题名

運用復原力於一位末期腎臟疾病病童之照護經驗

并列篇名

Nursing Experience Using Resilience Capacity to a Child with End-stage Renal Disease

DOI

10.53106/172674042023122201002

作者

陳燁(Yeh Chen);陳珍緯(Chen Wei Chen)

关键词

兒童透析 ; 復原力 ; 舒適障礙 ; Pediatric dialysis ; Resilience ; Comfort impaired

期刊名称

臺灣腎臟護理學會雜誌

卷期/出版年月

22卷1期(2023 / 12 / 01)

页次

15 - 27

内容语文

繁體中文;英文

中文摘要

本文描述一位十六歲末期腎臟疾病病童,於2010年開始血液透析治療,因病程複雜導致頻繁出入院,進而嚴重影響生活品質。臨床上透析病童少見,醫護人員缺乏照護經驗,故對其症狀評估及執行護理措施均有困難。護理期間於2020年6月20日至9月20日,透過聊天、遊戲等方法與案童建立良好治療性人際關係,藉由照護、觀察、身體評估等方式收集資料,評估案童四大層面健康問題,問題包含復原力障礙、舒適障礙及營養不均衡,運用復原力概念降低危險因子及提升保護因子,增加正向健康行為以適應疾病,啟動跨團隊照護改善其營養不均衡,運用舒適護理緩解不適症狀。建議護理人員運用關懷及復原力,賦能案童對自我照顧技巧,引導病童探索自我價值,以增強對疾病的適應與提升照護品質。

英文摘要

This article describes a 16-year-old child with end-stage renal disease who started hemodialysis in 2010. The severe and complicated disease led to frequent admissions and discharges, which seriously affected the quality of life. End-stage renal diseases requiring chronic dialysis are rare in childhood and adolescence. However, medical staff with lack of relevant care experience, have difficulty to assess symptoms and implement nursing measures. The duration of nursing care, from June 20 to September 20, 2020, through chatting, games and other methods to establish a good therapeutic relationship with the child and their family members. The author was through direct care, observation, revisited to identify the patient’s resilience in the dimensions of physiology, mental status, society, and spirituality. It is confirmed that there are three health problems: (1) resilience disorder, (2) comfort disorder, and (3) nutritional imbalance. Therefore, in the process of building trust in the nursing relationship and use the concept of resilience to provide individual caring schemes of patient and their families, reduce risk factors and improve protective factors, increase positive healthy behaviors to improve quality of life and adapt to diseases. The author also initiates cross-team care to improve the patient nutritional imbalances, relieve itching and pain symptoms with comfort care. It is recommended that use care and resilience to provide individual caring schemes based on the perspective and strengthen the recognition, self-caring techniques, and family supportive systems of patients, increasing patient perceptions of self-worth, restoring their confidence, promoting their adaption to their disease, and improving life of quality.

主题分类 醫藥衛生 > 內科
醫藥衛生 > 社會醫學
参考文献
  1. 汪碧雲,吳宏蘭,張世沛,劉紋妙(2020)。末期腎臟病前期患者之復原力及其相關因素探討。臺灣腎臟護理學會雜誌,19(1),1-19。
    連結:
  2. 陳思蓉,徐獻洲,黃美智(2019)。以個案研究法分析某醫學中心兒童病房癌症末期照護困境。瘤護理雜誌,19,27-38。
    連結:
  3. 謝玉如,陳俞琪,陳淑娟,呂至剛(2020)。初期血液透析病人自我管理及其影響因素之初探。榮總護理,37(4),415-426。
    連結:
  4. American Academy of Pediatric Dentistry(2018).Pain management in infants, children, adolescents and individuals with special health care needs.Pediatric Dentistry,40(6),321-329.
  5. Bedells, E.,Bevan, A.(2016).Roles of nurses and parents caring for hospitalised children.Nursing Children and Young People,28(2),24-28.
  6. Brewer, E. D.(2021).ESRD policies and the delivery of pediatric longterm dialysis care in the United States.American Journal of Kidney Diseases,77(2),264-267.
  7. Connor, K. M.,Davidson, J. R.(2003).Development of a new resilience scale: the Connor-Davidson Resilience Scale (CD-RISC).Depression and anxiety,18(2),76-82.
  8. Grewal, M. K.,Mehta, A.,Chakraborty, R.,Raina, R.(2020).Nocturnal home hemodialysis in children: Advantages, implementation, and barriers.Seminars in Dialysis,33(2),109-119.
  9. Kerklaan, J.,Hannan, E.,Hanson, C.,Guha, C.,Cho, Y.,Christian, M.,Hamiwka, L.,Ryan, J.,Sinha, A.,Wong, G.,Craig, J.,Groothoff, J.,Tong, A.(2020).Perspectives on life participation by young adults with chronic kidney disease: An interview study.BMJ open,10(10),e037840.
  10. Larson-Nath, C.,Goday, P.(2019).Malnutrition in children with chronic disease.Nutrition in Clinical Practice,34(3),349-358.
  11. Medyńska, A.,Zwolińska, D.,Grenda, R.,Miklaszewska, M.,Szczepańska, M.,Urzykowska, A.,Zachwieja, K.,Kiliś-Pstrusińska, K.(2017).Psychosocial aspects of children and families treated with hemodialysis.Hemodialysis International,21(4),557-565.
  12. South, A. M.,Fainman, B.,Sutherland, S. M.,Wong, C. J.(2018).Children tolerate intradialytic oral nutrition.Journal of Renal Care,44(1),38-43.
  13. 王松輝,王作仁,徐淑婷,王敏行(2017)。中文版 Connor-Davidson 復原力量表之信效度分析。復健諮商,8,47-71。
  14. 林軒毓,王理剛,李薇萱(2021)。慢性皮膚搔癢的診療新知。家庭醫學與基層醫療,36(4),126-132。
  15. 國家衛生研究院,台灣腎臟醫學會(2021).2020台灣腎病年報.苗栗縣:國家衛生研究院.
  16. 郭美祺,林秀蘭(2016)。接受腹膜透析治療病童之照護。腎臟與透析,28(3),145-148。
  17. 劉月敏,李梅琛(2020)。血液透析病人復原力之概念分析。高雄護理雜誌,37(3),23-32。