一位腦性麻痺患者父親生命經驗轉化學習之探究

A study on the transformation of life experience of a cerebral palsy father

陳嬌芳(Chiao-Fang, Chen)

腦性麻痺 ； 腦性麻痺患者父親 ； 轉化學習 ； Cerebral palsy ； transformation learning

家庭教育與諮商學刊

23期（2020 / 12 / 01）

39 - 67

繁體中文

本研究旨在探討腦性麻痺父親生命經驗轉化學習之經驗，以深度訪談為資料蒐集的主要方法，另外，父親有2篇抒發情感與想法的文章，亦納入研究素材。本研究藉由敘事研究哲學視角，進入研究場域，並以「類別－內容」分析為方法。依據研究結果，發現五個主要轉化學習的生命經驗：（一）天使的孩子，上帝恩寵而轉化；（二）復健照顧與工作，多頭馬車在拉扯，夫妻齊力同心而轉化；（三）手足照顧受影響，愛的滿足而釋懷；（四）經濟負擔重，進修努力做準備；（五）永續～生生不息。依據結果，對腦性痲痺家庭、相關專業人員等，提出建議。

This study aims to explore the experience of cerebral palsy father's life experience transformation learning. The main method of collecting data with in-depth interviews, In addition, The father has two articles that express emotions and thoughts, and also included research materials. This study enters the research field from the perspective of narrative research philosophy and uses the ＂category-content＂ analysis as a method. Based on the results of the study, five life experiences of major transformational learning were discovered: (1) Angel's child, transformed by God's grace; (2) Rehabilitation care and work, the multi-headed carriage is pulling, and the husband and wife work together to transform; (3) Sibling care is affected, and the satisfaction of love is relieved; (4) The economic burden is heavy, and the training is hard to prepare; (5) Perseverance ~ Endless life. Based on the results, suggestions are made for cerebral palsy families and related professionals.

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