题名

臨終之處與其影響因素之探究

并列篇名

The place of death and its influencing factors

DOI

10.6537/TJHPC.201912_23(3).04

作者

黃銘源(Ming-Yuan Huang);林承霈(Cheng-Pei Lin)

关键词

死亡地點 ; 安寧緩和療護 ; 末期照護品質 ; 家 ; Place of death ; hospice palliative care ; quality of dying and death ; home

期刊名称

安寧療護雜誌

卷期/出版年月

23卷3期(2019 / 12 / 01)

页次

254 - 266

内容语文

繁體中文

中文摘要

根據過往的研究,「家」是多數人所選擇的臨終之處。這樣的選擇不只是出現在台灣,也普遍存在世界其他的國家中。哪些因素會影響病人產生不同的偏好及選擇進而影響病人實際的臨終之處?了解病人與家屬對於臨終照護需求與立場之不同所產生的想法差異,亦可能在臨終照護過程中扮演重要角色,這些議題都值得深究。此外,不同的照護場所可能影響病人的生命末期與死亡品質,同時對醫療體系、家屬或照顧者也會有不同的要求與負擔,需要個別化的討論與安排病人的生命末期照護計畫以改善其生活品質。隨著病情進展,病人的偏好也可能會隨著時間而改變。目前老年化的人口結構下,護理之家或長照機構亦可能成為許多人的臨終之處。若能在這些地點培育安寧緩和醫療專業人員,提供機構住民足夠的安寧緩和醫療照護,將有助於減少病人在臨終之前被送回醫院,影響其死亡品質。

英文摘要

According to previous evidence, 'home' is considered the preferred place of death for the majority of people. This choice is not only presented in Taiwan but also a mainstream in other country around the world. Therefore, it could be valuable to identify the factors that influence patients' preferences and choices affecting their actual place of death. Meanwhile, the divergence between patients' and their relatives' thoughts and perspectives on the end of life care needs plays an important role in a patient's end of life care process. These issues are all worth for further study. In addition, different place of care might influence a patient's quality of end of life and dying, and so do the different levels of requirements from healthcare system, families and caregiver. An individualized discussion with the patients and their families for the patients' care plan is needed to improve their quality end of life. Furthermore, as patients' disease progress in this aging society, patients' preferences might change over time. As for future projection, the increasing number of people die at the care homes or nursing homes. Only if there is adequate palliative care provision to the care home residents by competent healthcare professionals in hospice and palliative care in those institutes, patients can die at where they used to live rather than being sent back to hospitals during their end of life, influencing their quality of death and dying.

主题分类 醫藥衛生 > 預防保健與衛生學
醫藥衛生 > 社會醫學
参考文献
  1. Chen, CH,Lin, Y-C,Liu, L-N,Tang, ST(2014).Determinants of preference for home death among terminally ill patients with cancer in Taiwan: a cross-sectional survey study.Journal of Nursing Research,22(1),37-44.
    連結:
  2. (2009).Standards and norms for hospice and palliative care in Europedthe EAPC White Paper.EUROPEAN JOURNAL OF PALLIATIVE CARE,16(6)
  3. Agar, M,Currow, DC,Shelby-James, TM,Plummer, J,Sanderson, C,Abernethy, AP(2008).Preference for place of care and place of death in palliative care: are these different questions?.Palliative Medicine,22(7),787-795.
  4. Bone, AE,Gomes, B,Etkind, SN,Verne, J,Murtagh, FE,Evans, CJ(2018).What is the impact of population ageing on the future provision of end-of-life care? Population-based projections of place of death.Palliat Med.,32(2),329-336.
  5. Brinkman-Stoppelenburg, A,Rietjens, JA,van der Heide, A(2014).The effects of advance care planning on end-of-life care: a systematic review.Palliative medicine,28(8),1000-1025.
  6. Broad, JB,Gott, M,Kim, H,Boyd, M,Chen, H,Connolly, MJ(2013).Where do people die? An international comparison of the percentage of deaths occurring in hospital and residential aged care settings in 45 populations, using published and available statistics.International journal of public health,58(2),257-267.
  7. Chow, E,Harth, T,Hruby, G,Finkelstein, J,Wu, J,Danjoux, C(2001).How accurate are hysicians' clinical predictions of survival and the available prognostic tools in estimating survival times in terminally III cancer patients? A systematic review.Clinical Oncology,13(3),209-218.
  8. Etkind, S,Bone, A,Gomes, B,Lovell, N,Evans, C,Higginson, I(2017).How many people will need palliative care in 2040? Past trends, future projections and implications for services.BMC medicine,15(1),102.
  9. Gomes, B,Calanzani, N,Gysels, M,Hall, S,Higginson, IJ(2013).Heterogeneity and changes in preferences for dying at home: a systematic review.BMC palliative care,12(1),7.
  10. Gomes, B,Calanzani, N,Koffman, J,Higginson, IJ(2015).Is dying in hospital better than home in incurable cancer and what factors influence this? A population-based study.BMC medicine,13(1),235.
  11. Gomes, B,Higginson, IJ(2006).Factors influencing death at home in terminally ill patients with cancer: systematic review.Bmj,332(7540),515-521.
  12. Gomes, B,Higginson, IJ,Calanzani, N,Cohen, J,Deliens, L,Daveson, B(2012).Preferences for place of death if faced with advanced cancer: a population survey in England, Flanders, Germany, Italy, the Netherlands, Portugal and Spain.Annals of oncology,23(8),2006-2015.
  13. Grande, GE,Addington-Hall, JM,Todd, CJ(1998).Place of death and access to home care services: are certain patient groups at a disadvantage?.Social science & medicine,47(5),565-579.
  14. Grundy, E,Mayer, D,Young, H,Sloggett, A(2004).Living arrangements and place of death of older people with cancer in England and Wales: a record linkage study.British Journal of Cancer,91(5),907.
  15. Hales, S,Chiu, A,Husain, A,Braun, M,Rydall, A,Gagliese, L(2014).The quality of dying and death in cancer and its relationship to palliative care and place of death.Journal of pain and symptom management,48(5),839-831.
  16. Higginson, IJ,Sen-Gupta, G.(2000).Place of care in advanced cancer: a qualitative systematic literature review of patient preferences.Journal of palliative medicine,3(3),287-300.
  17. Houttekier, D,Cohen, J,Surkyn, J,Deliens, L(2011).Study of recent and future trends in place of death in Belgium using death certificate data: a shift from hospitals to care homes.BMC public health,11(1),228.
  18. Hunt, R,McCaul, K(1996).A population-based study of the coverage of cancer patients by hospice services.Palliative medicine,10(1),5-12.
  19. Kerstholt, JH,van der Zwaard, F,Bart, H,Cremers, A(2009).Construction of health preferences: a comparison of direct value assessment and personal narratives.Medical Decision Making,29(4),513-520.
  20. Kinoshita, H,Maeda, I,Morita, T,Miyashita, M,Yamagishi, A,Shirahige, Y(2014).Place of death and the differences in patient quality of death and dying and caregiver burden.Journal of Clinical Oncology,33(4),357-363.
  21. Ko, M-C,Huang, S-J,Chen, C-C,Chang, Y-P,Lien, H-Y,Lin, J-Y(2017).Factors predicting a home death among home palliative care recipients.Medicine,96(41)
  22. Koffman, J,Morgan, M,Edmonds, P,Speck, P,Higginson, I(2008).Cultural meanings of pain: a qualitative study of Black Caribbean and White British patients with advanced cancer.Palliative Medicine,22(4),350-359.
  23. Koffman, J,Morgan, M,Edmonds, P,Speck, P,Higginson, IJ(2008)."I know he controls cancer" : The meanings of religion among Black Caribbean and White British patients with advanced cancer.Social science & medicine,67(5),780-789.
  24. Lee, L-C,Hu, C-C,Loh, E-W,Hwang, S-F(2014).Factors affecting the place of death among hospice home care cancer patients in Taiwan.American Journal of Hospice and Palliative Medicine,31(3),300-306.
  25. Leff, B,Kaffenbarger, KP,Remsburg, R(2000).Prevalence, effectiveness, and predictors of planning the place of death among older persons followed in community?based long term care.Journal of the American Geriatrics Society,48(8),943-948.
  26. Lin, C-P,Evans, CJ,Koffman, J,Armes, J,Murtagh, FE,Harding, R(2019).The conceptual models and mechanisms of action that underpin advance care planning for cancer patients: A systematic review of randomised controlled trials.Palliative medicine,33(1),5-23.
  27. Lin, H-Y,Kang, S-C,Chen, Y-C,Chang, Y-C,Wang, W-S,Lo, S-S(2017).Place of death for hospice-cared terminal patients with cancer: A nationwide retrospective study in Taiwan.Journal of the Chinese Medical Association,80(4),227-232.
  28. Mori, M,Fujimori, M,Ishiki, H,Nishi, T,Hamano, J,Otani, H(2019).The Effects of Adding Reassurance Statements: Cancer Patients' Preferences for Phrases in End-of-Life Discussions.Journal of pain and symptom management
  29. Shih, C-Y,Hu, W-Y,Cheng, S-Y,Yao, C-A,Chen, C-Y,Lin, Y-C(2015).Patient preferences versus family physicians' perceptions regarding the place of end-of-life care and death: A nationwide study in Taiwan.Journal of palliative medicine,18(7),625-630.
  30. Tang, ST,Chen, CC-H,Tang, W-R,Liu, T-W.(2010).Determinants of patient-family caregiver congruence on preferred place of death in Taiwan.Journal of pain and symptom management,40(2),235-245.
  31. Tang, ST,Liu, T-W,Lai, M-S,McCorkle, R(2005).Discrepancy in the preferences of place of death between terminally ill cancer patients and their primary family caregivers in Taiwan.Social science & medicine,61(7),1560-1566.
  32. Tang, ST,McCorkle, R(2001).Determinants of place of death for terminal cancer patients.Cancer investigation,19(2),165-180.
  33. Thomas, C(2005).The place of death of cancer patients: can qualitative data add to known factors?.Social Science & Medicine,60(11),2597-2607.
  34. Tilden, VP,Tolle, SW,Drach, LL,Perrin, NA(2004).Out?of?hospital death: advance care planning, decedent symptoms, and caregiver burden.Journal of the American Geriatrics Society,52(4),532-539.
  35. Townsend, J,Frank, A,Fermont, D,Dyer, S,Karran, O,Walgrove, A(1990).Terminal cancer care and patients' preference for place of death: a prospective study.Bmj,301(6749),415-417.
  36. Waldrop, DP,Meeker, MA(2012).Communication and advanced care planning in palliative and end-of-life care.Nursing Outlook,60(6),365-369.
  37. 國家發展委員會 。 每 5 年人口金字塔及扶養比動態圖 。2019,取自 : https://www.ndc.gov.tw/cp.aspx?n=AAE231302C7BBFC9.
  38. 衛生福利部統計處 。 民國 106 年死因統計年報電子書 。2017 。
  39. 鄭企峰,林承霈,蕭勝煌(2018)。提升死亡識能以提供高品質晚期癌症照護。北市醫學雜誌,15,54-60。
被引用次数
  1. 楊啟正,楊君宜,許家禎,林宛玲,呂宜峰(2021)。執行預立醫療決定時照護地點與死亡地點之初探。安寧療護雜誌,25(3),223-238。
  2. (2024)。長照機構照顧服務員生命態度、死亡恐懼與臨終照顧能力之研究。護理雜誌,71(5),58-69。