题名

兩代「三老」家庭照顧轉銜與老年遷移:老年父母、中老年智障者與手足

并列篇名

Care Transition and Moving in Old Age Among Older Two-Generation Families: Older Parents, Ageing Offspring with Intellectual Disability and Their Siblings

DOI

10.6171/ntuswr2018.37.03

作者

周月清(Yueh-Ching Chou);李婉萍(Wan-Ping Li);王文娟(Wen-Chuan Wang)

关键词

手足 ; 老年遷移 ; 智障 ; 照顧轉銜 ; 雙老家庭 ; sibling ; moving in old age ; intellectual disability ; care transition ; older two-generation family

期刊名称

臺大社會工作學刊

卷期/出版年月

37期(2018 / 06 / 01)

页次

99 - 149

内容语文

繁體中文

中文摘要

本研究目的在瞭解老年父母及其中老年智障者雙老家庭的照顧需求,並以Clapham(2005, 2010)提出的"housing pathways"模式探討其照顧與居住、社會與個人因素的關係。深度訪談新竹市30個雙老家庭:30位與父母同住且年齡40歲以上中老年智障者及其老年父母(60歲以上)。以主題分析方法進行資料分析。發現「雙老」家庭也可能是兩代「三老」家庭,老年衰弱父母及中老年智障者,由中老年手足照顧;多數中老年智障者及其老年父母未使用社會服務。智障者照顧轉銜和父母老年遷移綁在一起,前者途徑形式為「有規劃」和「未規劃」;後者為「不想搬」與「有搬遷」計畫;兩者途徑形式受家庭經濟與家庭互動關係,及父母個人自主性、對傳統照顧文化與房舍認同所影響;已經或可能接手照顧雙老的中老年手足的經濟狀況與照顧文化認同,必須納入考量。父母與手足個人傳統照顧文化認同、經濟及家庭互動關係,大過於失能程度與正式支持系統的影響。兩代「雙老」或「三老」家庭就地老化健康與社會照顧需求,亟待納入長照服務。

英文摘要

This study aims to explore care and moving in old age among older parents and their ageing sons/daughters with intellectual disability (ID), named as "older two-generation family". Also, "housing pathways" (Clapham, 2005, 2010) is employed to study the patterns and factors in relation to these families' housing and care transition. Thirty families, including older parents (≥60 year-old) and their ageing sons/daughters (≥40 year-old) with ID were invited and completed the in-depth interview which was conducted at their homes in Hsinchu City. A thematic approach was used in the analysis of the qualitative interviews. The findings showed that an older two-generation family might include not only older parents and ageing offspring with ID, but also the ageing siblings of the ageing adults with ID. These ageing siblings were likely to be the carers of older and frail parents and ageing adults with ID. Families including older parents and ageing adults with ID rarely used services which are provided for people with disability and older people from formal systems. The parents' care transition plan for ageing adults with ID and their own moving plan in old age were intersected, connecting parents' and siblings' individual, family and social contexts. Two types of pathways to both areas, namely care transition of ageing offspring with ID and older parents' moving, were identified: "planned" vs. "not planned" and "not considering moving" vs. "considering moving". The types of pathways of moving in old age and care transition among these families are related to individual parents' autonomy and parents home identity and both parents' and siblings' cultural identity as well as with the relationship and financial conditions of both the original and siblings' families. This study suggests that both the health and social care needs of these older two-generation families including older parents, ageing adults with ID and their ageing siblings should be considered a high priority by the long-term care scheme which is currently one of the main social policies in Taiwan.

主题分类 社會科學 > 社會學
参考文献
  1. 王文娟(2011)。智能障礙者雙老家庭壓力負荷之初探。身心障礙研究,9(2),96-110。
    連結:
  2. 王國羽(2007)。居家中老年智障者的照顧問題:性別、居住安排與相關論述。身心障礙研究季刊,5(1),1-29。
    連結:
  3. 王國羽(2003)。居住在機構之成年智障者健康與疾病型態分析:性別與年齡之考量。台大社會工作學刊,8,91-128。
    連結:
  4. 陳正芬(2009)。從居住安排與社會支持體系檢視失能老人之ADL 與IADL的未滿足需求。中華心理衛生學刊,22(1),67-100。
    連結:
  5. 陳淑美、張金鶚(2004)。三代同堂家庭遷徙決策之研究。人文及社會科學集刊,16(2),325-348。
    連結:
  6. 曾瀝儀、張金鶚、陳淑美(2006)。老人居住安排選擇─代間關係之探討。住宅學報,15(2),45-64。
    連結:
  7. 黃幹忠、夏晧清(2013)。台南市老人的居住安排與居住環境之地區性比較─兼論社區老人住宅之接受度。建築與規劃學報,14(2/3),67-81。
    連結:
  8. 熊曉芳、吳淑瓊(2007)。社區失能老人居住安排與日常生活協助未滿足需求之關係。台灣公共衛生雜誌,26(6),507-517。
    連結:
  9. 謝美娥(2002)。親子兩代對失能老人遷居的歷程與解釋:從社區到機構。社會政策與社會工作學刊,6(2),7-63。
    連結:
  10. 嚴嘉楓(2010)。以性別與社會階層觀點論身心障礙者的婚姻現況與困境。身心障礙研究季刊,8(2),111-121。
    連結:
  11. Aylward, E. H.,Burt, D. B.,Thorpe, L. U.,Lai, F.,Dalton, A.(1997).Diagnosis of dementia in individuals with intellectual disability.Journal of Intellectual Disability Research,41(2),152-164.
  12. Bigby, C.,Ozanne, E.(2004).Comparison of specialist and mainstream programs for older carers of adults with intellectual disability: Considerations for service development.Australian Social Work,57(3),273-287.
  13. Bradley, D. E.(2011).Litwak and Longino's developmental model of later-life migration: Evidence from the American Community Survey, 2005-2007.Journal of Applied Gerontology,30(2),141-158.
  14. Braun, V.,Clarke, V.(2006).Using thematic analysis in psychology.Qualitative Research in Psychology,3(2),77-101.
  15. Burke, E.,McCarron, M.,Carroll, R.,McGlinchey, E.,McCallion, P.(2014).What it's like to grow older: The aging perceptions of people with an intellectual disability in Ireland.Intellectual and Developmental Disabilities,52(3),205-219.
  16. Buys, L.,Aird, R.,Miller, E.(2011).Service providers' perceptions of active ageing among older adults with lifelong intellectual disabilities.Journal of Intellectual Disability Research,56(12),1133-1147.
  17. Carroll, J.,Qualls, H.(2014).Moving into senior housing: Adapting the old, embracing the new.Generations: Journal of the American Society on Aging,38(1),42-47.
  18. Chou, Y.-C.,Lee, Y.-C.,Lin, L.-C.,Chang, A.-L.,Huang, W.-Y.(2008).Social services utilization by adults with intellectual disabilities and their families.Social Science & Medicine,66(12),2474-2485.
  19. Chou, Y.-C.,Lee, Y.-C.,Lin, L.-C.,Kröger, T.,Chang, A.-N.(2009).Older and younger family caregivers of adults with intellectual disability: Factors associated with future plans.Intellectual and Developmental Disabilities (Mental Retardation),47(4),282-294.
  20. Chou, Y.-C.,Lin, L.-C.,Chang, A.-L.,Schalock, R. L.(2007).The quality of life of family caregivers of adults with intellectual disabilities in Taiwan.Journal of Applied Research in Intellectual Disabilities (JARID),20,200-210.
  21. Chou, Y.-C.,Pu, C.-Y.,Fu, L.-Y.,Kröger, T.(2010).Depressive symptoms in older female carers of adults with intellectual disabilities: Depressive symptoms in older female carers.Journal of Intellectual Disability Research (JIDR),54(12),1031-1044.
  22. Chou, Y.-C.,Pu, C.-Y.,Kröger, T.,Lee, W.-P.,Chang, S.-C.(2011).Outcomes of a new residential scheme for adults with intellectual disabilities in Taiwan: A two-year follow-up.Journal of Intellectual Disability Research,55(9),823-831.
  23. Chou, Y.-C.,Tzou, P. Y.,Pu, C.-Y.,Kröger, T.,Lee, W.-P.(2008).Respite care as community care service: Factors associated with the effects on family carers of adults with intellectual disabilities in Taiwan.Journal of Intellectual & Developmental Disability,33(1),12-21.
  24. Clapham, D.(2005).The meaning of housing: A pathways approach.Bristol, England:Policy Press.
  25. Clapham, D.(2003).Pathways approaches to homelessness research.Journal of Community & Applied Social Psychology,13(2),119-127.
  26. Clapham, D.(2010).Happiness, well-being and housing policy.Policy & Politics,38(2),253-267.
  27. Clapham, D.(2002).Housing pathways: A post modern analytical framework.Housing, Theory and Society,19(9),57-68.
  28. Clapham, D.(Ed.),Clark, W.(Ed.),Gibb, K.(Ed.)(2012).The handbook of housing studies.London:Sage.
  29. Dew, A.,Llewellyn, G.,Balandin, S.(2004).Post-parental care: A new generation of sibling-carers.Journal of Intellectual & Developmental Disability,29(2),176-179.
  30. Emerson, E.,Hatton, C.(2004).,未出版
  31. Faulkner, D.(2007).The older population and changing housing careers: Implications for housing provision.Australasian Journal on Ageing,26(4),152-156.
  32. Fereday, J.,Muir-Cocharane, E.(2006).Demonstrating rigor using thematic analysis: A hybrid approach of inductive and deductive coding and theme development.International Journal of Qualitative Methods,5(1),80-92.
  33. Freedman, R. I.,Krauss, M. W.,Seltzer, M. M.(1997).Aging parents' residential plans for adult children with mental retardation.Mental Retardation,35(2),114-123.
  34. Gilbert, A.,Lankshear, G.,Petersen, A.(2008).Older family-carers' views on the future accommodation needs of relatives who have an intellectual disability.International Journal of Social Welfare,17(1),54-64.
  35. Golant, S. M.(2003).Conceptualizing time and behavior in environmental gerontology: A pair of old issues deserving new thought.The Gerontologist,43(5),638-648.
  36. Griffiths, D. L.,Unger, D. G.(1994).Views about planning for the future among parents and siblings of adults with mental retardation.Family Relations,43(2),221-227.
  37. Haveman, M.,Perry, J.,Salvador-Carulla, L.,Walsh, P. N.,Kerr, M.,Van Schrojenstein Lantman-de Valk, H,Weber, G.(2011).Ageing and health status in adults with intellectual disabilities: Results of the European POMONA II study.Journal of Intellectual Disability,36(2),49-60.
  38. Heller, T.,Caldwell, J.(2006).Supporting ageing caregivers and adults with developmental disabilities in future planning.Mental Retardation,44(3),189-202.
  39. Hong, J.,Seltzer, M. M.,Krauss, M. W.(2001).Change in social support and psychological well-being: A longitudinal study of aging mothers of adults with mental retardation.Family Relations,50,154-163.
  40. Janicki, M. P.(Ed.),Ansello, E. F.(Ed.)(2004).Community supports for ageing with lifelong disabilities.Baltimore, MD:Paul H. Books.
  41. Janicki, M. P.,Davidson, P. W.,Henderson, C. M.,McCallion, P.,Taets, J.D.,Force, L. T.,Ladrigan, P. M.(2002).Health characteristics and health services utilization in older adults with intellectual disability living in community residences.Journal of Intellectual Disability Research,46(4),287-298.
  42. Jokinen, N. S.(2006).Family quality of life and older families.Journal of Policy and Practice in Intellectual Disabilities,3(4),246-252.
  43. Jokinen, N. S.,Brown, R. I.(2005).Family quality of life from the perspective of older parents.Journal of Intellectual Disability Research,49(10),789-793.
  44. Krahn, G. L.,Hammond, L.,Turner, A.(2006).A cascade of disparities: Health and health care access for people with intellectual disabilities.Mental Retardation and Developmental Disabilities Research Reviews,12(1),70-82.
  45. Krauss, M. W.,Seltzer, M. M.,Gordon, R.,Friedman, D. H.(1996).Binding ties: The roles of adult siblings of persons with mental retardation.Mental Retardation,34(2),83-93.
  46. Krauss, M. W.,Seltzer, M. M.,Jacobson, H. T.(2005).Adults with autism living at home or in non-family settings: Positive and negative aspects of residential status.Journal of Intellectual Disability Research,49(2),111-124.
  47. Kröger, T.(2011).The future of living Housing, Research Plant of the Academia of FinlandThe future of living Housing, Research Plant of the Academia of Finland,Academia of Finland.
  48. Lifshitz, H.,Merrick, J.(2003).Ageing and intellectual disability in Israel: A study to compare community residence with living at home.Health and Social Care in the Community,11(4),364-371.
  49. Lifshitz, H.,Merrick, J.(2004).Aging among persons with intellectual disability in Israel in relation to type of residence, age, and etiology.Research in Developmental Disabilities,25(2),193-205.
  50. Lin, J.-D.,Yen, C.-F.,Li, C.-W.,Wu, J.-L.(2005).Health, healthcare utilization and psychiatric disorder in people with intellectual disabilities in Taiwan.Journal of Intellectual Disability Research,49(1),86-94.
  51. Lincoln, Y. S.,Guba, E. G.(1985).Naturalistic inquiry.New York, NY:Sage.
  52. Litwak, E.,Longino, C. F.(1987).Migration patterns among the elderly: A developmental perspective.The Gerontologist,27(3),266-272.
  53. Maaskant, M. A.,Gevers, J. P. M.,Wierda, H.(2002).Mortality and life expectancy in Dutch residential centres for individuals with intellectual disability, 1991-1995.Journal of Applied Research in Intellectual Disabilities,15(3),200-212.
  54. Mackie, P. K.(2012).Housing pathways of disabled young people: Evidence for policy and practice.Housing Studies,27(6),805-821.
  55. Martínez-Leal, R.,Salvador-Carulla, L.,Linehan, C.,Walsh, P.,Weber, G.,Van Hove, G.,Kerr, M.(2011).The impact of living arrangements and deinstitutionalization in the health status of persons with intellectual disability in Europe.Journal of Intellectual Disability Research,55(9),858-872.
  56. Martin-Matthews, A.(2007).Situating 'home' at the nexus of the public and private spheres: Ageing, gender and home support work in Canada.Current Sociology,55(2),229-249.
  57. Milligan, C.(2001).Geographies of care: Space, place and voluntary sector.Aldershot, England:Ashgate.
  58. Moore, J.(2000).Placing home in context.Journal of Environmental Psychology,20(3),207-217.
  59. Oswald, F.,Wahl, H.-W.,Schilling, O.,Nygren, C.,Fänge, A.,Sixsmith, A.,Iwarsson, S.(2007).Relationships between housing and healthy ageing in very old age.The Gerontologist,47(1),96-107.
  60. Reilly, K. O.,Conliffe, C.(2002).Facilitating future planning for ageing adults with intellectual disabilities using a planning tool that incorporates quality of life domains.Journal of Gerontological Social Work,37(3/4),105-119.
  61. Rimmerman, A.,Muraver, M.(2001).Experiencing undesired daily life events, instrumental functioning, social support and well-being of Israeli elderly women: Comparison between caregivers/non-caregivers for adult children with mental retardation.Journal of Women & Aging,13(2),57-69.
  62. Rowles, G. D.(Ed.),Chaudhury, H.(Ed.)(2005).Home and identity in late life: International perspectives.New York, NY:Springer.
  63. Ryan, A.,Taggart, L.,Truesdale-Kennedy, M.,Slevin, E.(2013).Issues in caregiving for older people with intellectual disabilities and their ageing family carers: A review and commentary.International Journal of Older People Nursing,9(3),217-226.
  64. Safran-Norton, C. E.(2010).Physical home environment as a determinant of aging in place for different types of elderly households.Journal of Housing for the Elderly,24(2),208-231.
  65. Seltzer, G. B.,Begun, A.,Seltzer, M. M.,Krauss, M. W.(1991).Adults with mental retardation and their aging mothers: Impacts of siblings.Family Relations,40(3),310-317.
  66. Seltzer, M. M.,Greenberg, J. S.,Krauss, M. W.,Hong, J.(1997).Predictors and outcomes of the end of co-resident caregiving in aging families of adults with mental retardation or mental illness.Family Relations,46(1),13-22.
  67. Seltzer, M. M.,Krauss, M. W.(2001).Quality of life of adults with mental retardation/developmental disabilities who live with families.Mental Retardation and Developmental Disabilities Research Reviews,7,105-114.
  68. Shaw, K.,Cartwright, C.,Craig, J.(2011).The housing and support needs of people with an intellectual disability into older age.Journal of Intellectual Disability Research,55(9),895-903.
  69. Skobba, K.(2015).Exploring the housing pathways of low-income women: A biographical approach.Housing, Theory and Society,33(1),41-58.
  70. Strydom, A.,Hassiotis, A.,Livingston, G.(2005).Mental health and social care needs of older people with intellectual disabilities.Journal of Applied Research in Intellectual Disabilities,18(3),229-235.
  71. World Health Organization(2007).Global age-friendly cities: A guide.Geneva, Switzerland:Author.
  72. 中華民國智障者家長總會(2006)。《機構智障者老化現況及其機構面對智障者老化的因應與困境》。未出版書面資料。【Parental Association for Persons with Intellectual Disability, Taiwan. (2006). Aging persons with intellectual disabilities using institutional and day care services: Coping and difficulties. Unpublished document.】
  73. 王文娟(2012)。Taichung, Taiwan,東海大學社會工作所=Tung-Hai University。
  74. 王瀞儀(2015)。智能障礙之中高齡主要照顧者的未來安老規劃。台灣老年學論壇,27
  75. 呂錦綸(2010)。Taipei, Taiwan,東吳大學社會工作學系=Soochow University。
  76. 周月清(1996)。成年心智障礙者對家庭的影響與未來安置模式選擇因素探討。特殊教育研究學刊,14,45-66。
  77. 周月清(2017)。從聯合國身心障礙者權利公約(CRPD)檢視我國身心障礙者自立生活與社區融入。社區發展季刊,158,187-207。
  78. 周月清、財團法人台灣省私立啟智技藝訓練中心、傅立葉(2012)。財團法人中壢啟智技藝中心承辦內政部公益彩券委託案財團法人中壢啟智技藝中心承辦內政部公益彩券委託案,財團法人中壢啟智技藝中心。
  79. 周耕妃(2014)。Taichung, Taiwan,台中東海大學社會工作學系=Tung Hai University。
  80. 林金定、林藍萍(2008)。智能障礙者老化:失智症與健康照護。台灣老人保健學刊,4(1),58-74。
  81. 徐震編、李明政編(2001)。社會工作倫理。台北市=Taipei, Taiwan:五南=Wunan。
  82. 張庭瑋(2008)。Taipei, Taiwan,國立臺灣大學社會工作學所=National Taiwan University。
  83. 許志成(2012)。行政院衛生署委託研究計劃行政院衛生署委託研究計劃,Taiwan:行政院衛生署=Ministry of Health。
  84. 陳伶珠(2011)。雙重老化智能障礙者家庭照顧經驗初探。高齡服務管理學刊,1(1),138-165。
  85. 陳政智、陳玠汝(2015)。我們必須面對的議題:智能障礙者及照顧者雙重老化衍生的需求。社區發展季刊,149,311-326。
  86. 陳淑芳、李期田、鍾嘉明、林儒詣、李貴美、陳敬吾、黃建龍、陳存壽(2006)。智能障礙者高齡化之安置照顧服務探討。台灣老人保健學刊,2(1),80-95。
  87. 陳淑瑜(2003)。父母或主要照顧者參與智能障礙子女未來照護規劃之調查研究。特殊教育研究學刊,25,85-106。
  88. 楊靜利(1999)。老年人之居住安排─子女數量與同居傾向因素之探討。人口學刊,20,167-183。
  89. 維基百科(2016)。〈新竹市〉。取自https://zh.wikipedia.org/wiki/%E6%96%B0%E7%AB%B9%E5%B8%82【Wikipedia. (2016). Hsinchu City. Retrieved from https://zh.wikipedia.org/wiki/%E6%96%B0%E7%AB%B9%E5%B8%82】
  90. 潘淑滿(2003)。質性研究:理論與運用。台北市=Taipei, Taiwan:心理=Psychological。
  91. 衛生福利部(2017)。〈身心障礙者人數按縣市及年齡別分〉。取自:https://dep.mohw.gov.tw/DOS/cp-2976-13826-113.html【Ministry of Health and Welfare. (2017). The disabled population by classification and age. Retrieved from http://www.mohw.gov.tw/cht/DOS/Statistic.aspx?f_list_no=312&fod_list_no=4198】
  92. 衛生福利部統計處(2018)。〈105 年身心障礙者生活狀況及需求調查〉。取自https://dep.mohw.gov.tw/DOS/lp-2561-113.html【Ministry of Health and Welfare. (2018). Report of disabled people's living condition and demand survey. Retrieved from https://dep.mohw.gov.tw/DOS/lp-2561-113.html】
  93. 衛生福利部統計處(2018)。〈106 老人生活狀況調查〉。取自https://dep.mohw.gov.tw/DOS/lp-1767-113.html【Ministry of Health and Welfare. (2018). Report of the senior citizen condition survey. Retrieved from https://dep.mohw.gov.tw/DOS/lp-1767-113.html】
被引用次数
  1. 陳正芬,范家源(2022)。「為什麼只有我?」:智障者手足間的照顧者角色繼承的順從與對抗。臺大社會工作學刊,45,45-88。
  2. 謝佳容,張珏(2019)。心理健康與照顧之政策議題。婦研縱橫,110,6-13。
  3. (2023)。心智障礙者雙老家庭服務之探討──以高雄市為例。社區發展季刊,184,113-127。
  4. (2023)。智能障礙者家屬選擇使用社區居住服務之決策過程。身心障礙研究季刊,21(2),101-114。
  5. (2023)。智能障礙者社區居住之居住平權──父母觀點研究。社區發展季刊,184,86-97。