题名

運用靈性照護協助一位突發心臟衰竭合併淋巴癌個案平安走向死亡之護理經驗

并列篇名

A Nursing Experience of the use of Spiritual Care for a Patient Dying in Peace with Acute Onset of Heart Failure and Lymphoma

DOI

10.6537/TJHPC.202003_24(1).05

作者

李昕悅(Hsin-Yueh Lee);張婉慈(Wan-Tzu Chang);蘇淑貞(Shu-Chen Su);陳幸眉(Hsing-Mei Chen)

关键词

心臟衰竭 ; 淋巴癌 ; 靈性照護 ; 死亡接受 ; heart failure ; lymphoma ; spiritual care ; death acceptance

期刊名称

安寧療護雜誌

卷期/出版年月

24卷1期(2020 / 03 / 01)

页次

59 - 71

内容语文

繁體中文

中文摘要

本文敘述一位短時間內被診斷嚴重心臟衰竭合併淋巴癌個案的照護過程,個案因心臟功能急速惡化,導致體液容積過量而出現呼吸困難,面對突然的死亡威脅,拒絕可延長生命的侵入性治療,透過每日照護與其建立信任關係,整體評估後確立個案有「呼吸困難」、「活動無耐力」、「家庭因應能力失調」及「逃避性接受死亡」等問題。本文呈現以緩解呼吸困難為首要護理目標之護理過程,並將靈性照護四階段「了解、同理、指引、成長」融入每日的照護過程中,協助個案修復與「天、人、物、我」四個靈性本質之間的關係,引導其重新定義生命的意義及價值,最終修復與家人的關係,完成四道人生「道謝、道歉、道愛、道別」,並中性的接受死亡。

英文摘要

This article describes the caring experience for a patient who received the diagnosis of severe heart failure and lymphoma within a short time. His heart function was deteriorated quickly, leading to body fluid overload and dyspnea. Suddenly facing the death threat, he refused all of the invasively lifesaving procedures, rather quickly accepted the fact of dying. After building a trustful rapport with the patient and his families through the daily routine care, in-depth assessments were carried out, and four urgent health problems were identified; "impaired cardiac tissue perfusion", "dyspnea", "activity intolerance", "ineffective family coping", and "escape acceptance of death". This paper presents the nursing process of ameliorating his dyspnea as the first priority of nursing outcome and applied a four-step strategy of spiritual care including "understanding, empathizing, guiding, and growing" to the routine care activities to help him reconstruct the relationships with the four constitutive patterns of spirituality including "God, objects, others, and id." We also guided him to redefine the meaning and value of his life. Finally, the patient successfully repaired his relationship with the families, truly accepted his death, and fulfilled the four principles of life: gratitude, forgiveness, love, and grace in bidding farewell.

主题分类 醫藥衛生 > 預防保健與衛生學
醫藥衛生 > 社會醫學
参考文献
  1. Chao, CS,Chen, CH,Yen, MF(2002).The essence of spirituality of terminally ill patients.JNR,10(4),237-245.
    連結:
  2. 楊婉萍,劉芊葳,宋聖芬(2018)。在死亡與苦難前相濡以沫──癌末病人家屬的靈性照護。護理雜誌,65(3),22-27。
    連結:
  3. 趙可式(2015)。安寧療護是普世價值且為護理的本質。護理雜誌,62(2),5-12。
    連結:
  4. Allen L. Palliative care for patients with advanced heart failure: Decision support, symptom management, and psychosocial assistance. In S. A. Hunt & R. S. Morrison (Ed.), UpToDate. 2018, from https://www.uptodate.com/contents/palliative-care-for-patients-with-advanced-heart-failure-decision-support-symptom-management-and-psych%E2%80%A6
  5. Banke, A,Schou, M,Videbæk, L(2016).Incidence of cancer in patients with chronic heart failure: A long term -follow up study.Eur J Heart Fail,18(3),260-266.
  6. Bertero, E,Canepa, M,Maack, C,Ameri, P(2018).Linking heart failure to cancer.Circulation,138(7),735-742.
  7. Dokainish, H,Teo, K,Zhu, J(2016).Heart failure in Africa, Asia, the Middle East and South America: The INTER-CHF study.Int J Cardiol,204,133-141.
  8. Kübler-Ross, E(1970).On death and dying.New York:Macmillan.
  9. Malotte, L,Saguros, A,Groninger, H.(2018).Continuous cardiac inotropes in patients with end-stage heart failure: An evolving experience.J Pain Symptom Manage,55(1),159-163.
  10. McLeod-Sordjan, R(2013).Human becoming: Death acceptance facilitated communi-cation with low–English proficiency patients at end of life.JHPN,15(7),390-395.
  11. Meyer, TE. Approach to acute decompen-sated heart failure in adults. In Yeon SB, ed. UpToDate. Waltham, MA.: UpToDate; 2019. https://www.uptodate.com/contents/approach-to-acute-decompensated-heart-failure-in-adults. Accessed August 23, 2019.
  12. Neimeyer, RA(1994).Death anxiety handbook: Research, instrumentation, and appli-cation.Washington, DC:Taylor & Francis.
  13. Ponikowski, P,Voors, AA,Anker, SD(2016).ESC Guidelines for the diagno-sis and treatment of acute and chronic heart failure: The Task Force for the diagnosis and treatment of acute and chronic heart failure of the European Society of Cardiology (ESC) developed with the special contribution of the Heart Failure Association (HFA) of the ESC.Eur Heart J,37(27),2129-2200.
  14. Rodríguez-Prat, A,Balaguer, A,Booth, A,Monforte-Royo, C(2017).Understanding patients’ experiences of the wish to hasten death: An updated and expanded systematic review and meta-ethnography.BMJ Open,7(9),e016659.
  15. Savarese, G,Lund, LH(2017).Global public health burden of heart failure.Card Fail Rev,3(1),7-11.
  16. Thavendiranathan, P,Nolan, MT(2016).An emerging epidemic: Cancer and heart failure.Clinical Science,131(2),113-121.
  17. 王桂芸,馮容芬,李惠玲(2014).新編內外科護理學(上冊).台北:永大.
  18. 黃肇明,施華菁,劉嘉仁,黃勝堅,黃遵誠(2015)。台北市立聯合醫院安寧療護現況及未來需求分析。北市醫學雜誌,12,9-20。
  19. 鄭如芬,林雅卿,黃百,韋至信,孫嘉玲(2014)。癌症末期病人靈性照護模式。護理雜誌,61(6),93-97。
  20. 釋普安,蔡昌雄,程裕藍,游碧真(2013)。癌末病童之靈性照顧──以安寧病房為例。安寧療護雜誌,18(1),62-75。