病床邊的自由：一位臨終病人的青少年兒子作為照顧者的感受與掙扎

Freedom at the Bedside: The Feelings and Struggles of a Teenager as a Dying Patient's Son and Caregiver

10.6537/TJHPC.201803_23(1).03

楊淯惇(Yu-Dun Yang)；鄭逸如(Yih-Ru Cheng)；林耀盛(Yaw-Sheng Lin)；楊于婷(Yu-Ting Yang)；張琦郁(Chi-Yu Chang)；吳治勲(Chin-Hsun Wu)；黃靜怡(Jing-Yi Huang)

臨終病人 ； 照顧者 ； 自由 ； 責任 ； 意義 ； dying patient ； caregiver ； freedom ； responsibility ； meaning

安寧療護雜誌

23卷1期（2018 / 03 / 01）

35 - 45

繁體中文

癌末病人的親屬作為照顧者，經驗身體上與心理上的負擔，照顧過程中，時常感到自己被綁住了，而想要逃離現場，但卻無法離開。本文以一位18歲男性個案為例，他在照顧癌末的父親時，因為長時間的照顧影響其他個人活動的參與，加上與病人的互動與昔日不同影響其懷疑照顧價值，同時，因為整體照顧負擔太過龐大等原因而產生身心症狀。於照顧過程中，個案多次表示想要前往讓自己舒適的他方，也表達出自己處於他方時比現場更加舒適。筆者認為臨床工作者若能以存在主義式的觀點協助照顧者對自由的認知開啟新的可能性，可助於其身心調適。

The family members of terminal cancer patients often experience physical and psychological burden, struggling between the values as a caregiver and a person. The present study provides an example of an 18-year-old teenage boy, who faced a dilemma between his dying father and his personal life. The long-term caring work has burned out his time and values, and woke him sense that those works were meaningless as no improvement to be seen on his father’s daily function. Thus he had not only experienced physically and psychological symptoms but expressed his wishes of running away from the bedside to anywhere else. Regarding to these struggles of caregiver, we propose that practitioners use existential perspective to help caregiver construct a new meaning of freedom and cope better with the current situation.

1. Brown, B. B.,Larson, J.(2009).Handbook of Adolescent Psychology.John Wiley & Sons, Inc.
2. Butėnaitė, J,Sondaitė, J.,Mockus, A(2016).Components of existential crisis: a theoretical analysis.Int J Psychol, Biopsychosoc Approach,18,9-27.
3. Frankl, Viktor E.(2008).活出意義來－從集中營說到存在主義.臺北:光啓.
4. Hoenig, J.,Hamilton, M. W.(1966).Elderly psychiatric patients and the burden on the household.Eur Neurol,152(5),281-293.
5. Montgomery, R. J.,Gonyea, J. G.,Hooyman, N. R.(1985).Caregiving and the experience of subjective and objective burden.Fain Relat,19-26.
6. Proot, I. M.,Abu-Saad, H.H.,Crebolder, H. F.,Goldsteen, M.,Luker, K. A.,Widdershoven, G. A.(2003).Vulnerability of family caregivers in terminal palliative care at home; balancing between burden and capacity.Scand J Caring Sci,17(2),113-121.
7. Wallengren, C.,Segesten, K.,Friberg, F.(2008).Struggling for freedom-lived experiences of being a relative of a stroke survivor in the first six months after hospital discharge.Int J Qual Stud Health Well-being,3(4),230-238.
8. Wong, P. T.(2010).Meaning therapy: An integrative and positive existential psychotherapy.J Contemp Psychother,40(2),85-93.
9. Yalom, Irvin(2003).存在心理治療.臺北:張老師.