Care Needs of Patients at the End of Life With a Noncancer Diagnosis Who Live at Home

10.1097/jnr.0000000000000277

Jiwon LEE；Younghye PARK；Kyounjoo LIM；Ari LEE；Hanul LEE；Jong-Eun LEE

end-of-life care ； care needs ； chronic illness ； home care nursing

The Journal of Nursing Research

27卷2期（2019 / 04 / 01）

1 - 11-002

英文

Background: As the population ages, the prevalence of various chronic diseases increases. Palliative care for patients at the end of life with a noncancer diagnosis is currently limited because of the difficulties of demarcating the boundaries of the end-of-life care period and of determining the various care needs of patients at the end of life. Purpose: This study aimed to investigate the levels of importance and difficulty of the multidimensional care needs for patients with a noncancer diagnosis during various end-of-life stages. Methods: This study is a retrospective survey. Home health-care nurse specialists (HHNS) reviewed medical and nursing records and responded to a structured questionnaire. The caring experiences of HHNS with 115 patients, who were 40 years or older, had received home care nursing throughout the stable (between the onset of the end-of-life stage and 1 week before death) and near-death (1 week before death) stages at Seoul St. Mary's Hospital in Korea, and had died between September 1, 2014, and December 31, 2015, were analyzed. Results: The care needs of ＂coordination among family or relatives＂ and ＂support for fundamental needs＂ were more important in the stable stage than in the near-death stage. The care need of ＂loss, grief care＂ was more important in the near-death stage than in the stable stage. The care need of ＂physical symptoms management＂ was the most difficult to meet in both stages. Lower Palliative Performance Scale score was associated with a higher level of care need, particularly in the ＂management of physical symptoms＂ and ＂psychological support＂ realms in the stable stage and in the ＂coordination among family or relatives＂ realm in both stages. Conclusions: End-of-life stage and initial score on the Palliative Performance Scale were found to have a significant influence on the multidimensional care needs of patients with a noncancer diagnosis. Thus, healthcare professionals should assess patient care needs according to disease trajectory to provide continuous and holistic care.

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