题名

The Perspectives of Iranian Patients with Multiple Sclerosis on Continuity of Care: A Qualitative Study

DOI

10.1097/jnr.0000000000000070

作者

Reza Masoudi;HeidarAli Abedi;Parvin Abedi;Seyed Ehsan Mohammadianinejad

关键词

multiple sclerosis ; care ; qualitative study ; continuity ; Iran

期刊名称

The Journal of Nursing Research

卷期/出版年月

23卷2期(2015 / 06 / 01)

页次

145 - 152

内容语文

英文

英文摘要

Background: Continuity in multiple sclerosis (MS) care has been cited as a critical feature of this care and necessary to improve medical outcomes. Purpose: This exploratory and descriptive research attempts to identify continuity of care from the experience and perspective of patientswithMS at two teaching hospitals and theMSSociety in Ahvaz, Iran. Methods: In this study, 23 patients with MS were selected through purposeful sampling. Data were collected through indepth and unstructured interviews and were analyzed using an inductive thematic analysis approach. Results: Four main themes emerged from the analysis: humanoriented attention, the necessity of purposeful planning, importance of responsibility, and caring with empathetic sensing. Conclusions/Implications for Practice: Because of the importance of professional caring practice to continuity of care for patients with MS, we suggest that healthcare providers should include these aspects in care planning.

主题分类 醫藥衛生 > 預防保健與衛生學
醫藥衛生 > 社會醫學
参考文献
  1. Adriaansen, M.,Van Achterberg, T.,Borm, G.(2008).The usefulness of the staff-patient interaction response scale for palliative care nursing for measuring the empathetic capacity of nursing students.Journal of Professional Nursing,24(5),315-323.
  2. Aghamohammadi-Kalkhoran, M.,Valizadeh, S.,Mohammadi, E.,Ebrahimi, H.,Karimollahi, M.(2012).Health according to the experiences of Iranian women with diabetes: A phenomenological study.Nursing and Health Sciences,14(3),285-291.
  3. Birks, M.,Mills, J.(2011).Grounded theory: A practical guide.London, England:Sage.
  4. Blank, C. W.,Finlayson, M.(2007).Exploring the impact of multiple sclerosis on couples: A pilot study.Canadian Journal of Occupational Therapy,74(2),134-142.
  5. Bolton, L. B.,Aydin, C. E.,Donaldson, N.,Brown, D. S.,Nelson, M. S.,Harms, D.(2003).Nurse staffing and patient perceptions of nursing care.The Journal of Nursing Administration,33(11),607-614.
  6. Bradley, W. G.(Ed.),Daroff, R. B.(Ed.),Fenichel, G. M.(Ed.),Jankovic, J.(Ed.)(2008).Neurology in clinical practice.Philadelphia, PA:Butterworth-Heinemann.
  7. Brämberg, E. B.,Dahlborg-Lyckhage, E.,Määttä, S.(2012).Lack of individualized perspective: A qualitative study of diabetes care for immigrants in Sweden.Nursing and Health Sciences,14(2),244-249.
  8. Burhans, L. M.,Alligood, M. R.(2010).Quality nursing care in the words of nurses.Journal of Advanced Nursing,66(8),1689-1697.
  9. Charmaz, K.(2009).Shifting the grounds: Constructivist grounded theory.Developing grounded theory: The second generation,Walnut Creek, CA:
  10. Clancy, A.,Svensson, T.(2007)."Faced" with responsibility: Levinasian ethics and the challenges of responsibility in Norwegian public health nursing.Nursing Philosophy,8(3),158-166.
  11. Corbin, J.M.,Strauss, A.(2008).Basics of qualitative research: Techniques and procedures for developing grounded theory.London, England:Sage.
  12. Cumbie, S. A.,Conley, V. M.,Burman, M. E.(2004).Advanced practice nursing model for comprehensive care with chronic illness: Model for promoting process engagement.Advances in Nursing Science,27(1),70-80.
  13. Elhami, S.-R.,Mohammad, K.,Sahraian, M. A.,Eftekhar, H.(2011).A 20-year incidence trend (1989-2008) and point prevalence (March 20, 2009) of multiple sclerosis in Tehran, Iran: A population-based study.Neuroepidemiology,36(3),141-147.
  14. Gallagher, R. M.,Rowell, P. A.(2003).Claiming the future of nursing through nursing-sensitive quality indicators.Nursing Administration Quarterly,27(4),273-284.
  15. Ghafari, S.,Ahmadi, F.,Nabavi, M.,Kazemnejad, A.,Memarian, R.,Rafatbakhsh, M.(2008).Effectiveness of applying progressive muscle relaxation technique on quality of life of patients with multiple sclerosis.Journal of Clinical Nursing,18(15),2171-2179.
  16. Ghandehari, K.,Riasi, H. R.,Nourian, A.,Boroumand, A. R.(2010).Prevalence of multiple sclerosis in north east of Iran.Multiple Sclerosis Journal,16(12),1525-1526.
  17. Haggerty, J. L.,Reid, R. J.,Freeman, G. K.,Starfield, B. H.,Adair, C. E.,McKendry, R.(2003).Continuity of care: A multidisciplinary review.British Medical Journal,327(7425),1219-1221.
  18. Hyde, V.,Skirton, H.,Richardson, J.(2011).Palliative day care: A qualitative study of service users' experiences in the United Kingdom.Nursing and Health Sciences,13(2),178-183.
  19. Karaoz, S.(2005).Turkish nursing students' perception of caring.Nurse Education Today,25(1),31-40.
  20. Kazemi, M.,Nasrabadi, A. N.,Hasanpour, M.,Hassankhani, H.,Mills, J.(2011).Experience of Iranian persons receiving hemodialysis: A descriptive, exploratory study.Nursing and Health Sciences,13(1),88-93.
  21. Khosravan, S.,Salehi, S.,Ahmadi, F.,Sharif, F.,Zamani, A.(2010).Experiences of widows with children: A qualitative study about spousal death in Iran.Nursing and Health Sciences,12(2),205-211.
  22. Lee, L. L.,Hsu, N.,Chang, S.-C.(2007).An evaluation of the quality of nursing care in orthopaedic units.Journal of Orthopaedic Nursing,11(3-4),160-168.
  23. Lincoln, Y.,Guba, E.(1985).Naturalistic inquiry.Beverly Hills, CA:Sage.
  24. Mahmoodishan, G.,Alhani, F.,Ahmadi, F.,Kazemnejad, A.(2009).Moral themes in the lifestyle of professional nurses: A qualitative study of the inductive method of content analysis.Journal of Medical Ethics and History of Medicine,2(4),65-78.
  25. Mills, J.,Bonner, A.,Francis, K.(2006).Adopting a constructivist approach to grounded theory: Implications for research design.International Journal of Nursing Practice,12(1),8-13.
  26. Molazem, Z.,Ahmadi, F.,Mohammadi, E.,Bolandparvaz, S.(2011).Improvement in the nursing care quality in general surgery wards: Iranian nurses' perceptions.Scandinavian Journal of Caring Sciences,25(2),350-356.
  27. Moriya, R.,Kutsumi, M.(2010).Fatigue in Japanese people with multiple sclerosis.Nursing and Health Sciences,12(4),421-428.
  28. Roussel, L.,Swansburg, R. C.(2006).Management and leadership for nurse administrators.Sudbury, MA:Jones and Bartlett.
  29. Saadatnia, M.,Etemadifar, M.,Maghzi, A. H.(2007).Multiple sclerosis in Isfahan, Iran.International Review of Neurobiology,79,357-375.
  30. Saultz, J. W.,Albedaiwi, W.(2004).Interpersonal continuity of care and patient satisfaction: A critical review.The Annals of Family Medicine,2(5),445-451.
  31. Schluter, J.,Seaton, P.,Chaboyer, W.(2011).Understanding nursing scope of practice: A qualitative study.International Journal of Nursing Studies,48(10),1211-1222.
  32. Strauss, A.,Corbin, J.(1998).Basics of qualitative research: Techniques and procedures for developing grounded theory.London, England:Sage.
  33. van Servellen, G.,Fongwa, M.,Mockus D'Errico, E.(2006).Continuity of care and quality care outcomes for people experiencing chronic conditions: A literature review.Nursing and Health Sciences,8(3),185-195.
  34. Wakimizu, R.,Fujioka, H.,Yoneyama, A.(2010).Empowerment process for families rearing children with developmental disorders in Japan.Nursing and Health Sciences,12(3),322-328.
  35. Watson, J.(2011).Human caring science: A theory of nursing.Boulder, CO:University Press of Colorado.
  36. Watson, J.(2008).The philosophy and science of caring.Boulder, CO:University Press of Colorado.
  37. Watson, J.(2008).The philosophy and science of caring.Boulder, CO:University Press of Colorado.