positively face the disease under the overall continuity of medical care in order to achieve holistic care.

主题分类 醫藥衛生 > 預防保健與衛生學
醫藥衛生 > 社會醫學
参考文献
  1. Angelini, C.,Tasca, E.(2012).Fatigue in muscular dystrophies.Neuromuscular Disorders,22(3),S214-S220.
  2. Bird, T. D. (2015). Myotonic dystrophy type 1. Retrieved from: http://www.ncbi.nlm.nih.gov/books/NBK1165/
  3. Cup, E. H.,Kinebanian, A.,Satink, T.,Pieterse, A. J.,Hendricks, H. T.,Oostendorp, R. A.,van Engelen, B. G.(2011).Living with myotonic dystrophy; what can be learned from couples? A qualitative study.BioMed Central neurology,11(1),86.
  4. Foff, E. P.,Mahadevan, M. S.(2011).Therapeutics development in myotonic dystrophy type 1.Muscle & nerve,44(2),160-169.
  5. Gagnon, C.,Chouinard, M. C.,Laberge, L.,Veillette, S.,Bégin, P.,Breton, R.,Panel, T. D. E.(2010).Health supervision and anticipatory guidance in adult myotonic dystrophy type 1.Neuromuscular Disorders,20(12),847-851.
  6. Kierkegaard, M.,Harms-Ringdahl, K.,Edstrom, L.,Winden Holmqvist, L.,Tollback, A.(2011).Feasibility and effects of a physical exercise programme in adults with myotonic dystrophy type 1: a randomized controlled pilot study.Journal of rehabilitation medicine,43(8),695-702.
  7. Niel-Weise, B. S.,Gastmeier, P.,Kola, A.,Vonberg, R. P.,Wille, J. C.,van den Broek, P. J.,Bed Head Elevation Study, Group(2011).An evidence-based recommendation on bed head elevation for mechanically ventilated patients.Critical Care,15(2),1-9.
  8. Peric, S.,Stojanovic, V. R.,Basta, I.,Peric, M.,Milicev, M.,Pavlovic, S.,Lavrnic, D.(2013).Influence of multisystemic affection on health-related quality of life in patients with myotonic dystrophy type 1.Clinical neurology and neurosurgery,115(3),270-275.
  9. Sandhaus, S.,Zalon, M. L.,Valenti, D.,Harrell, F.(2009).Promoting evidence-based dysphagia assessment and management by nurses.Journal of gerontological nursing,35(6),20-27.
  10. 楊曉黎,王殿華,陳金亮(2010)。强直性肌營養不良64例臨床分析。中風與神經疾病雜誌,27(6),564-565。
  11. 衛生福利部國民健康署(2016,5月)‧Myotonic dystrophy‧取自http://www.hpa.gov.tw/BHPNet/Web/HealthTopic/Topic.aspx?id=200712250007
  12. 賴怡君,王桂芸,陳金彌(2011)。吞嚥困難之概念分析。源遠護理,5(2),56-62。
  13. 蘇美滿(校訂)(2012).復健護理學.台北市:永大.
  14. 吕海東,李增富,瞿千千,陳芳,秦東香,錢琪,盧燕婉(2010)。强直性肌營养不良症19例骨骼肌病理分析。中風與神經疾病雜誌,27(10),914-917。