题名

台灣女性愛滋病毒感染者生活經驗初探質性研究

并列篇名

The Qualitative Research of Life Experience of Women Living with HIV/AIDS in Taiwan

作者

蔡春美

关键词

女性研究 ； 愛滋病毒感染者 ； 生活經驗 ； 生殖健康 ； 烙印 ； WLWHA(women living with HIV/AIDS) ； Life Experience ； Stigma ； Female Research ； Reproductive Health

期刊名称

臺灣社會工作學刊

卷期/出版年月

14期（2014 / 07 / 01）

页次

1+3 - 55

内容语文

繁體中文
中文摘要

目的：本研究目的欲了解台灣女性愛滋病毒感染者的生活經驗。方法：研究方法採用質性研究典範，共9 名女性感染者同意接受1-2小時的深入訪談，最後進行錄音逐字稿的分析，描繪出女性感染者的生活樣貌。結果：1.受訪者過去從不認為自己有感染愛滋病毒的風險，「被動檢驗」才知道自己感染，當下產生許多生命威脅、親密關係、信任、居住、人我關係等危機；加上擔心傳染他人，陷入焦慮、自責、悲傷中。2.因為感染愛滋身分帶來的衝擊包括：壓抑性與親密關係需求、承擔經濟壓力、感染身分說不出口的情結、面臨人際與家人關係衝突、親職角色功能受阻、看不見自己的健康需求、因應就醫的鴻溝、自我價值降低等層面。3.初次告知的經驗與之後就醫及疾病適應情形有關。4.女性感染者生活在有限的做決定能力、缺乏財務資源、交通不便、必須照顧小孩與家人的生活中，亦較無法獲得愛滋照護的資訊與管道。5.愛滋成了建立關係的關卡。結論建議：1.綜觀女性感染者的生活經驗，就像是「無言人生—因信任而受傷」，三大壓力源為親密關係、告知、經濟。2.為了提供女性感染者更穩定的生活，實務工作上建議提供經濟就業輔導、伴侶與親密關係諮詢、女性感染者支持團體；政策面強化醫療資源跨科別的整合。
英文摘要

Purpose: the purpose of this study was to understand the life experience of HIV infected women in Taiwan. Method: This study used a qualitative research paradigm. We recruited 9 infected women. After completed the informed consent, each participant had 1 to 2hours of recorded in-depth interviews with the use of the interview outline. After the interview, the researchers were able to put together the lives appearance of the HIV infected women by the analysis of the verbatim records. Findings: 1.All respondents never consider themselves might be infected with HIV in the past. After the ＂passive screening＂, they been noticed that they are HIV infected, they began to produce many life-threatening, intimacy, trust, residential, people relationship crisis, coupled with worried about the transmission to others and further developed anxiety, self-blame and sadness. 2.The impact of life after infection: (1)suppress sex and intimacy needs, (2)undertake financial burden, (3)disclosure dilemma, (4)interpersonal relationship conflict, (5)the fear of transmission affects the role of motherhood, (6)ignore their health issues, (7)the gap to acquired the medical services, (8)low self-esteem. 3. At the beginning the participants will inform others in order to relieve the pressure, but the response will affect the situation on the future infection identity adaptation. 4.What their life experience is limited ability to make decisions, lack of financial resources, inconvinent to transport, must take care of the children and their families etc., also they cannot get HIV care information and services. 5. HIV became the checkpoints of establishing relationship. Conclusion and Suggestion: 1.Looking at the journey of the HIV infected women is like the ＂silent life-trust to jury＂. There are three major stressors: intimacy, disclosure and financial. 2. In order to assist them in obtaining a stable life, we recommended work practices provide economic employment counseling, couples and intimacy counseling, and female living with HIV support groups, besides, from the policy to strengthen the integration of cross-divisions medical resources.
主题分类 社會科學 > 社會學
参考文献
  1. 蔡春美、徐森杰(2009)。是「愛」還是「礙」？初探愛滋對感染身分相異男同志伴侶互動關係之影響。台大社會工作學刊，19，1-40。
    連結：
  2. 盧幸馡、李思賢(2008)。女性海洛因使用者共用注射針具和稀釋液行為與愛滋感染之初探。臺灣衛誌，27，158-169。
    連結：
  3. 謝菊英(2006)。愛滋感染者家屬適應探討之質性研究。臺灣社會工作學刊，5，46-74。
    連結：
  4. The Well Project (2010). Women and HIV viral load. Retrieved from http://www.thebody.com/content/art58421.html.
  5. 衛生福利部疾病管制署（2012a）。102 年統計月報1-12 月份。取自http://www.cdc.gov.tw/info.aspx?treeid=1f07e8862ba550cf&nowtreeid=6c5ea6d932836f74&tid=58114AFB86117F53。
  6. The Joint United Nations Programme on HIV/AIDS, UNAIDS (2012b). Women, girls, gender equality and HIV. Retrieved from http://www.unaids.org/en/media/unaids/contentassats/documents/factsheet/2012/20120217_FS_WomenGirls_en.pdf.
  7. The Well Project (2011a). Women and HIV/AIDS. Retrieved from http://www.thebody.com/content/art58208.html.
  8. 衛生福利部疾病管制署（2012c）。73-101 年底HIV 感染人數危險因子與性別統計。取自：http://www.cdc.gov.tw/info.aspx?treeid=1f07e8862ba550cf&nowtreeid= 6c5ea6d932836f74&tid=5250BA9AD485D6C3。
  9. Positive Women's Network (2012a). Reproductive Justice. Retrieved Sep. 16, 2012, from U.S. Positive Women's Network, a project of World.From http://www.pwn-usa.org/policy/policy-agenda/reproductive-justice-2
  10. 衛生福利部疾病管制署（2012b）。73-101 年底HIV 感染人數危險因子與性別統計。取自：http://www.cdc.gov.tw/info.aspx?treeid=1f07e8862ba550cf&nowtreeid= 6c5ea6d932836f74&tid=5250BA9AD485D6C3。
  11. The Well Project (2011b). Menopause and HIV. Retrieved from http://www.thebody.com/content/art61732.html.
  12. Bernard, E.J. (2004). HIV-positive Teenage Girls have Higher Risk of Future Cervical Cancer. Retrieved September 5, 2008, from http://www.aidsmap.com/en/news/82FFE357-EF12-4321-82D0-105FAD308B3A.asp
  13. Positive Women's Network (2012b). Prevention justice. Retrieved from http://www.pwn-usa.org/policy/policy-agenda/prevention-justice-2.
  14. Terrell, K. (2011). Women and HIV/AIDS: not just a man's issue anymore. Retrieved from http://www.thebody.com/content/art60817.html
  15. World Health Organization (2009). Today's evidence tomorrow's agenda. Retrieved from http://www.who.int/gender/women_health_report/en/ index.html
  16. Hosein, S.R. (2012, Sep. 16). Depression common in transition to menopause. Retrieved from http://www.thebody.com/content/69541/depression-common-in-transition-to-menopause.html
  17. Positive Women's Network (2012c). Women-centered care. Retrieved fromhttp://www.pwn-usa.org/policy/policy-agenda/women-centeredcare-2.
  18. The Well Project (2011c). Depression, women and HIV. Retrieved from http://www.thebody.com/content/58419/women-and-depression.html
  19. World Health Organization (2014). HIV/AIDS data and statistic. Retrieved from http://www.who.int/hiv/data/en/.
  20. World Health Organization (2011). Violence against women: Intimate partner and sexual violence against women. Retrieved from http://www.who.int/mediacentre/factsheets/fs239/en/index.html.
  21. Holmes, T.E. (2011). Women overcoming the shame and stigma of HIV. Retrieved fromhttp://www.thebody.com/content/art61781.html.
  22. Project Inform (2002). HIV and older age. Retrieved from http://www.thebodypro.com/content/art5138.html
  23. Applebaum, A.J.,Richardson, M.A.,Brady, S.M.(2009).Gender and other psychosocial factors as predictors of adherence to highly active antiretroviral therapy HAART in adults with comorbid HIV/AIDS, psychiatric and substance-related disorder.AIDS Behavior,13(1),60-65.
  24. Brown, T.T.,Qaqish, R.B.(2006).Antiretroviral therapy and the prevalence of osteopenia and osteoporosis: a meta-analyticreview.AIDS,20,2165-2174.
  25. Bruhin, E.(2003).Power communication and condom use: Patterns of HIV-relevant sexual risk management in heterosexual relationships.AIDS Care,15(3),389-401.
  26. Chen, M.J.,Wu, M.Y.,Yang, J.H.,Chao, K.H.,Yang, Y.H.,Ho, H.N.(2005).Increased frequency of genital human papillomavirus infection in human immunodeficiency virus-seropositive Taiwanese women.Journal of Formosa Medical Association,104(1),34-38.
  27. Chi, B.K.,Gammeltoft, Y.,Nam, N.T.T.,Rasch, V.(2010).Induced abortion among HIV-positive women in QuangNinh and HaiPhong, Vietnam.Tropical Medicine and International Health,15(10),1172-1178.
  28. Cohen, M.H.,French, A.L.,Benning, L.(2002).Causes of death among women with human immunodeficiency virus infection in the era of combination antiretroviral therapy.American Journal of Medicine,113,91-98.
  29. Cook, J.A.,Cohen, M.H.,Burke, J.(2002).Effects of depressive symptoms and mental health quality of life on use of highly active antiretroviral therapy among HIV seropositive women.Journal of Acquired Immune Deficiency Syndrome,30,401-409.
  30. Cook, J.A.,Grey, D.,Burke, J.,Cohen, M.H.,Gurtman, A.C.,Richardson, J.L.,Wilson, T.E.,Young, M.A.,Hessol, N.A.(2004).Depressive symptoms and AIDS-related mortality among a multisite cohort of HIV-positive women.American Journal of Public Health,94(7),1133-1140.
  31. Cooper, D.,Harries, J.,Myer, L.,Orner, P.,Bracken, H.,Zweigenthal, V.(2007).Life is still going on: Reproductive intentions among HIV-positive women and men in South Africa.Social Science Medicine,65(2),274-283.
  32. Cooperman, N.A.,Simoni, J.M.(2005).Suicidal ideation and attempted suicide among women living with HIV/AIDS.Journal of Behavioral Medicine,28,149-156.
  33. Fiore, J.R.,Lorusso, F.,Vacca, M.,Ladisa, N.,Greco, P.,DePalo, R.(2005).The efficiency of sperm washing in removing human immunodeficiency virus type 1 varies according to the seminal viral load.Fertility and Sterility,84(1),232-234.
  34. Frisch, M.,Biggar, R.J.,Engel, E.A.(2001).Association of cancer with AIDS-related immunosuppression in adults.Journal of the American Medicine Association,285,1736-1745.
  35. Gupta, G.R.(2002).How men's power over women fuels the HIV epidemic.British Medicine Journal,324,183-184.
  36. Hansen, N.B.,Cavanaugh, C.E.,Vaughan, E.L.,Connell, C.M.,Tate, D.C.,Sikkema, K.J.(2009).The influence of personality disorder indication, social support, and grief on alcohol and cocaine use among HIV-positive adults coping with AIDS-related bereavement.AIDS Behavior,13(2),375-384.
  37. Hogan, M.C.,Foreman, K.J.,Naghavi, M.,Ahn, S.Y.,Wang, M.,Makela, S.M.(2010).Maternal mortality for 181 countries, 1980-2008: A systematic analysis of progress towards Millennium Development Goal 5.The Lancet,375(9726),1609-1623.
  38. Holzemer, W.L.,Hudson, A.L.,Kirksey, K.M.,Hamilton, M.J.,Bakken, S.(2001).The revised sign and symptom check-list for HIV (SSC-HIVrev).Journal of Association of Nurses in AIDS Care,12,60-70.
  39. Kang, S.Y.,Goldstein, M.F.,Deren, S.(2008).Gender differences in health status and care among HIV-infected minority drug users.AIDS care,20(9),1-6.
  40. Kleeberger, C.A.,Phair, J.P.,Strathdee, S.A.,Detels, R.,Kingsley, L.,Jacobson, L.P.(2001).Determinants of heterogeneous adherence to HIV-antiretroviral therapies in the multicenter AIDS cohort study.Journal of Acquired Immune Deficiency Syndrome,26,82-92.
  41. Ko, N.Y.,Lai, Y.Y.,Liu, H.Y.,Ko, W.C.,Chang, C.M.,Lee, N.Y.(2011).Gender differences in HIV manifestations at presentation to care and continuity of care among HIV infected persons in Taiwan.AIDS Care,23(10),1254-1263.
  42. Ko, N.Y.,Muecke, M.A.(2006).Prevailing discourses among AIDS care professionals about childbearing by couples with HIV in Taiwan.AIDS Care,18(1),82-86.
  43. Lambert, S.,Keegan, A.,Petrak, J.(2005).Sex and relationships for HIV positive women since HAART: a quantitative study.Sex Transmitted Infection,81,333-337.
  44. Mallory, C.(2008).African American women's experience of infection with HIV in the rural southeastern United States.Journal of the Association of Nurses in AIDS Care,19(1),28-36.
  45. Massad, L.S.,Springer, G.,Jacobson, L.(2004).Pregnancy rates and predictors of conception, miscarriage and abortion in US women with HIV.AIDS,18,281-286.
  46. McIntyre, J.(2006).Strategies to prevent mother-to-child transmission of HIV.Current Opinion in Infectious Diseases,19(1),33-38.
  47. Murphy, D.A.,Marelich, W.D.,Armistead, L.,Herbeck, D.M.,Payne, D.L.(2010).Anxiety/Stress among mothers living with HIV: Effects on parenting skills and child outcomes.AIDS Care,22(12),1449-1458.
  48. Murphy, D.A.,Roberts, K. J.,Herbeck, D.M.(2011).HIV disease impact on mothers: What they miss during their children's developmental years.Journal of Child and Family Study,20,361-369.
  49. Paterson, D.L.,Swindells, S.,Mohr, J.(2000).Adherence to protease inhibitor therapy and outcomes in patients with HIV infection.Annual International of Medicine,133,21-30.
  50. Pearshouse, R.(2008).Legislation contagion: Building resistance.HIV AIDS Policy Law Rev.,13(2-3),1+5-10.
  51. Quinn, T.C.,Wawer, M.J.,Sewankambo, N.(2000).Viral load and heterosexual transmission of human immunodeficiency virus type 1. Rakai Project Study Group.New England Journal of Medicine,342,921-929.
  52. Sandelowski, M.,Barroso, J.(2003).Motherhood in the context of maternal HIV infection.Research of Nursing Health,26,470-482.
  53. Sandelowski, M.,Lambe, C.,Barroso, J.(2004).Stigma in HIV-positive women.Journal of Nursing Scholarship,36(2),122-128.
  54. Santoro-Lopes, G.,Harrison, L.H.,Moulton, L.H.,Lima, L.A.,de Pinho, A.M.,Hofer, C.,Schechter, M.(1998).Gender and survival after AIDS in Rio de Janeiro, Brazil.Journal of Acquired Immune Deficiency Syndrome Human Retrovirol,19(4),403-407.
  55. Schuman, P.,Ohmit, S.E.,Klein, R.S.,Duerr, A.,Cu-Uvin, S.,Jamieson, D.J.(2003).Longitudinal study of cervical squamous intraepithelial lesions in human immunodeficiency virus (HIV)-seropositive and at-risk HIV-seronegative women.Journal of Infectious Diseases,188(1),128-136.
  56. Schuster, M.A.,Beckett, M.K.,Corona, R.,Zhou, A.J.(2005).Hugs and kisses: HIV-infected parents' fears about contagion and the effects on parent-child interaction in a nationally representative sample.Archives of Pediatrics and Adolescent Medicine,159,173-179.
  57. Singh, B.K.,Koman, J.J., 3rd.,Catan, V.M.,Souply, K.L.,Birkel, R.C.,Golaszewski, T.J.(1993).Sexual risk behavior among injection drug-using human immunodeficiency virus positive clients.International Journal of Addiction,28,735-747.
  58. The Joint United Nations Programme on HIV/AIDS, UNAIDS(2010).,Joint United Nations Programme on HIV/AIDS (UNAIDS).
  59. The Joint United Nations Programme on HIV/AIDS, UNAIDS(2012).,Joint United Nations Programme on HIV/AIDS (UNAIDS).
  60. VanHandel, M.,Beltrami, J.F.,MacGowan, R.J.,Borkowf, C.B.,Margolis, A.D.(2012).Newly identified HIV infections in correctional facilities, United States.American Journal of Public Health,102(Suppl 2),S201-204.
  61. Wu, M.Y.,Chang, L.J.,Chen, M.J.,Chao, K.H.,Yang, Y.S.,Ho, H.N.(2011).Outcomes of assisted reproductive techniques for HIV-1-discordant couples using thawed washed sperm in Taiwan: Comparison with control and testicular sperm extraction/microscopic epididymal sperm aspiration groups.Journal of the Formosan Medical Association,110(8),495-500.
  62. 王威蘋(2012)。碩士論文(碩士論文)。臺灣大學護理學研究所。
  63. 吳明義、何弘能、楊友仕(2001)。愛滋病毒帶原者夫婦的人工協助生殖課題。台灣醫學，5(6)，734-738。
  64. 巫沛瑩、楊上平、羅玉珍、張君俞、盛望徽(2014)。台大醫院老年愛滋病毒感染者的特性與健康問題。愛之關懷季刊，86，25-31。
  65. 李思賢(2006)。國家科學委員會成果報告國家科學委員會成果報告,臺北:國家科學委員會。
  66. 柯乃熒、賴怡因、劉曉穎、陳嬿今(2011)。以性別平等觀點檢視女性感染愛滋病毒的風險與照顧。台灣醫學，15(3)，1-7。
  67. 莊苹、蔡春美(2010)。女性愛滋病毒感染者子宮頸癌防治與建議。護理雜誌，57(1)，71-76。
  68. 黃惠雯譯、童琬芬譯、梁文蓁譯、林兆衛譯、Crabtree B. F.、Miller W. L.(2004)。最新質性方法與研究。台北市:韋伯。
  69. 蔡茂松、洪健清(2012)。愛滋病毒感染者的骨質流失與骨頭壞死相關問題。愛之關懷，78，34-45。
  70. 賴怡因、柯乃熒、劉曉穎、李欣純、柯文謙(2009)。女性HIV 感染者之臨床表徵與性別差異。愛之關懷，67，15-21。
被引用次数
  1. 蔡春美(2022)。婚姻平權公投反同婚文宣對男同志愛滋病毒感染者的心理影響初探。中華輔導與諮商學報，64，35-63。
  2. 潘淑滿,郭書辰,莊登閔(2022)。男同志愛滋感染者交織烙印經驗與因應策略初探。臺大社會工作學刊，46，181-227。
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