Preliminary Study: Taiwanese Mothers

En-Chi Chiu

doi:10.1097/JNR.0b013e3182a0afd4

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医药卫生 > 预防保健与卫生学
医药卫生 > 社会医学

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Preliminary Study: Taiwanese Mothers' Experiences of Children with Sensory Processing Disorder

初步探讨台湾母亲照顾感觉统合失调孩童之经验

邱恩琦(En-Chi Chiu)

The Journal of Nursing Research ； 21 卷 3 期 (2013 / 09 / 01) ， P219 - 224

英文 DOI： 10.1097/JNR.0b013e3182a0afd4

感觉统合失调；以家庭为中心之服务模式；台湾母亲；民族志研究； sensory processing disorder ； family-centered service approach ； Taiwanese mothers ； ethnographic research

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摘要 │ 参考文献 (26) │ 国际计量

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Background: Different cultural backgrounds and parental experiences influence parenting styles and approaches to raising children with disabilities. Family-centered care should consider parental, especially main caregivers, experiences with their disabled children. In Taiwan, in most of homes, mothers are the main caregivers.Purpose: The purpose of this study was to explore Taiwanese mothers' experiences with their children who have sensory processing disorder.Methods: This study used a qualitative ethnographic design and semistructured interview format. Transcripts were analyzed and synthesized into themes.Results: Three mothers were interviewed. The following three themes emerged: (a) relationships within the shared worlds of disability and culture, (b) daily life challenges and expectations, and (c) opportunity to receive professional services. These Taiwanese mothers expressed that they experienced stress from being blamed for insufficient skills and from the shame of their children's disabilities that reflected lack of teacher, friend, and other family members' understanding of the cause of their children's inappropriate behaviors. Their children experienced difficulties performing daily activities, which resulted in stresses on both the mother and her child. The interviewed mothers needed to receive timely, long-term services from healthcare professionals. However, hospitals are inadequately staffed with occupational therapists, which delays care for children with special needs.Conclusion: Taiwanese mothers experience stresses from themselves, their child, and others. Healthcare professionals should apply a family-centered service approach to fulfill the needs of mothers and their disabled children. Moreover, healthcare professionals should promote greater awareness of sensory processing disorder symptoms and interventions to increase public awareness and acceptance of these children.

参考文献 ( 26 ) 〈TOP〉

Ahn, R. R.,Miller, L. J.,Milberger, S.,Mclntosh, D. N.(2004).Prevalence of parents' perceptions of sensory processing disorders among kindergarten children.The American Journal of Occupational Therapy,58(3),287-293.
Case-Smith, J.(ed.)(2005).Occupational therapy for children.St. Louis, MO:Mosby.
Chan, C. C. H.,Lee, T. M. C.,Yuen, H. K.,Chan, F.(2002).Attitudes towards people with disabilities between Chinese rehabilitation and business students: An implication for practice.Rehabilitation Psychology,47(3),324-338.
Chen, R. K.,Jo, S.-J.,Donnell, C. M.(2004).Enhancing the rehabilitation counseling process: Understanding the obstacles to Asian Americans' utilization of services.Journal of Applied Rehabilitation Counseling,35(1),29-35.
Crepeau, E. B.(ed.),Cohn, E. S.(ed.),Schell, B. A. B.(ed.)(2009).Willard & Spackman's occupational therapy.Philadelphia, PA:Lippincott Williams & Wilkins.

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