参考文献
|
-
蔡甫昌、潘恆嘉、吳澤玫、邱泰源、黃天祥(2006).預立醫療計畫之倫理與法律議題.臺灣醫學,10(4),517-536。doi: 10.6320/fjm.2006.10(4).15
連結:
-
Tavakol, M., & Dennick, R. (2011). Making sense of Cronbach's alpha. International Journal of Medical Education, 2, 53-55. doi: 10.5116/ijme.4dfb.8dfd
連結:
-
王业兴(2008)清末民初的教育新理念与孙中山近代化教育思想.甘肅社會科學,2008(3),164-166。
-
吳柏毅、蔡甫昌、陳慶餘(2004).病患的決定能力.當代醫學,368,482-486。李明濱(1997).病人自主與知情同意.醫學教育,1(4),377-388。
-
李欣慈、陳慶餘、胡文郁(2012).華人孝道與家庭主義文化脈絡下談長照機構住民執行預立醫療照護計畫與老人自主權.安寧療護雜誌,17(2),187-199。doi: 10.6537/TJHPC.2012.17(2).5
-
沈明昌(2012).論涵靜老人在先秦儒家、道家生死觀的承繼.宗教哲學,62,161-178。
-
卓馨怡、利翠珊(2008).成年子女的孝道責任與焦慮:親子關係滿意度的影響.本土心理學研究,30,155-197。doi: 10.6254/2008.30.155
-
林碧珠、林麗嬋、林金真(1997).成人教育理論與老人衛生教育.護理雜誌,44(2), 81-86。doi: 10.6224/jn.44.2.81
-
林慧美、楊嘉玲、陳美妙、邱泰源、胡文郁(2011).住院病人簽署預立醫療指示的意願及接受宣導的意向.安寧療護雜誌,16(3),281-295。
-
柯莉珊、陳炳仁、胡文郁、邱泰源(2012).Behavioral intentions of physicians towards providing artificial nutrition and hydration to terminal cancer patients and its implications for nursing care.安寧療護雜誌,17(1),1-17。doi: 10.6537/tjhpc.2012.17(1).1
-
胡文郁、楊嘉玲(2009).生命末期之病情告知與預立照護計畫.護理雜誌,56(1),23-28。doi: 10.6224/jn.56.1.23
-
唐善美、陳彰惠、陳季員(2009).應用跨理論模式於青少年菸害防制之系統性文獻回顧.護理雜誌,56(2),81-88。doi: 10.6224/jn.56.2.81
-
教育部(2008).國語小字典.取自http://dict.mini.moe.edu.tw/cgi-bin/gdic/gsweb.cgi?o=ddictionary
-
教育部(2015).教育部重編國語辭典修訂本.取自http://dict.revised.moe.edu.tw/cbdic/index.html
-
許善然(2017).祭祀的意蘊與價值-以《禮記‧祭義》之闡釋為主.鵝湖月刊,510,38-47。
-
郭秀娟(2006).道教生命觀之研究.中華禮儀,15,6-9。doi: 10.29420/cfc.200605_(15).0002
-
陳依靈、楊孟華、侯堂盛(2013).跨理論模式應用於老年人健身運動行為改變之探討.嘉大體育健康休閒期刊,12(1),136-141。doi: 10.6169/ncyujpehr.201304.12.1.14
-
陳凱莉、陳清惠(2014).台灣老人醫療自主權的省思.護理雜誌,61(5),26-32。doi: 10.6224/jn.61.5.26
-
曾月霞、林岱樺、陳秀萍(2003).跨理論模式於改變老人運動行為之應用.護理雜誌,50(4),76-80。doi: 10.6224/jn.50.4.76
-
黃筱君、鄧皓引、利翠珊(2012).老人自主性、代間情感與其生活滿意度之關聯.輔仁民生學誌,18(1),45-65。doi: 10.29440/fjjhe.201206.0003
-
黃慧莉(2003).自主性的概念分析.醫護科技學刊,5(2),130-141。doi: 10.6563/tjhs.2003.5(2).5
-
黃慧莉、林惠賢(2002).老人知覺自主性量表中文修訂版的信效度評估.測驗年刊,49(2),183-197。doi: 10.7108/pta.200207.0183
-
黃囇莉(1996).中國人的和諧觀/衝突觀:和諧化辯證觀之研究取徑.本土心理學研究,5,47-71。doi: 10.6254/1996.5.47
-
楊嘉玲、陳慶餘、胡文郁(2008).醫療預立指示.安寧療護雜誌,13(1),30-41。doi: 10.6537/TJHPC.2008.13(1).3
-
葉光輝(2009).華人孝道雙元模型研究的回顧與前瞻.本土心理學研究,32,101-148。doi: 10.6254/2009.32.101
-
談靜慧、金繼春(2004).自主之概念分析.護理雜誌,51(3),65-70。doi: 10.6224/jn.51.3.65
-
鄭大華(2004).30年代的“本位文化”與“全盤西化”的論戰.湖南師範大學社會科學學報,33(3),84-90。
-
行政院經濟建設委員會(2010).2010年至2060年臺灣人口推計.取自http://www.cepd.gov.tw/m1.aspx?sNo=0000455&key=&ex=2&ic=0000153
-
Agnes, M. E. (1998). Webster’s new worldTM basic dictionary of American English. USA: Macmillan.
-
Appelbaum, P. S., & Grisso, T. (1988). Assessing patients' capacities to consent to treatment. The New England Journal of Medicine, 319(25), 1635-1638. doi: 10.1056/nejm198812223192504
-
Ayalon, L., Bachner, Y. G., Dwolatzky, T., & Heinik, J. (2012). Preferences for end-of-life treatment: Concordance between older adults with dementia or mild cognitive impairment and their spouses. International Psychogeriatrics/ IPA, 24(11), 1798-1804. doi: 10.1017/s1041610212000877
-
Baughman, K. R., Aultman, J., Hazelett, S., Palmisano, B., O'Neill, A., Ludwick, R., & Sanders, M. (2012). Managing in the trenches of consumer care: The challenges of understanding and initiating the advance care planning process. Journal of Gerontological Social Work, 55(8), 721-737. doi: 10.1080/01634372.2012.708389
-
Becker, M., Jaspers, B., King, C., Radbruch, L., Voltz, R., & Nauck, F. (2010). Did you seek assistance for writing your advance directive? A qualitative study. Wiener Klinische Wochenschrift, 122(21-22), 620-625. doi: 10.1007/s00508-010-1470-6
-
Bian, L. (2015). Medical individualism or medical familism? A critical analysis of china's new guidelines for informed consent: The basic norms of the documentation of the medical record. The Journal of Medicine and Philosophy, 40(4), 371-386. doi: 10.1093/jmp/jhv016
-
Bilanakis, N., Vratsista, A., Athanasiou, E., Niakas, D., & Peritogiannis, V. (2014). Medical patients' treatment decision making capacity: A report from a general hospital in Greece. Clinical Practice and Epidemiology in Mental Health: CP & EMH, 10, 133-139. doi: 10.2174/1745017901410010133
-
Bito, S., Matsumura, S., Singer, M. K., Meredith, L. S., Fukuhara, S., & Wenger, N. S. (2007). Acculturation and end-of-life decision making: comparison of Japanese and Japanese-American focus groups. Bioethics, 21(5), 251-262.
-
Black, K. (2006). Advance directive communication: Nurses' and social workers' perceptions of roles. American Journal of Hospice & Palliative Medicine, 23(3), 175-184.
-
Black, K., & Emmet, C. (2006). Nurses' advance care planning communication: An investigation. Geriatric Nursing, 27(4), 222-228.
-
Bowman, K. W., & Singer, P. A. (2001). Chinese seniors' perspectives on end-of-life decisions. Social Science & Medicine, 53(4), 455-464.
-
Bravo, G., Dubois, M. F., & Wagneur, B. (2008). Assessing the effectiveness of interventions to promote advance directives among older adults: A systematic review and multi-level analysis. Social Science & Medicine, 67(7), 1122-1132. doi: 10.1016/j.socscimed.2008.06.006
-
Briggs, L., & Colvin, E. (2002). The nurse's role in end-of-life decision-making for patients and families. Geriatric Nursing, 23(6), 302-310. doi: http://dx.doi.org/10.1067/mgn.2002.130271
-
Brown, B. A. (2003). The history of advance directives. A literature review. Journal of Gerontological Nursing, 29(9), 4-14.
-
Bull, A., & Mash, B. (2012). Advance directives or living wills: Reflections of general practitioners and frail care coordinators in a small town in KwaZulu-Natal. South African Family Practice, 54(6), 507-512.
-
Bullock, K. (2011). The influence of culture on end-of-life decision making. Journal of Social Work in End-of-Life & Palliative Care, 7(1), 83-98. doi: 10.1080/15524256.2011.548048
-
Bullock, K., Christ, G., & Blacker, S. (2006). Promoting advance directives among African Americans: A faith-based model. Journal of Palliative Medicine, 9(1), 183-195.
-
Carrese, J. A., Mullaney, J. L., Faden, R. R., & Finucane, T. E. (2002). Planning for death but not serious future illness: Qualitative study of household elderly patients. BMJ: British Medical Journal, 325(7356), 125-130.
-
Carter, S. M., & Little, M. (2007). Justifying knowledge, justifying method, taking action: Epistemologies, methodologies, and methods in qualitative research. Qualitative health research, 17(10), 1316-1328. doi: 10.1177/1049732307306927
-
Chan, H. Y., & Pang, S. M. (2011). Readiness of Chinese frail old age home residents towards end-of-life care decision making. Journal of Clinical Nursing, 20(9-10), 1454-1461.
-
Chen, Y. H., Ho, C. H., & Huang, C. C. (2017). Comparison of healthcare utilization and life-sustaining interventions between elderly patients with dementia and those with cancer near the end of life: A nationwide, population-based study in Taiwan. Geriatrics & Gerontology International, 17(12), 2545-2551. doi: 10.1111/ggi.13084
-
Cicirelli, V. G. (1991). Family Caregiving: Autonomous and Paternalistic Decision Making. Newbury Park, CA: Sage.
-
Cicirelli, V. G. (2006). Caregiving decision making by older mothers and adult children: Process and expected outcome. Psychology and Aging, 21(2), 209-221. doi: 10.1037/0882-7974.21.2.209
-
Clarke, A., & Seymour, J. (2010). "At the foot of a very long ladder": Discussing the end of life with older people and informal caregivers. Journal of Pain and Symptom Management, 40(6), 857-869.
-
Cohen-Mansfield, J., Lipson, S., & Horton, D. (2006). Medical decision-making in the nursing home: A comparison of physician and nurse perspectives. Journal of Gerontological Nursing, 32(12), 14-21.
-
Cohen-Mansfield, J., Rabinovich, B. A., Lipson, S., Fein, A., Gerber, B., Weisman, S., & Pawlson, L. G. (1991). The decision to execute a durable power of attorney for health care and preferences regarding the utilization of life-sustaining treatments in nursing home residents. Archives of Internal Medicine, 151(2), 289-294.
-
Collopy, B. J. (1988). Autonomy in long term care: Some crucial distinctions. The Gerontologist, 28 Suppl, 10-17.
-
Coppola, K. M., Bookwala, J., Ditto, P. H., Lockhart, L. K., Danks, J. H., & Smucker, W. D. (1999). Elderly adults' preferences for life-sustaining treatments: The role of impairment, prognosis, and pain. Death Studies, 23(7), 617-634. doi: 10.1080/074811899200803
-
Coppolino, M., & Ackerson, L. (2001). Do surrogate decision makers provide accurate consent for intensive care research? Chest, 119(2), 603-612.
-
Corke, C. F., Lavery, J. F., & Gibson, A. M. (2005). Choosing life support for suddenly severely ill elderly relatives. Critical Care and Resuscitation: Journal of the Australasian Academy of Critical Care Medicine, 7(2), 81-86.
-
Crisp, D. H. (2007). Healthy older adults' execution of advance directives: A qualitative study of decision making. Journal of Nursing Law, 11(4), 180-190.
-
Critical Appraisal Skills Programme. (2012). CASP systematic review checklist. Retrieved 01.08, 2014, from http://www.casp-uk.net/#!checklists/cb36
-
Critical Appraisal Skills Programme. (2014). CASP qualitative checklist. Retrieved 01.08, 2014, from http://www.casp-uk.net/find-appraise-act/appraising-theevidence/.
-
Daaleman, T. P., Emmett, C. P., Dobbs, D., & Williams, S. W. (2008). An exploratory study of advance care planning in seriously ill African-American elders. Journal of the National Medical Association, 100(12), 1457-1462. doi: 10.1016/S0027-9684(15)31547-9
-
Davidson, R., Banister, E., & de Vries, K. (2013). Primary healthcare NZ nurses' experiences of advance directives: Understanding their potential role. Nursing Praxis in New Zealand, 29(2), 26-33.
-
Detering, K. M., Hancock, A. D., Reade, M. C., & Silvester, W. (2010). The impact of advance care planning on end of life care in elderly patients: Randomised controlled trial. BMJ (Clinical research ed.), 340, c1345. doi: 10.1136/bmj.c1345
-
Ditto, P. H., Danks, J. H., Smucker, W. D., Bookwala, J., Coppola, K. M., Dresser, R., . . . Zyzanski, S. (2001). Advance directives as acts of communication: A randomized controlled trial. Archives of Internal Medicine, 161(3), 421-430.
-
Ditto, P. H., Smucker, W. D., Danks, J. H., Jacobson, J. A., Houts, R. M., Fagerlin, A., . . . Gready, R. M. (2003). Stability of older adults' preferences for life-sustaining medical treatment. Health Psychology: Official Journal of the Division of Health Psychology, American Psychological Association, 22(6), 605-615. doi: 10.1037/0278-6133.22.6.605
-
Dixon-Woods, M., Bonas, S., Booth, A., Jones, D. R., Miller, T., Sutton, A. J., . . . Young, B. (2006). How can systematic reviews incorporate qualitative research? A critical perspective. Qualitative Research, 6(1), 27-44. doi: 10.1177/1468794106058867
-
Dunlop, C., & Sorinmade, O. (2014). Embedding the Mental Capacity Act 2005 in clinical practice: An audit review. The Psychiatric Bulletin, 38(6), 291-293. doi: 10.1192/pb.bp.114.046870
-
El-Jawahri, A., Podgurski, L. M., Eichler, A. F., Plotkin, S. R., Temel, J. S., Mitchell, S. L., . . . Volandes, A. E. (2010). Use of video to facilitate end-of-life discussions with patients with cancer: A randomized controlled trial. Journal of Clinical Oncology: Official Journal of the American Society of Clinical Oncology, 28(2), 305-310. doi: 10.1200/jco.2009.24.7502
-
Elder, N. C., Schneider, F. D., Zweig, S. C., Peters, P. G., Jr., & Ely, J. W. (1992). Community attitudes and knowledge about advance care directives. The Journal of the American Board of Family Practice, 5(6), 565-572.
-
Elliott, B. A., Gessert, C. E., & Peden-McAlpine, C. (2007). Decision making on behalf of elders with advanced cognitive impairment: Family transitions. Alzheimer Disease and Associated Disorders, 21(1), 49-54. doi: 10.1097/WAD.0b013e318030840a
-
Emanuel, L. L., Danis, M., Pearlman, R. A., & Singer, P. A. (1995). Advance care planning as a process: Structuring the discussions in practice. Journal of the American Geriatrics Society, 43(4), 440-446.
-
Enck, R. E. (2010). Antibiotic use in end-of-life care: A soft line? The American Journal of Hospice & Palliative Care, 27(4), 237-238. doi: 10.1177/1049909110364795
-
Foo, A. S., Lee, T. W., & Soh, C. R. (2012). Discrepancies in end-of-life decisions between elderly patients and their named surrogates. Annals of the Academy of Medicine, Singapore, 41(4), 141-153.
-
Fried, T. R., & Bradley, E. H. (2003). What matters to seriously ill older persons making end-of-life treatment decisions?: A qualitative study. Journal of Palliative Medicine, 6(2), 237-244.
-
Fried, T. R., Bullock, K., Iannone, L., & O'Leary, J. R. (2009). Understanding advance care planning as a process of health behavior change. Journal of the American Geriatrics Society, 57(9), 1547-1555.
-
Fried, T. R., Redding, C. A., Robbins, M. L., Paiva, A., O'Leary, J. R., & Iannone, L. (2010). Stages of change for the component behaviors of advance care planning. Journal of the American Geriatrics Society, 58(12), 2329-2336. doi: 10.1111/j.1532-5415.2010.03184.x
-
Fried, T. R., Redding, C. A., Robbins, M. L., Paiva, A., O'Leary, J. R., & Iannone, L. (2012). Promoting advance care planning as health behavior change: Development of scales to assess decisional balance, medical and religious beliefs, and processes of change. Patient Education and Counseling, 86(1), 25-32. doi: 10.1016/j.pec.2011.04.035
-
Gardner, D. S., & Kramer, B. J. (2009). End-of-life concerns and care preferences: Congruence among terminally ill elders and their family caregivers. Omega, 60(3), 273-297.
-
Gerety, M. B., Chiodo, L. K., Kanten, D. N., Tuley, M. R., & Cornell, J. E. (1993). Medical treatment preferences of nursing home residents: Relationship to function and concordance with surrogate decision-makers. Journal of the American Geriatrics Society, 41(9), 953-960.
-
Glass, A. P., & Nahapetyan, L. (2008). Discussions by elders and adult children about end-of-life preparation and preferences. Preventing Chronic Disease, 5(1), A08-A08.
-
Gutheil, I. A., & Heyman, J. C. (2006). "They don't want to hear us": Hispanic elders and adult children speak about end-of-life planning. Journal of Social Work in End-of-Life & Palliative Care, 2(1), 55-70.
-
Gutierrez, K. M. (2012). Advance directives in an intensive care unit: Experiences and recommendations of critical care nurses and physicians. Critical Care Nursing Quarterly, 35(4), 396-409. doi: 10.1097/CNQ.0b013e318268fe35
-
Haley, W. E., Allen, R. S., Reynolds, S. L., CHEN, H., Burton, A., & Gallagher-Thompson, D. (2002). Family issues in end-of-life decision making and end-of-life care. American Behavioral Scientist, 46(2), 284-298. doi: 10.1177/000276402236680
-
Hinders, D. (2012). Advance directives: Limitations to completion. The American Journal of Hospice & Palliative Care, 29(4), 286-289. doi: 10.1177/1049909111419293
-
Hopp, F. P. (2000). Preferences for surrogate decision makers, informal communication, and advance directives among community-dwelling elders: Results from a national study. The Gerontologist, 40(4), 449-457.
-
Hsu, C. Y., O'Connor, M., & Lee, S. (2009). Understandings of death and dying for people of Chinese origin. Death Studies, 33(2), 153-174. doi: 10.1080/07481180802440431
-
Htut, Y., Shahrul, K., & Poi, P. J. H. (2007). The views of older Malaysians on advanced directive and advanced care planning: A qualitative study. Asia-Pacific Journal of Public Health, 19(3), 58-67.
-
Jadad, A. R., Moore, R. A., Carroll, D., Jenkinson, C., Reynolds, D. J., Gavaghan, D. J., & McQuay, H. J. (1996). Assessing the quality of reports of randomized clinical trials: Is blinding necessary? Controlled Clinical Trials, 17(1), 1-12.
-
Jeong, S. Y., Higgins, I., & McMillan, M. (2007). Advance care planning (ACP): the nurse as 'broker' in residential aged care facilities. Contemporary Nurse, 26(2), 184-195. doi: 10.5172/conu.2007.26.2.184
-
Jeong, S. Y., Higgins, I., & McMillan, M. (2011a). Experiences with advance care planning: Nurses' perspective. International Journal of Older People Nursing, 6(3), 165-175.
-
Jeong, S. Y., Higgins, I., & McMillan, M. (2011b). Experiences with advance care planning: Older people and family members' perspective. International Journal of Older People Nursing, 6(3), 176-186.
-
Jezewski, M. A., Finnell, D. S., Wu, Y. W., Meeker, M. A., Sessanna, L., & Lee, J. (2009). Psychometric testing of four transtheoretical model questionnaires for the behavior, completing health care proxies. Research in Nursing & Health, 32(6), 606-620. doi: 10.1002/nur.20352
-
Jezewski, M. A., Meeker, M. A., & Schrader, M. (2003). Voices of oncology nurses: What is needed to assist patients with advance directives. Cancer Nursing, 26(2), 105-112.
-
Ke, L. S., Chiu, T. Y., Hu, W. Y., & Lo, S. S. (2008). Effects of educational intervention on nurses' knowledge, attitudes, and behavioral intentions toward supplying artificial nutrition and hydration to terminal cancer patients. Supportive Care in Cancer, 16(11), 1265-1272. doi: 10.1007/s00520-008-0426-0
-
Kelner, M., Bourgeault, I. L., Hébert, P. C., & Dunn, E. V. (1993). Advance directives: The views of health care professionals. CMAJ: Canadian Medical Association Journal, 148(8), 1331-1338.
-
Khizar, B., & Harwood, R. H. (2017). Making difficult decisions with older patients on medical wards. Clinical Medicine: Journal of the Royal College of Physicians of London, 17(4), 353-356. doi: 10.7861/clinmedicine.17-4-353
-
Ko, E., & Berkman, C. S. (2010). Role of children in end-of-life treatment planning among Korean American older adults. Journal of Social Work in End-of-Life & Palliative Care, 6(3-4), 164-184.
-
Ko, E., & Berkman, C. S. (2012). Advance directives among Korean American older adults: knowledge, attitudes, and behavior. Journal of Gerontological Social Work, 55(6), 484-502.
-
Ko, E., Nelson-Becker, H., Park, Y., & Shin, M. (2013). End-of-life decision making in older Korean adults: Concerns, preferences, and expectations. Educational Gerontology, 39(2), 71-81. doi: 10.1080/03601277.2012.682947
-
Kwak, J., & Salmon, J. R. (2007). Attitudes and preferences of Korean-American older adults and caregivers on end-of-life care. Journal of the American Geriatrics Society, 55(11), 1867-1872.
-
Lambert, H. C., McColl, M. A., Gilbert, J., Wong, J., Murray, G., & Shortt, S. E. (2005). Factors affecting long-term-care residents' decision-making processes as they formulate advance directives. The Gerontologist, 45(5), 626-633.
-
Lamont, S., Jeon, Y. H., & Chiarella, M. (2013). Assessing patient capacity to consent to treatment: An integrative review of instruments and tools. Journal of Clinical Nursing, 22(17-18), 2387-2403. doi: 10.1111/jocn.12215
-
Leibovici, L., & Paul, M. (2015). Ethical dilemmas in antibiotic treatment: Focus on the elderly. Clinical Microbiology and Infection: the Official Publication of the European Society of Clinical Microbiology and Infectious Diseases, 21(1), 27-29. doi: 10.1016/j.cmi.2014.10.013
-
Lenherr, G., Meyer-Zehnder, B., Kressig, R. W., & Reiter-Theil, S. (2012). To speak, or not to speak -- do clinicians speak about dying and death with geriatric patients at the end of life? Swiss Medical Weekly, 142, w13563-w13563. doi: 10.4414/smw.2012.13563
-
Levi, B. H., Dellasega, C., Whitehead, M., & Green, M. J. (2010). What influences individuals to engage in advance care planning? The American Journal of Hospice & Palliative Care, 27(5), 306-312.
-
Lin, M. L., Huang, C. T., & Chen, C. H. (2017). Reasons for family involvement in elective surgical decision-making in Taiwan: A qualitative study. Journal of Clinical Nursing, 26(13-14), 1969-1977. doi: 10.1111/jocn.13600
-
Livingston, G., Pitfield, C., Morris, J., Manela, M., Lewis-Holmes, E., & Jacobs, H. (2012). Care at the end of life for people with dementia living in a care home: A qualitative study of staff experience and attitudes. International Journal of Geriatric Psychiatry, 27(6), 643-650. doi: 10.1002/gps.2772
-
Macedo, F., Nunes, C., Ladeira, K., Pinho, F., Saraiva, N., Bonito, N., . . . Goncalves, F. (2018). Antimicrobial therapy in palliative care: An overview. Supportive Care in Cancer, 26(5), 1361-1367. doi: 10.1007/s00520-018-4090-8
-
Malcomson, H., & Bisbee, S. (2009). Perspectives of healthy elders on advance care planning. Journal of the American Academy of Nurse Practitioners, 21(1), 18-23.
-
Malhotra, C., Chan, A., Do, Y. K., Malhotra, R., & Goh, C. (2012). Good end-of-life care: Perspectives of middle-aged and older Singaporeans. Journal of Pain and Symptom Management, 44(2), 252-263.
-
Marchand, L., Cloutier, V. M., Gjerde, C., & Haq, C. (2001). Factors influencing rural Wisconsin elders in completing advance directives. WMJ: Official Publication of the State Medical Society of Wisconsin, 100(9), 26-31.
-
Massachusetts Department of Mental Health. REAP: Readiness to engage in advance care planning. Retrieved January 1, 2016, from http://www.promotingexcellence.org/downloads/mass/REAP_Short_Form.pdf
-
Matheis-Kraft, C., & Roberto, K. A. (1997). Influence of a values discussion on congruence between elderly women and their families on critical health care decisions. Journal of Women & Aging, 9(4), 5-22. doi: 10.1300/J074v09n04_02
-
McMahan, R. D., Knight, S. J., Fried, T. R., & Sudore, R. L. (2013). Advance care planning beyond advance directives: Perspectives from patients and surrogates. Journal of Pain and Symptom Management, 46(3), 355-365. doi: 10.1016/j.jpainsymman.2012.09.006
-
Medvene, L. J., Base, M., Patrick, R., & Wescott, J. (2007). Advance directives: Assessing stage of change and decisional balance in a community-based educational program. Journal of Applied Social Psychology, 37(10), 2298-2318. doi: 10.1111/j.1559-1816.2007.00259.x
-
Meier, D. E., Fuss, B. R., O'Rourke, D., Baskin, S. A., Lewis, M., & Morrison, R. S. (1996). Marked improvement in recognition and completion of health care proxies. A randomized controlled trial of counseling by hospital patient representatives. Archives of Internal Medicine, 156(11), 1227-1232.
-
Meier, D. E., Gold, G., Mertz, K., Taylor, B., Cammer-Paris, B. E., Seckler, A., & Mulvihill, M. (1996). Enhancement of proxy appointment for older persons: Physician counselling in the ambulatory setting. Journal of the American Geriatrics Society, 44(1), 37-43.
-
Minto, F., & Strickland, K. (2011). Anticipating emotion: A qualitative study of advance care planning in the community setting. International Journal of Palliative Nursing, 17(6), 278-284.
-
Mitchell, M. A. (2015). Assessing patient decision-making capacity: It's about the thought process. Journal of Emergency Nursing: JEN: official Publication of the Emergency Department Nurses Association, 41(4), 307-312. doi: 10.1016/j.jen.2014.10.014
-
Morrison, R. S., Zayas, L. H., Mulvihill, M., Baskin, S. A., & Meier, D. E. (1998). Barriers to completion of healthcare proxy forms: A qualitative analysis of ethnic differences. The Journal of Clinical Ethics, 9(2), 118-126.
-
Ott, B. B. (2008). Views of African American nursing home residents about living wills. Geriatric Nursing, 29(2), 117-124.
-
Parks, S. M., Winter, L., Santana, A. J., Parker, B., Diamond, J. J., Rose, M., & Myers, R. E. (2011). Family factors in end-of-life decision-making: Family conflict and proxy relationship. Journal of Palliative Medicine, 14(2), 179-184. doi: 10.1089/jpm.2010.0353
-
Pauls, M. A., Singer, P. A., & Dubinsky, I. (2001). Communicating advance directives from long-term care facilities to emergency departments. The Journal of Emergency Medicine, 21(1), 83-89.
-
Pengo, V., Zurlo, A., Voci, A., Valentini, E., De Zaiacomo, F., Catarini, M., . . . Giantin, V. (2017). Advanced dementia: Opinions of physicians and nurses about antibiotic therapy, artificial hydration and nutrition in patients with different life expectancies. Geriatrics & Gerontology International, 17(3), 487-493. doi: 10.1111/ggi.12746
-
Piers, R. D., van Eechoud, I. J., Van Camp, S., Grypdonck, M., Deveugele, M., Verbeke, N. C., & Van Den Noortgate, N. J. (2013). Advance care planning in terminally ill and frail older persons. Patient Education and Counseling, 90(3), 323-329.
-
Prochaska, J. O., & DiClemente, C. C. (1982). Transtheoretical therapy: Toward a more integrative model of change. Psychotherapy: Theory, Research & Practice, 19(3), 276-288.
-
Prochaska, J. O., & Velicer, W. F. (1997). The transtheoretical model of health behavior change. American Journal of Health Promotion: AJHP, 12(1), 38-48.
-
Rizzo, V. M., Engelhardt, J., Tobin, D., Della Penna, R., Feigenbaum, P., Sisselman, A., . . . Lombardo, F. (2010). Use of the stages of change transtheoretical model in end-of-life planning conversations. Journal of Palliative Medicine, 13(3), 267-271. doi: 10.1089/jpm.2009.0281
-
Robinson, L., Dickinson, C., Bamford, C., Clark, A., Hughes, J., & Exley, C. (2013). A qualitative study: Professionals' experiences of advance care planning in dementia and palliative care, 'a good idea in theory but ...'. Palliative Medicine, 27(5), 401-408.
-
Robinson, L., Dickinson, C., Rousseau, N., Beyer, F., Clark, A., Hughes, J., . . . Exley, C. (2012). A systematic review of the effectiveness of advance care planning interventions for people with cognitive impairment and dementia. Age and Ageing, 41(2), 263-269. doi: 10.1093/ageing/afr148
-
Rodriguez, K. L., & Young, A. J. (2005). Perspectives of elderly veterans regarding communication with medical providers about end-of-life care. Journal of Palliative Medicine, 8(3), 534-544.
-
Rodriguez, K. L., & Young, A. J. (2006a). Elderly veterans' beliefs concerning life-sustaining treatment and the control of their end-of-life health and health care. Journal of Aging and Health, 18(5), 686-706.
-
Rodriguez, K. L., & Young, A. J. (2006b). Patients' and healthcare providers' understandings of life-sustaining treatment: Are perceptions of goals shared or divergent? Social Science & Medicine, 62(1), 125-133.
-
Rodriguez, K. L., & Young, A. J. (2006c). Perceptions of patients on the utility or futility of end-of-life treatment. Journal of Medical Ethics, 32(8), 444-449.
-
Rosenfeld, K. E., Wenger, N. S., & Kagawa-Singer, M. (2000). End-of-life decision making: A qualitative study of elderly individuals. Journal of General Internal Medicine, 15(9), 620-625.
-
Sabatino, C. P. (2010). The evolution of health care advance planning law and policy. The Milbank Quarterly, 88(2), 211-239. doi: 10.1111/j.1468-0009.2010.00596.x
-
Sampson, E. L., Jones, L., Thune-Boyle, I. C., Kukkastenvehmas, R., King, M., Leurent, B., . . . Blanchard, M. R. (2011). Palliative assessment and advance care planning in severe dementia: An exploratory randomized controlled trial of a complex intervention. Palliative Medicine, 25(3), 197-209. doi: 10.1177/0269216310391691
-
Samsi, K., & Manthorpe, J. (2011). 'I live for today': A qualitative study investigating older people's attitudes to advance planning. Health & Social Care in the Community, 19(1), 52-59. doi: 10.1111/j.1365-2524.2010.00948.x.
-
Sauler, M., & Siegel, M. D. (2012). The past, present, and future of advance directives as a guide to end-of-life decision making. Chest, 141(1), 9-10. doi: 10.1378/chest.11-2744
-
Schickedanz, A. D., Schillinger, D., Landefeld, C. S., Knight, S. J., Williams, B. A., & Sudore, R. L. (2009). A clinical framework for improving the advance care planning process: Start with patients' self-identified barriers. Journal of the American Geriatrics Society, 57(1), 31-39. doi: 10.1111/j.1532-5415.2008.02093.x
-
Schmid, B., Allen, R. S., Haley, P. P., & Decoster, J. (2010). Family matters: Dyadic agreement in end-of-life medical decision making. The Gerontologist, 50(2), 226-237. doi: 10.1093/geront/gnp166
-
Schubart, J. R., Levi, B. H., Dellasega, C., Whitehead, M., & Green, M. J. (2014). Factors that affect decisions to receive (or not receive) life-sustaining treatment in advance care planning. Journal of Psychosocial Nursing and Mental Health Services, 52(2), 38-44. doi: 10.3928/02793695-20131028-01
-
Seal, M. (2007). Patient advocacy and advance care planning in the acute hospital setting. The Australian Journal of Advanced Nursing: A Quarterly Publication of the Royal Australian Nursing Federation, 24(4), 29-36.
-
Seckler, A. B., Meier, D. E., Mulvihill, M., & Paris, B. E. (1991). Substituted judgment: How accurate are proxy predictions? Annals of Internal Medicine, 115(2), 92-98.
-
Sessanna, L. (2008). The role of spirituality in advance directive decision making among independent community dwelling older adults. Journal of Religion and Health, 47(1), 32-44.
-
Sessums, L. L., Zembrzuska, H., & Jackson, J. L. (2011). Does this patient have medical decision-making capacity? JAMA: Journal of the American Medical Association, 306(4), 420-427. doi: 10.1001/jama.2011.1023
-
Setta, S. M., & Shemie, S. D. (2015). An explanation and analysis of how world religions formulate their ethical decisions on withdrawing treatment and determining death. Philosophy, Ethics, and Humanities in Medicine: PEHM, 10, 6. doi: 10.1186/s13010-015-0025-x
-
Setterlund, D., Tilse, C., & Wilson, J. (2002). Older people and substitute decision making legislation: Limits to informed choice. Australasian Journal on Ageing, 21(3), 128-133.
-
Seymour, J. (2003). Technology and "natural death": A study of older people. Zeitschrift für Gerontologie und Geriatrie, 36(5), 339-346.
-
Seymour, J., Almack, k., & Kennedy, S. (2010). Implementing advance care planning: A qualitative study of community nurses' views and experiences. BMC Palliative Care, 9(4). doi: doi:10.1186/1472-684X-9-4
-
Seymour, J., Gott, M., Bellamy, G., Ahmedzai, S. H., & Clark, D. (2004). Planning for the end of life: The views of older people about advance care statements. Social Science & Medicine, 59(1), 57-68.
-
Shalowitz, D. I., Garrett-Mayer, E., & Wendler, D. (2006). The accuracy of surrogate decision makers: A systematic review. Archives of Internal Medicine, 166(5), 493-497. doi: 10.1001/archinte.166.5.493
-
Sharma, R. K., Hughes, M. T., Nolan, M. T., Tudor, C., Kub, J., Terry, P. B., & Sulmasy, D. P. (2011). Family understanding of seriously-ill patient preferences for family involvement in healthcare decision making. Journal of General Internal Medicine, 26(8), 881-886. doi: 10.1007/s11606-011-1717-6
-
Simon, J., Porterfield, P., Raffin Bouchal, S., & Heyland, D. (2013). 'Not yet' and 'Just ask': Barriers and facilitators to advance care planning--a qualitative descriptive study of the perspectives of seriously ill, older patients and their families. BMJ Supportive & Palliative Care.
-
Sinclair, C., Auret, K. A., & Burgess, A. (2013). The balancing point: understanding uptake of advance directive forms in a rural Australian community. BMJ Supportive & Palliative Care, 3(3), 358-365. doi: 10.1136/bmjspcare-2012-000256
-
Sinclair, C., Smith, J., Toussaint, Y., & Auret, K. (2014). Discussing dying in the diaspora: Attitudes towards advance care planning among first generation Dutch and Italian migrants in rural Australia. Social Science & Medicine, 101, 86-93.
-
Stewart, F., Goddard, C., Schiff, R., & Hall, S. (2011). Advanced care planning in care homes for older people: A qualitative study of the views of care staff and families. Age and Ageing, 40(3), 330-335. doi: 10.1093/ageing/afr006
-
Stiel, S., Krumm, N., Pestinger, M., Lindena, G., Nauck, F., Ostgathe, C., . . . Elsner, F. (2012). Antibiotics in palliative medicine--results from a prospective epidemiological investigation from the HOPE survey. Supportive Care in Cancer, 20(2), 325-333. doi: 10.1007/s00520-011-1084-1
-
Stone, L., Kinley, J., & Hockley, J. (2013). Advance care planning in care homes: The experience of staff, residents, and family members. International Journal of Palliative Nursing, 19(11), 550-557.
-
Streiner, D. L. (2003). Starting at the beginning: An introduction to coefficient alpha and internal consistency. Journal of Personality Assessment, 80(1), 99-103. doi: 10.1207/s15327752jpa8001_18
-
Sturman, E. D. (2005). The capacity to consent to treatment and research: A review of standardized assessment tools. Clinical Psychology Review, 25(7), 954-974. doi: 10.1016/j.cpr.2005.04.010
-
Suen, L. J., Lee, H. H., & Morris, D. L. (2013). Life-sustaining treatment: A comparison of the preferences of Taiwanese older adults and their family caregiver. The Journal of Nursing Research: JNR, 21(4), 261-269. doi: 10.1097/jnr.0000000000000006
-
Teno, J., Lynn, J., Wenger, N., Phillips, R. S., Murphy, D. P., Connors, A. F., Jr., . . . Knaus, W. A. (1997). Advance directives for seriously ill hospitalized patients: Effectiveness with the patient self-determination act and the SUPPORT intervention. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment. Journal of the American Geriatrics Society, 45(4), 500-507.
-
Thomas, J., & Harden, A. (2008). Methods for the thematic synthesis of qualitative research in systematic reviews. BMC Medical Research Methodology, 8(45). doi: 10.1186/1471-2288-8-45
-
Thompson, T. D. B., Barbour, R. S., & Schwartz, L. (2003). Health professionals' views on advance directives: A qualitative interdisciplinary study. Palliative Medicine, 17(5), 403-409.
-
Turan, B., Goldstein, M. K., Garber, A. M., & Carstensen, L. L. (2011). Knowing loved ones' end-of-life health care wishes: Attachment security predicts caregivers' accuracy. Health Psychology: Official Journal of the Division of Health Psychology, American Psychological Association, 30(6), 814-818. doi: 10.1037/a0025664
-
Turnbull, J. (2010) Oxford advanced learner’s dictionary of current English. UK: Oxford University.
-
Uhlmann, R. F., Pearlman, R. A., & Cain, K. C. (1988). Physicians' and spouses' predictions of elderly patients' resuscitation preferences. Journal of Gerontology, 43(5), M115-121.
-
Vandrevala, T., Hampson, S. E., & Chrysanthaki, T. (2002). Breaking the death taboo - Older people's perspectives on end-of-life decisions. Quality in Ageing and Older Adults, 3(3), 36-47.
-
Vandrevala, T., Hampson, S. E., Daly, T., Arber, S., & Thomas, H. (2006). Dilemmas in decision-making about resuscitation - a focus group study of older people. Social Science & Medicine, 62(7), 1579-1593.
-
Venkatasalu, M. R., Arthur, A., & Seymour, J. (2013). Talking about end-of-life care: The perspectives of older South Asians living in East London. Journal of Research in Nursing : JRN, 18(5), 394-406. doi: 10.1177/1744987113490712
-
Volandes, A. E., Levin, T. T., Slovin, S., Carvajal, R. D., O'Reilly, E. M., Keohan, M. L., . . . Noy, A. (2012). Augmenting advance care planning in poor prognosis cancer with a video decision aid: A preintervention-postintervention study. Cancer, 118(17), 4331-4338. doi: 10.1002/cncr.27423
-
Volandes, A. E., Mitchell, S. L., Gillick, M. R., Chang, Y., & Paasche-Orlow, M. K. (2009). Using video images to improve the accuracy of surrogate decision-making: A randomized controlled trial. Journal of the American Medical Directors Association, 10(8), 575-580. doi: 10.1016/j.jamda.2009.05.006
-
Volandes, A. E., Paasche-Orlow, M. K., Barry, M. J., Gillick, M. R., Minaker, K. L., Chang, Y., . . . Mitchell, S. L. (2009). Video decision support tool for advance care planning in dementia: Randomised controlled trial. BMJ: British Medical Journal, 338, b2159. doi: 10.1136/bmj.b2159
-
Westley, C., & Briggs, L. A. (2004). Using the stages of change model to improve communication about advance care planning. Nursing Forum, 39(3), 5-12.
-
White, C. (2005). An exploration of decision-making factors regarding advance directives in a long-term care facility. Journal of the American Academy of Nurse Practitioners, 17(1), 14-20. doi: 10.1111/j.1041-2972.2005.00005.x
-
Winland-Brown, J. E. (1998). Death, denial, and defeat: Older patients and advance directives. Advanced Practice Nursing Quarterly, 4(2), 36-40.
-
Winter, L., & Parks, S. M. (2012). The reluctance to burden others as a value in end-of-life decision making: A source of inaccuracy in substituted judgment. Journal of Health Psychology, 17(2), 179-188. doi: 10.1177/1359105311414956
-
Young, A. J., Ofori-Boateng, T., Rodriguez, K. L., & Plowman, J. L. (2003). Meaning and agency in discussing end-of-life care: A study of elderly veterans' values and interpretations. Qualitative Health Research, 13(8), 1039-1062.
|