小魚也能開潛水艇：極重度多重障礙學生電動輪椅介入之行動研究

林珮如; 林真悌

doi:10.6172/BSE.201307.3802005

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P99 - 125

社会科学 > 教育学

DOI： 10.6172/BSE

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小鱼也能开潜水艇：极重度多重障碍学生电动轮椅介入之行动研究

Small Fish Can Also Drive the Submarine: Action Research for Powered Wheelchair Intervention for a Student with Profound and Multiple Disabilities

林佩如(Pei-Ju Lin) ；林真悌(Chen-Ti Lin)

特殊教育研究学刊； 38 卷 2 期 (2013 / 07 / 01) ， P99 - 125

繁体中文 DOI： 10.6172/BSE.201307.3802005

极重度多重障碍；电动輪椅；辅助科技设备；辅助科技服务； profound and multiple disabilities ； powered wheelchairs ； assistive technology device ； assistive technology service

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摘要 │ 参考文献 (32) │ 被引用文献 (2) │ 国际计量

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Purpose: This study suggests a method for assisting students with profound and multiple disabilities to overcome their difficulties in mobility through the process of active research. Methods: The participant in this study was a first grade elementary student of a special education school who was diagnosed with spinal muscular atrophy, which causes muscle atrophy and muscle weakness throughout the participant's body, limiting his ability to ambulate and participate in activities within the school. Therefore, we conducted a series of systematic processes to provide the participant with an appropriate assistive device to aid in mobility. This process included evaluations to identify the skills and needs of the participant, modifications of the assistive device to fit the participant's needs, training sessions in the use of the device, and practice sessions in real-life contexts. Results/Findings: The results of this study indicated that (1) through the process of action research, a systematic collaboration between professions to provide powered wheelchair services can help students with profound and multiple disabilities overcome difficulties in mobility; (2) the use of a powered wheelchair can help students increase their level of participation within school, and the willingness to explore the environment, motor control abilities, active interactions between peers, awareness of self-determination, level of confidence and self-fulfillment, willingness to express themselves, and life experience; (3) the use of a powered wheelchair can make parents and foreign caregivers have a positive attitude toward the powered wheelchair, learned to let go gradually, and believing in their child; and (4) the use of a powered wheelchair can encourage special educators to reflect on and improve their work, including changes to the environment, the importance of assistive technology service and parental participation, the struggle between letting go and offering assistance, the dilemma of pull-out and integration, and the importance of a barrier-free environment. Conclusion/Implications: Through the process of action research, we provided systematic powered wheelchair intervention to help a student with profound and multiple disabilities overcome difficulties in mobility. The use of a powered wheelchair can help students in all aspects of development. The use of a powered wheelchair can have positive influences on parents and foreign caregivers, and can encourage special educators to reflect on and improve their work. Based on the results of this study, suggestions for future practice and research are proposed. This study suggests that we can use teamwork to provide assistive technology services and emphasizes parental participation. In addition, powered wheelchair intervention enhances mobility and all aspects of development of students with profound and multiple disabilities. The powered wheelchair driving training is provided by the related departments of university interns or volunteers, caregivers, and parents. Suggestions for the research design are provided for future research.

参考文献 ( 32 ) 〈TOP〉

Bottos, M.,Bolcati, C.(2001).Powered wheelchair and independence in young children with tetraplegia.Developmental Medicine & Child Neurology,43,769-777.
Butler, C.(1986).Effects of powered mobility on self-initiated behavious of very young children with locomotor.Developmental Medicine & Child Neurology,28,325-332.
Butler, C.,Okamoto, G. A.,McKay, T. M.(1983).Powered mobility for very young disabled children.Developmental Medicine & Child Neurology,25,472-474.
Cook, A. M.,Hussey, S. M.(2002).Assistive technology: Principles and practice (2nd ed.).Baltimore:Mosby.
Davies, A.,De Souza, L. H.,Frank, A. O.(2003).Changes in the quality of life in severely disabled people following provision of powered indoor/outdoor chairs.Disability and Rehabilitation,25,286-290.

被引用文献 ( 2 ) 〈TOP〉

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