题名

兒童癌症存活者的健康問題和照護

并列篇名

Pediatric Cancer Survivors Health Issues and Care

DOI

10.6530/YYN/2016.5.6

作者

吳麗敏(Li-Min Wu)

关键词

兒童癌症存活者 ; 長期追蹤照護 ; 延遲性副作用 ; childhood cancer survivors ; long-term follow up care ; late effect

期刊名称

源遠護理

卷期/出版年月

10卷2期(2016 / 06 / 01)

页次

12 - 19

内容语文

繁體中文

中文摘要

提供兒童癌症存活者及家屬具生活品質的照護一直是醫護人員努力的目標。長期追蹤照護計畫的建立可以提供兒癌存活者和家庭更完善的照護品質。本文透過文獻闡述兒童癌症在治療後可能產生的延遲性副作用、危險因子以及健康問題,並說明長期追蹤照護計畫的條件和執行障礙,期盼透過此文章可以促進兒童癌症存活者長期追蹤照護模式的建立,讓癌症兒童存活者和家庭皆能持續且獲得高品質照護。

英文摘要

Setting up a continuous long-term care plan to provide quality of life care in childhood cancer survivors and their family is a goal for healthcare providers. This article reviews literature on the late effects, risk factors, and health-related issues that might occurred post cancer treatments. The author presents the basic elements and barriers in the development of long-term follow-up care for childhood cancer survivors and family.

主题分类 醫藥衛生 > 預防保健與衛生學
醫藥衛生 > 社會醫學
参考文献
  1. Arden-Close, E.,Absolom, K.,Greenfield, D. M.,Hancock, B. W.,Coleman, R. E.,Eiser, C.(2011).Gender differences in self-reported late effects, quality of life and satisfaction with clin-ic in survivors of lymphoma.Psychooncology,20(11),1202-1210.
  2. Armenian, S. H.,Robison, L. L.(2013).Childhood cancer survivorship: An update on evolving paradigms for understanding pathogenesis and screening for therapy-related late effects.Cur-rent Opinion in Pediatrics,25(1),16-22.
  3. Aziz, N. M.,Oeffinger, K. C.,Brooks, S.,Turoff, A. J.(2006).Comprehensive long-term follow-up programs for pediatric cancer survivors.Cancer,107(4),841-848.
  4. Blaaauwbroek, R.,Stant, A. D.,Groenier, K. H.,Kamps, W. A.,Meyboom, B.,Postma, A.(2007).Health-realted quality of life and ad-verse late effects in adult (very) long-term childhood cancer survivors.European Jouranl of Cancer,43(1),122-130.
  5. Cardous-Ubbink, M. C.,Heinen, R. C.,Bakker, P. J.,van den Berg, H.,Oldenburger, F.,Caron, H. N.,van Leeuwen, F. E.(2007).Risk of second malignancies in long-term survivors of childhood cancer.European Jouranl of Cancer,43(2),351-362.
  6. Carlson, C. A.,Hobbie, W. L.,Brogna, M.,Gins-berg, J. P.(2008).A multidisciplinary model of care for childhood cancer survivors with com-plex medical needs.Journal of Pediatric Oncol-ogy Nursing,25(1),7-13.
  7. Children’s Oncology Group. (2013). Children’s on-cology group: Long-term follow-up guidelines for survivors of childhood, adolescent, and young adult cancers. Retrieved from http://www.survivorshipguidelines.org/
  8. Condren, M.,Lubsch, L.,Vats, T. S.(2005).Long-term follow-up of survivors of childhood can-cer.Indian Journal of Pediatrics,72(1),39-43.
  9. Curry, H. L.,Parkes, S. E.,Powell, J. E.,Mann, J. R.(2006).Caring for survivors of childhood can-cers: The size of the problem.European Journal of Cancer,42(4),501-508.
  10. Fayed, N.,Schiariti, V.,Bostan, C.,Cieza, A.,Klassen, A.(2011).Health status and QOL in-struments used in childhood cancer research: Deciphering conceptual content using World Health Organization definitions.Quality of Life Research,20(8),1247-1258.
  11. Freyer, D. R.(2010).Transition of care for young adult survivors of childhood and adolescent cancer: Rationale and approaches.Journal of Clinical Oncology,28(32),4810-4818.
  12. Gibson, F.,Soanes, L.(2001).Long-term fol-low-up following childhood cacner: Maximis-ing the contribution from nursing.European Journal of Cancer,37(15),1859-1868.
  13. Ginsberg, J. P.,Hobbie, W. L.,Carlson, C. A.,Meadows, A. T.(2006).Delivering long-term follow up care to pediatric cancer survivous: Tramsitional care issue.Pediatric Blood & Can-cer,46(2),169-173.
  14. Gurney, J. G.,Kadan-Lottick, N. S.,Packer, R. J.,Neglia, J. P.,Sklar, C. A.,Punyko, J. A.,Rob-ison, L. L.(2003).Endocrine and cardiovascular late effects among adult survivors of childhood brain tumors: Childhood cancer survivor study.Cancer,97(3),663-673.
  15. Henderson, T. O.,Friedman, D. L.,Meadows, A. T.(2010).Childhood cancer survivors: Transition to adult-focused risk-based care.Pediatrics,126(1),129-136.
  16. Hinds, P. S.,Burghen, E. A.,Haase, J. E.,Phillips, C. R.(2006).Advances in defining, conceptual-izing, and measuring quality of life in pediatric patients with cancer.Oncology Nursing Forum,33(1),23-29.
  17. Ji, Y.,Chen, S.,Li, K.,Xiao, N.,Yang, X.,Zheng, S.,Xiao, X.(2011).Measuring health-relat-ed quality of life in children with cancer living in Mainland China: Feasibility, reliability and validity of the Chinese Mandarin version of PedsQL 4.0 Generic Core Scales and 3.0 Cancer Module.Health and Quality of Life Outcomes,9,103.
  18. Kaatsch, P.(2010).Epidemiology of childhood can-cer.Cancer Treatment Reviews,36(4),277-285.
  19. Kanellopoulos, A.,Hamre, H. M.,Dahl, A. A.,Fosså, S. D.,Ruud, E.(2013).Factors associated with poor quality of life in survivors of child-hood acute lymphoblastic leukemia and lym-phoma.Pediatric Blood & Cancer,60(5),849-855.
  20. Kazak, A. E.,Derosa, B. W.,Schwartz, L. A.,Hobbie, W.,Carlson, C.,Ittenbach, R. F.,Ginsberg, J. P.(2010).Psychological outcomes and health beliefs in adolescent and young adult survivors of childhood cancer and controls.Journal of Clinical Oncology,28(12),2002-2007.
  21. Klassen, A. F.,Anthony, S. J.,Khan, A.,Sung, L.,Klaassen, R.(2011).Identifying determinants of quality of life of children with cancer and child-hood cancer survivors: A systematic review.Supportive Care in Cancer,19(9),1275-1287.
  22. Lackner, H.,Benesch, M.,Schagerl, S.,Kerbl, R.,Schwinger, W.,Urban, C.(2000).Prospective evaluation of late effects after childhood cancer therapy with a follow-up over 9 years.Europe-an Journal of Pediatrics,159(10),750-758.
  23. Lee, Y. L.,Gau, B. S.,Hsu, W. M.,Chang, H. H.(2009).A model liking uncertainty, post-trau-matic stress, and health behaviors in childhood cancer survivors.Oncology Nursing Forum,36(1),E20-E30.
  24. McCabe, M. S.,Jacobs, L.(2008).Survivorship care: Models and programs.Seminars in Oncol-ogy Nursing,24(3),202-207.
  25. Meacham, L. R.,Edwards, P. J.,Cherven, B. O.,Pal-gon, M.,Espinoza, S.,Hassen-Schilling, L.,Mertens, A. C.(2012).Primary care providers as partners in long-term follow-up of pediatric cancer survivors.Journal of Cancer Survivor-ship,6(3),270-277.
  26. Nierenberg, A. A.,Alpert, J. E.,Gaynes, B. N.,War-den, D.,Wisniewski, S. R.,Biggs, M. M.,Rush, A. J.(2008).Family history of completed suicide and characteristics of major depressive disorder: A STAR*D (sequenced treatment al-ternatives to relieve depression) study.Journal of Affective Disorders,108(1-2),129-134.
  27. Oeffinger, K. C.,Hudson, M. M.,Landier, W.(2009).Survivorship: Childhood cancer survi-vors.Primary Care,36(4),743-780.
  28. Oeffinger, K. C.,Nathan, P. C.,Kremer, L. C. M.(2008).Challenges after curative treatment for childhood cancer and long-term follow up of survivors.Pediatric Clinics of North America,55(1),251-273.
  29. Patenaude, A. F.,Kupst, M. J.(2005).Psychoso-cial Functioning in Pediatric Cancer.Jounal of Pediatric Psychology,30(1),9-27.
  30. Richardson, R. C.,Nelson, M. B.,Meeske, K.(1999).Young adult survivors of childhood can- cer: Attending to emerging medical and psycho-logical needs.Journal of Pediatric Oncology Nursing,16(3),136-144.
  31. Robison, L. L.,Green, D. M.,Hudson, M.,Meadows, A. T.,Mertens, A. C.,Packer, R. J.,Zeltzer, L. K.(2005).Long-term outcomes of adult sur-vivors of childhood cancer.Cancer,104(S11),2557-2564.
  32. Schwartz, C. L.(1999).Long-term survivors of childhood cancer: The late effects of therapy.Oncologist,4(1),45-54.
  33. Shepherd, E. J.,Woodgate, R. L.(2010).Cancer survivorship in children and young adults: A concept analysis.Journal of Pediatric Oncology Nursing,27(2),109-118.
  34. Taylor, N.,Absolom, K.,Snowden, J.,Eiser, C.(2012).Need for psychological follow-up among young adult survivors of childhood can-cer.European Journal of Cancer Care,21(1),52-58.
  35. van Laar, M.,Glaser, A.,Phillips, R. S.,Feltbower, R. G.,Stark, D. P.(2013).The impact of a managed transition of care upon psychosocial characteristics and patient satisfaction in a co-hort of adult survivors of childhood cancer.Psy-cho-Oncology,22(9),2039-2045.
  36. Wilson, I. B.,Cleary, P. D.(1995).Linking clini-cal variables with health-realted quality of life.Journal of the American Medical Association,273(1),59-65.
  37. Woodgate, R. L.(2006).Living in the shadow of fear: Adolescents’ lived experience of depres-sion.Journal of Advanced Nursing,56(3),261-269.
  38. Woodgate, R. L.(2005).A different way of being: Adolescents’ experience with cancer.Cancer Nursing,28(1),8-15.
  39. Yi, J.,Kim, M. A.,Tian, T.(2014).Perceived long-term and physical health problems after cancer: Adolescent and young adult survivors of child-hood cancer in Korea.European Journal of On-cology Nursing,18(2),145-150.
  40. 李靜芳,簡麗盈,依莉,周怡宏(2004)。兒童健康生活品質之概念與測量工具介紹。護理雜誌,51(2),73-78。
被引用次数
  1. 黃美智,陳映筑,高綺吟,林沛欣,沈芸伊(2021)。探討接受返校照護模式癌症兒童之學校生活適應。腫瘤護理雜誌,21(1),29-44。
  2. 蘇以青,溫淑慧,陳信宏,吳麗敏(2022)。緩和照護於兒童癌症的新趨勢。榮總護理,39(1),35-40。