提升癲癇病童家屬執行生酮飲食作業正確性

Improving the Accuracy for Caregivers to Implement Ketogenic Diet Administration

李珮珊(Pei-Shan Li)；林育竹(Yu-Chu Lin)；楊惠婷(Hui-Ting Yang)；黃婉苓(Wan-Ling Huang)；李銘櫻(Ming-Ying Lee)；林素雯(Su-Wen Lin)

兒童 ； 生酮飲食 ； 頑固性癲癇 ； children ； ketogenic diet ； refractory epilepsy

志為護理-慈濟護理雜誌

22卷1期（2023 / 02 / 01）

108 - 119

繁體中文;英文

本專案旨提升癲癇病童家屬執行生酮飲食作業之正確，對頑固性癲癇病童而言，藥物控制有限，生酮飲食成為另一項選擇，經現況發現教材不足以提供家屬參考，護師對生酮飲食認知有限，家屬返家後對照護有疑問來電諮詢，故引發動機。對策制定生酮飲食教材、增加圖示操作步驟、拍攝教學影片、製作每日衛教暨評值表，出院前測試家屬認知、技能，舉行跨領域會議，並納入專科在職教育；結果顯示家屬執行生酮飲食作業正確性從60.0%提升97.7%，護理師對生酮飲食認知正確率84.2%提升92.5%，專案目的達成，提升病童家屬對生酮飲食認知與技能，增加執行生酮飲食正確性，期盼生酮飲食對病童治療之有效，改善症狀頻率，增進家庭生活品質。

The aim of this study is trying to improve the accuracy of family members in implementing ketogenic diet administration for those children with epilepsy. Refractory epilepsy had been diagnosed in pediatric patients and ketogenic diet seems to be an alternative option. Currently there is insufficient teaching material on ketogenic diet for children available in Taiwan which causes family dependents to sometimes contact nursing staff for information after they are back home. Motivation for this study had been triggered due to nurses having limited knowledge about ketogenic diet. In addressing this issue, our strategies included: teaching materials making of ketogenic diet; increasing pictures and video instructing; daily evaluation tables for health education; cognition rechecking and proper skill confirmation; and inter-professional education and practice would be arranged for family members or caregivers before patients discharge. Our intervention was effective according to the result which showed the accuracy rate of ketogenic diet performance had elevated from 60% to 97.7%, while the rate of comprehension of ketogenic diet among nursing staff increased from 84.2% to 92.5%. It is expected that as a result of enhancing the understanding, skillfulness and correctness of ketogenic diet implementation, better therapeutic outcomes will be promoted with decreasing frequency of symptoms and ameliorating quality of life.

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