题名

Determinants of Preference for Home Death among Terminally Ill Patients with Cancer in Taiwan: A Cross-Sectional Survey Study

并列篇名

台灣癌症末期病人死亡地點喜好之決定因素-橫斷性研究

DOI

10.1097/jnr.0000000000000016

作者

陳貞秀(Chen-Hsiu Chen);林玉娟(Yu-Chuan Lin);劉莉妮(Li-Ni Liu);唐秀治(Siew-Tzuh Tang)

关键词

家中死亡的喜好 ; 死亡地點的喜好 ; 生命終期的照護 ; 癌症末期病人 ; preference for home death ; preferred place of death ; end-of-life care ; terminally ill patients with cancer

期刊名称

The Journal of Nursing Research

卷期/出版年月

22卷1期(2014 / 03 / 01)

页次

37 - 44

内容语文

英文

中文摘要

Background: Studies worldwide have shown that most patients with cancer prefer to die at home. Few studies have directly explored the determinants of preference for home death in patients with cancer living in Asia, and none has been conducted in Taiwan.Objectives: This study was designed to identify determinants of home-death preference among terminally ill patients with cancer in Taiwan.Methods: A convenience sample of 2,188 terminally ill patients with cancer from 24 hospitals nationwide was surveyed. This study used multivariate logistic regression analysis to identify the determinants of preference for home death in the realms of patient demographics and disease characteristics, awareness of prognosis, and family support.Results: Slightly more than half of the participants expressed the preference to die at home (n=1,114, 54.7%). The adjusted odds of preferring to die at home were greater for participants described by one or more of the following: (1) family members knew the participant's preference for place of death (p<.001), (2) participant knew his or her prognosis (p=.032), (3) participant had greater functional dependency (p<.001), (4) participant was diagnosed with either liver/pancreatic (p=.028) or head/neck (p=.012) cancer, and (5) participant had less than a junior high school education (p<.001).Conclusions/Implications for Practice: This study supports the argument that most terminally ill patients with cancer in Taiwan prefer to die at home. To achieve patient preferences for home death, healthcare professionals should provide prognostic information and initiate end-of-life care discussions among patients and their family to facilitate family understanding of their ill relative's place-of-death preference. Developing clinical interventions to alleviate physical symptoms and providing hospice homecare services for terminally ill patients with cancer, especially those with lung cancer and greater functional dependency, may facilitate a preference for and actualization of home death.

英文摘要

Background: Studies worldwide have shown that most patients with cancer prefer to die at home. Few studies have directly explored the determinants of preference for home death in patients with cancer living in Asia, and none has been conducted in Taiwan.Objectives: This study was designed to identify determinants of home-death preference among terminally ill patients with cancer in Taiwan.Methods: A convenience sample of 2,188 terminally ill patients with cancer from 24 hospitals nationwide was surveyed. This study used multivariate logistic regression analysis to identify the determinants of preference for home death in the realms of patient demographics and disease characteristics, awareness of prognosis, and family support.Results: Slightly more than half of the participants expressed the preference to die at home (n=1,114, 54.7%). The adjusted odds of preferring to die at home were greater for participants described by one or more of the following: (1) family members knew the participant's preference for place of death (p<.001), (2) participant knew his or her prognosis (p=.032), (3) participant had greater functional dependency (p<.001), (4) participant was diagnosed with either liver/pancreatic (p=.028) or head/neck (p=.012) cancer, and (5) participant had less than a junior high school education (p<.001).Conclusions/Implications for Practice: This study supports the argument that most terminally ill patients with cancer in Taiwan prefer to die at home. To achieve patient preferences for home death, healthcare professionals should provide prognostic information and initiate end-of-life care discussions among patients and their family to facilitate family understanding of their ill relative's place-of-death preference. Developing clinical interventions to alleviate physical symptoms and providing hospice homecare services for terminally ill patients with cancer, especially those with lung cancer and greater functional dependency, may facilitate a preference for and actualization of home death.

主题分类 醫藥衛生 > 預防保健與衛生學
醫藥衛生 > 社會醫學
参考文献
  1. Department of Statistics, Ministry of the Interior, Taiwan, ROC. (2005). Survey of the elderly 2005. Retrieved from http://sowf.moi.gov.tw/stat/Survey/94old.doc (Original work published in Chinese)
  2. Department of Statistics, Ministry of the Interior, Taiwan, ROC. (2008). Education level of Taiwanese older than 15 years of age. Retrieved from http://www.moi.gov.tw/files/news_file/week9716.doc (Original work published in Chinese)
  3. Aabom, B.,Kragstrup, J.,Vondeling, H.,Bakketeig, L. S.,Stovring, H.(2005).Defining cancer patients as being in the terminal phase: Who receives a formal diagnosis, and what are the effects?.Journal of Clinical Oncology,23(30),7411-7416.
  4. Alonso-Babarro, A.,Bruera, E.,Varela-Cerdeira, M.,Boya-Cristia, M. J.,Madero, R.,Torres-Vigil, I.,González-Barón, M.(2011).Can this patient be discharged home? Factors associated with at-home death among patients with cancer.Journal of Clinical Oncology,29(9),1159-1167.
  5. Bakitas, M.,Ahles, T. A.,Skalla, K.,Brokaw, F. C.,Byock, I.,Hanscom, B.,Hegel, M. T.(2008).Proxy perspectives regarding end-of-life care for persons with cancer.Cancer,112(8),1854-1861.
  6. Beccaro, M.,Costantini, M.,Giorgi Rossi, P.,Miccinesi, G.,Grimaldi, M.,Bruzzi, P.(2006).Actual and preferred place of death of cancer patients. Results from the Italian survey of the dying of cancer (ISDOC).Journal of Epidemiology & Community Health,60(5),412-416.
  7. Bell, C. L.,Somogyi-Zalud, E.,Masaki, K. H.(2010).Factors associated with congruence between preferred and actual place of death.Journal of Pain and Symptom Management,39(3),591-604.
  8. Benoliel, J. Q.,McCorkle, R.,Young, K.(1980).Development of a social dependency scale.Research in Nursing & Health,3(1),3-10.
  9. Brazil, K.,Howell, D.,Bedard, M.,Krueger, P.,Heidebrecht, C.(2005).Preferences for place of care and place of death among informal caregivers of the terminally ill.Palliative Medicine,19(6),492-499.
  10. Choi, J.,Miyashita, M.,Hirai, K.,Sato, K.,Morita, T.,Tsuneto, S.,Shima, T.(2010).Preference of place for end-of-life cancer care and death among bereaved Japanese families who experienced home hospice care and death of a loved one.Supportive Care in Cancer,18(11),1445-1453.
  11. Choi, K. S.,Chae, Y. M.,Lee, C. G.,Kim, S.-Y.,Lee, S.-W.,Heo, D. S.,Yun, Y. H.(2005).Factors influencing preferences for place of terminal care and of death among cancer patients and their families in Korea.Supportive Care in Cancer,13(8),565-572.
  12. Fukui, S.,Kawagoe, H.,Masako, S.,Noriko, N.,Hiroko, N.,Toshie, M.(2003).Determinants of the place of death among terminally ill cancer patients under home hospice care in Japan.Palliative Medicine,17(5),445-453.
  13. Gomes, B.,Calanzani, N.,Gysels, M.,Hall, S.,Higginson, I. J.(2013).Heterogeneity and changes in preferences for dying at home: A systematic review.BMC Palliative Care,12(1),7.
  14. Gomes, B.,Higginson, I. J.(2008).Where people die (1974-2030): Past trends, future projections and implications for care.Palliative Medicine,22(1),33-41.
  15. Gomes, B.,Higginson, I. J.,Calanzani, N.,Cohen, J.,Deliens, L.,Daveson, B. A.,Harding, R.(2012).Preferences for place of death if faced with advanced cancer: A population survey in England, Flanders, Germany, Italy, the Netherlands, Portugal and Spain.Annals of Oncology,23(8),2006-2015.
  16. Higginson, I. J.,Costantini, M.(2008).Dying with cancer, living well with advanced cancer.European Journal of Cancer,44(10),1414-1424.
  17. Mack, J. W.,Weeks, J. C.,Wright, A. A.,Block, S. D.,Prigerson, H. G.(2010).End-of-life discussions, goal attainment, and distress at the end of life: Predictors and outcomes of receipt of care consistent with preferences.Journal of Clinical Oncology,28(7),1203-1208.
  18. McCorkle, R.,Young, K.(1978).Development of a symptom distress scale.Cancer Nursing,1(5),373-378.
  19. Murray, M. A.,Fiset, V.,Young, S.,Kryworuchko, J.(2009).Where the dying live: A systematic review of determinants of place of end-of-life cancer care.Oncology Nursing Forum,36(1),69-77.
  20. Nakamura, S.,Kuzuya, M.,Funaki, Y.,Matsui, W.,Ishiguro, N.(2010).Factors influencing death at home in terminally ill cancer patients.Geriatrics & Gerontology International,10(2),154-160.
  21. Pezzin, L. E.,Pollak, R. A.,Schone, B. S.(2007).Efficiency in family bargaining: Living arrangements and caregiving decisions of adult children and disabled elderly parents.CESifo Economic Studies,53(1),69-96.
  22. Stajduhar, K. I.,Allan, D. E.,Cohen, S. R.,Heyland, D. K.(2008).Preferences for location of death of seriously ill hospitalized patients: Perspectives from Canadian patients and their family caregivers.Palliative Medicine,22(1),85-88.
  23. Tang, S. T.(2000).Meanings of dying at home for Chinese patients in Taiwan with terminal cancer: A literature review.Cancer Nursing,23(5),367-370.
  24. Tang, S. T.,Liu, T. W.,Lai, M. S.,Liu, L. N.,Chen, C. H.,Koong, S. L.(2006).Congruence of knowledge, experiences, and preferences for disclosure of diagnosis and prognosis between terminally-ill cancer patients and their family caregivers in Taiwan.Cancer Investigation,24(4),360-366.
  25. Tang, S. T.,Liu, T. W.,Lai, M. S.,McCorkle, R.(2005).Discrepancy in the preferences of place of death between terminally ill cancer patients and their primary family care-givers in Taiwan.Social Science & Medicine,61(7),1560-1566.
  26. Tishelman, C.,Lövgren, M.,Broberger, E.,Hamberg, K.,Sprangers, M. A. G.(2010).Are the most distressing concerns of patients with inoperable lung cancer adequately assessed? A mixed-methods analysis.Journal of Clinical Oncology,28(11),1942-1949.
  27. Yamagishi, A.,Morita, T.,Miyashita, M.,Yoshida, S.,Akizuki, N.,Shirahige, Y.,Eguchi, K.(2012).Preferred place of care and place of death of the general public and cancer patients in Japan.Supportive Care in Cancer,20(10),2575-2582.
  28. Yun, Y. H.,Lim, M. K.,Choi, K. S.,Rhee, Y. S.(2006).Predictors associated with the place of death in a country with increasing hospital deaths.Palliative Medicine,20(4),455-461.
被引用次数
  1. 黃銘源,林承霈(2019)。臨終之處與其影響因素之探究。安寧療護雜誌,23(3),254-266。
  2. 謝依靜,劉美玲,陳鼎達,陳淑貞,郭雅慧,林妙穎(2021)。建置在地型社區安寧照護網絡。安寧療護雜誌,25(2),97-109。